From the article: Finding Thyroid Support and Support Groups Online
Share your own experiences, recommendations, advice, and information about web/Internet-based thyroid support groups, listservs, forums, and other venues for online thyroid support. Feel free to recommend your favorite places for thyroid-related online support as well, and share your pros and cons about the online thyroid support experience. (And don't forget the About.com Thyroid Support Forum, a good starting place for online support.) Share Your Experiences
Does It Ever Get Better?
- 5 years with thyroid problems and 1.5 years without a thyroid gland. Although I went through hell with Graves Disease and an enlarged goiter, the past year & a half without a thyroid gland and 1 parathyroid gland has been hell magnified. No one seems to truly understand what I'm going through. I'm even fed up with doctors and medication because nothing seems to help. Every time I get my labs done I end up with bruises that take forever to go away. The anxiety has gotten so bad that I have now been diagnosed with agoraphobia and have to take 62.5mg of Paxil Cr daily just to function with the depression and panic attacks. This battle with thyroid disease is so overwhelming for me that my therapist is even frustrated because she can't help me mentally if the medical aspect of my illness is not under control. Life without a thyroid gland is no life at all. You would think that as important as your thyroid is to your body there would be a solution to keeping it healthy. I'm just saying!
- —Jaede_Bracey
The "Good Cancer" Controversy
- I am 47 and had thyroid cancer at age 25 (surgery and RAI). Sure I was scared and I can't say is was easy to go through but I thank God every day it was that kind and not another kind. I could eat, did not lose my hair, was not throwing up from Chemo, it was treated in a really unique way if you think about it---the leftover tissue absorbed iodine that is radioactive and targets that area. How neat is that? Don't dwell on the Poor Me part of it. Think how nice it is that you, if you had to get some kind of cancer (no one wants any kind of course), be glad it was one so treatable. It's not easy and often I am tired, but compared to the friend I saw battle ovarian cancer and the ones battling much more sinister cancers, shouldn't we almost shout for joy if a doctor assures us that is we had to get cancer we at least got the good one? Jump up and down with joy and don't be so offended. He isn't saying "yippee you got cancer", he's saying "this one is in a category by itself in a good way!!!!"
- —Guest carol
Do you have to be in normal TSH Range to
- Do you have to be in normal TSH range to feel good or can be slightly off and feel bad?
- —Guest Mikal
This Problem has been Around too Long!
- I have been diagnosed with Grave's Disease and Hyperthyroidism. I have searched for support locally and have found none. There are groups out there but I have found that they do not answer messages. They do ask for money for research purposes. What research is going on? Does anyone know? Personally I would like to start a group in my area, but there doesn't seem to be any answers to the questions we need to talk about. Has anyone experienced great fear and anxiety along with this? Sometimes I get so scared - and there is nothing to be scared of - and a panic attack comes on. My DR. doesn't seem to care for my personal feelings, but it is hard to get another one. I read that there is supposed to be hundreds of thousands of people with this problem but no real help around for it. Do you think that is true? I feel alone with it alot of the time, those numbers made me feel part of a group, but still no one to talk to. Thank you for letting me vent. I think we need to pull together.
- —Guest Wendy
Bad Chest Pain
- I too, had bad chest pain and thought I was having a heart attack. I went online and looked at effects of my Levothryoxine, and yes, chest pain was one. I went off my meds for two days, then started taking them every day and one half instead of daily. I continue this program today. I have no chest pains. The difference has not effected me otherwise. (My doctor had moved out of state...that is why I self-treated).
- —Guest Val Saund
Do Not Really Understand Thyroid
- Hi, I was diagnosed with hyperthyroidism in 2002. It was so very scary for me. I was working at a hospital as a CNA and my heart rate always ran about 165 beats a min. Every day blood pressure started rising, I was losing alot of weight, very jittery, drinking hot coffee, and a cold soda right behind each other all the time. I just could not sleep at night without sleeping on five or six pillows at a time. I was at work one after noon when I fainted. I woke up in the er. They had already did blood work on me. When the results came in, it did show that it was my thyroid. I was so scared and so shocked. The same thing has happened to my daughter. I had a good doctor, but he has now moved out of the state so I had to find another doctor that is two and half hours away. I am now 35 years old and I have been dealing with this disease for about 9 years. My daughter is now 16 and she has been dealing with it for about 6 years. We try to take care of ourselves the correct way.
- —Guest Kenay
Senior with weight problems
- As someone with serious weight issues, it has taken a doctor to find out I had Hashimoto's and Estrogen dominance and insulin resistance before I could begin losing weight. I have a great doctor, Dr. David Klein, from Mary's site. He is gradually upping my armour, so I won't have nasty side effects. Because the Hashi's is still raging, it will take a while, but I am losing between 5 and 10 pounds per month now. From my personal experience and from the experiences of others I have read, I have to say your doctor does not have your thyroid under control. If he/she has not run tests beyond TSH, you need to get them yourself, or get another doctor. Mary has a wonderful article about what tests you need.
- —AnitaDenise
Half My Thyroid Removed
- I had hypothyroidism with a goiter in 2006. I had half my thyroid removed. Since 2006 I have gained about 100 pounds I'm always tired and I have constipation. I had my labs drawn today they were T3 uptake 27%, TSH 2.98ulU/ml, Thyronine (T4) 11.1ug/dl, FTI 3.00 I wonder if these labs are normal.
- —a1cellphones
Master Herbalist Nutritionalist
- Hi! I am really just a very concerned Nana who desperately wants to help my Grandbaby overcome Thyroid Disease.Titles don't impress me. However,(sadly)these days they seem to be a necessity to be heard. My motivation is working together in the quest to figure out the "WHY" OF HYPOTHYROIDISM. I would rather earn my respect via educating/serving others uncovering causes/answers to thyroid dysfunction. I like to assist people through acquired knowledge. Also through personal testimonies of seen results. My Objective is this, to study and apply natural approaches aiding one in the pursuit of achieving health/wellness via encouraging the body to rebalance/heal itself. I personally use supplements to feed the lacking nutrients which contribute to thyroid subfunction. I also use a nutritional teaching assisting clients in riding toxins out of the body. Email for further contributions to your health.
- —Guest Garden of Eden Nutritionalist
Thyroid and autoimmune disease
- I found out at 21 after having surgery, that I was born with half a thyroid. I still have my thymus gland. I am 54 now and in the last year and a half have been having problems with psoriasis like skin (horrible), although I was tested negative for that. My doctor now says I have an autoimmune disorder or disease. I'm beginning to wonder if my thyroid is causing an autoimmune problem I was never able to conceive. I have difficulty losing weight. I have carpal tunnel, fibromyalgia, asthma, secondary Raynaud's Syndrome with systemic ulcers on my fingers and toes. My hair is thinning with the medicine I'm on (Methotrexate for the skin condition). I am tired all the time and I hurt. I've always been a hard worker but now I find getting up a chore. I'm on disability now without the insurance and going to a specialist is out of the question. I'm desperate to find help.
- —Guest Elaine
Time of Meds
- My Armour is split in two doses. Any suggestions on best way to do this considering no food 2 hours before and 1 hour after? Have been setting alarm to wake up at midnight and then again at 8:30 a.m. There has to be a better way.
- —Backgammon48
Going crazy! Not regulated for a year!
- I've been on various mcg's of Levoxly since last May and still have not gotten regulated. I am considering another endo. It doesn't make sense that she can't get this right. Please, someone let me know if that sounds wrong, and its the doctor. I get the blood test and it's still not normal and now my hair is falling out AGAIN like from day one over a year ago.... I can't get another Dr fast enough, & I just say after I leave each time "is this Dr good?" or does this happen for this long????.... any input please... thanks
- —beachkat526
what to do
- Hi. I am 21 years old and had hypothyroid 8 years before.I am taking eltroxin 150 mcg every day.I gained weight a lot.I want a solution for weight loss and I want a cure for my thyroid problem.I am not facing any big problems only problem is that i am so tired for little work and I can't bear a little cold as well as hot.Some times I am having muscle pains all over the body and it hurts me a lot. After affecting with this thyroid treatment,only I gained a lot of weight and I am unable to lose my weight.
- —Guest esha
New, but Old
- Hi, My name is Donna and I feel new here even though a few years ago I was very active on this site. Everything is new here and I'm trying to read everything so I do not repeat the obvious. I was diagnosed with a hot nodule ten years ago, had RAI that killed the rest of my thyroid, but left the nodule which gives me some hormone. I went through a thyroid crisis twice (felt like dying) and afterward became unable to tolerate even small doses of T4 or T3. My TSH runs over 175 and has for many years. If I start to try to take T4 or T3 my Free T3 shoots up and I get all the severe symptoms of hyperthyroidism. A lot of people don't believe me, but with a TSH of under 1 and Free T3 will read way over range . I am very anemic and 50 pounds overweight. I gained 75 pounds after my RAI ten years ago, lost 25 pounds, but with counting 1500 calories a day for years, I cannot lose the rest. I have knee problems, so exercise is difficult. I am done with complaining. Thank you for listening.
- —Donnacaleen1
Help Understanding My Lab Results
- I was diagnosed with hypothyroidism 15 years ago. I was given a prescription and have been taking that same medicine up until 1 1/2 years ago. My doctor ran some blood work and my TSH was 11.4 so I was referred to a specialist. That doctor never shared any test results with me. Upon returning to my family doctor, I again had my thyroid tested. I was shocked, as was my doctor, to learn that my TSH was 138. How bad is this? Is it really that big of a deal? I feel really bad all the time, but I have been overcoming other serious health conditions including pancreantitis and liver problems. My doctor is now talking about removing my thyroid. Is this really necessary? What can I do to help get this under control? Any advice would be appreciated. I've been relating all my bad health to my other health issues and I didn't even think about my thyroid, so I'm basically starting from page 1 on my researching. So here I start.
- —Guest Trisha
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