Glad to Have Him
- My husband was diagnosed with thyroid cancer this time last year. We live in Spain and 3 weeks after diagnoses he had had the operation to remove the thyroid and 10 nodes. In April 2011, he had nuclear med and he is going for another dose of RAI next week. He is 41 and we have 3 young children. I have read all your emails and see in every one of you a strength that is a help to me. I do understand the weight gain and the tiredness and the foggy brain but what i am getting from reading this is that you are all fighters and as in my husband's voice "Refuse to Lose" Thyroid Cancer may be the so called good one but it leaves you with the fight for the rest of your life. I hope this will be the last time my husband has to go through RAI as I feel so helpless and unable to help him through it. God bless all of you going through the same thing and all your words have helped me understand what he is going through even though we talk very openly about it.
- —Guest jaine
Doctors Playing God
- In the 39 years since my thyroidectomy, I have suffered with all kinds of ailments due to doctor's inability to LISTEN to me. This site has given me more insight to the problem than any doctor. For years, I kept telling my doctors that the formulas of medications just weren't right yet. That something was still lacking. I kept saying there ARE better (or better said, were better) medications than some others. All medications re not all the same and when formulations are changed many things can occur. Though, to my knowledge, none of the new formulations have been for the better. I have struggled with weight gain, intestines going whack, skin looking old, hair falling out, joints and muscles aching, and becoming solitary and depressed. I can't think. Sometimes I read a paragraph and have to read it again to comprehend what I just read. I am so tired that I even tried street drugs to make me feel better, but that only worked for a short time. Good Cancer?! My daughter had leukemia 5 years ago. She is back doing all the things a young lady should. I am still a slave to my diagnosis.
- —Guest thiamia
No Synthroid for Me
- Synthroid was almost the death of me. It was all I could do to get off the couch. Thank God for a specialist (not an endocrinologist) who told me about Naturethroid. He also tested my adrenals and treated those. The cancer really needs a number on them. It's been 2 years, and I feel better than I have for a long time. I went gluten free and have lost 30 lbs. I finally have energy to live.
- —Guest Dana
To the person on Levothyroxine
- Hi I'm reading comments. Thanks to all of you I'm recently diagnosed. A coworker, had issues when he took levothyroxine(generic I think) instead of synthroid. He went back on synthroid and says he feels fine.
- —Guest Cindy
Much of the Same
- As I read through everyone's experiences, I have now found answers to my own situation. It's been 3 years and hopefull the thyrogen treatment is coming as soon as the medicine arrives (back-logged). I'm tired everyday, cannot lose weight and occasionally am depressed. When the weather turns cold, it is harder to swallow. Not fun - as I told my endo, I am not a happy person..
- —Guest Kathy
No matter what they say...
- I certainly don't want to viewed as being pessimistic, but I will say that when the surgeon told me, "you'll have to take a pill for the rest of your life, but nothing else will change", I didn't have any reason to doubt. Unfortunately, I've never felt the same since my surgery and treatment. I don't care what people think, there is no replacement for the way our bodies were designed in the first place. I am thankful there are medications and treatments available to help patients survive, but do not feel like I used to.
- —Guest Darlene T.
Yoga is Everything For Me
- Before I was diagnosed with Hashimoto's and thyroid cancer, yoga had gone a long way towards moving me to a normal life. It continues to aid me in recovering from a severe reaction to RAI after surgery and acheiving a "normal" energy level & lifestyle. I am strong & able to cope. Take the "warrior's stance" & move on.
- —Guest Guest Lynn
My Advice Re: Thyroid Cancer
- Finding the right endocrinologist is key but I also believe that you have to be positive, exercise and eat well. When I was recovering from my thyroidectomy I did alot of my own research and read that those without a thyroid need to exercise on a regular basis to feel well and maintain weight. I've been cancer free for 5 years, not gained or lost weight and feel great.
- —Guest Christima
My Life After Thyroid Cancer
- After they completely removed my thyroid, my life was not the same. I was in pain every night and wake up with pain. I gained 10 lbs and suddenly I have carpal turnel , which made my right hand numb and my thjumb hurt, and I can't hold on to even a empty cup. I alse had symptom of menopause at 41.
- —Guest Nina
Not the "Good" Cancer!
- One good thing that has come from my papillary thyroid cancer is that I got involved with ThyCa (Thyroid Cancer Survivors Association). I have met the nicest people, online and in person. Thyroid cancer survivors are great. And, no, it's not the "Good" Cancer. There is no such thing. Cancer is cancer and there is nothing good about having it. We (thyca survivors) must have our thyroids removed and did you know that the thyroid is one of the most important organs in our bodies? It controls a lot of body functions. Then we have to be irradiated (fun?). For the rest of our lives we have to take thyroid replacement and have follow up scans and lots of bloodwork. We get to know our doctors really well. No, it's not fun but we go on because we are fighters. I wish you well and hope that you never hear the words, "You have thyroid cancer." It is a lifelong battle.
- —Guest PAP
There is always hope...
- I spent years getting worse. Lethargic, hair thinning, fogged out mentally, gaining weight from being a thin person to almost 50 lbs in about 2 years, while eating no differently. Then reality hit me... like a pain in the neck; literally! After a year and a half of trying to shrink a nodule that wasn't showing it was cancer, but suspect, my doctor said it was time to take it out. It was then, upon waking up from surgery that I heard the news. As everyone has described, I went through all the post surgery situations everyone else has. It took about a year and a half before I started feeling normal, though within a year things were different. Now, four years later, I work hard at maintaining my weight, working out almost daily. I have my down days, but I've learned it's part of it. But I thank God for a great Endocrinologist who is open, and the mercy of God in my life. There is hope! You can do well post it all. Just don't give up, no matter how you feel right now. It will change!
- —Guest StevenB
Salivary Gland Problems
- In Sept. of 2010 I had treatment after surgery, and since then my salivary gland has been plugged, I can`t taste, my head shakes uncontrollably. It's hard to swallow.
- —Guest Betty Romano
Tired of dealing with my thyroid
- I had my thyroid removed last May after being diagnosed with multiple nodules that were pressing on my esophagus. My biopsy was negative for cancer, so you can imagine my shock when I learned I had Papillary Cancer. Since then I've had three round of RAI. The last being this past week. It seems that there is still thyroid tissue in my neck. Now I have to have another scan in six months. When will it end? When will I be able to put this to rest and get on with my life? I've already dealt with the 10 months that it's taken to regulate the Synthroid. I am so tired and frustrated!
- —Guest Susan V.
After Thyroid Cancer
- I wish I had known about the hormonal changes after having my thyroid removed because of cancer. After 6 months, I went into full blown menopause and because of the hormone drop, I have suffered from intercystial cystitis ever since. I always swore I wouldn't take estrogen because of the breast cancer risk but I was miserable without it. I took 2 years to get my Synthroid meds just right so the extra weight fell off. When there was a Thyrogen shortage and it was time for my scan, I told my endo I would rather skip the scan til I could have the shots! The Thyrogen is the way to go, for sure. It is frustrating to find out there is "a little cancer still there - somewhere" but feel lucky to have a slow-growing cancer. I probably had cancer for 11 years before I was diagnosed!
I Still Don't Feel Right
- I was diagnosed with papillary thyroid cancer in October of 2010 (3cm tumor with nodal involvement), and after much hesitation, finally agreed to surgery in June of 2011. I've never had a scan, and I've never taken I-131. Since surgery, I seem to have suddenly been thrown into menopause, and I've been unbelievably depressed (which I'd never been before) and unbelievably low energy (also, totally unlike me). I used to wake up happy and ready to start my day. Now I can't drag myself out of bed, and I can't remember what to do each morning. I don't understand it. I had never before now taken any preseciprion drug of any kind, and now I'm on Levothyroxine daily. It is humiliating to be beholden to the drug & insurance companies, to be life-dependent, and to pop a pill every day.