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Readers Respond: What Stories Do You Think Were Most Important to Thyroid Patients?

Responses: 24

By , About.com Guide

Updated December 29, 2009

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About.com Thyroid Guide and thyroid patient advocate/writer Mary Shomon put together her list of the top ten stories for thyroid patients this decade. But thyroid patients in the U.S. and around the world have their own thoughts about what developments, stories and happenings have been most important during the decade of 2000 to 2009. What stories from the past decade do you think are most important, or momentous, or relevant to thyroid patients? Share your opinions, comments and thoughts now. Share Your Opinions

Thyroid

I believe that Armour keeps changing hands, according to my doctor. It never comes from the same manufacturer, so maybe the synthetic makers are buying armour and making it differently than original that worked for so many? This world is a mess when everyone is scrapping for money at the cost and health of others. My proposal is that if any person, including government employees, elected officials, physicians - no matter what your title - are taking part in any form of damage to humans, whether inappropriate diagnostics, wrongful treatment, inappropriate treatment, need to be treated as criminals. If they aren't good enough to make a diagnosis - practice or not - then they should not be a practicing doctor. If medicine is withheld, then whomever is preventing treatment, as Lyme Disease is currently, then they are prosecuted for attempted murder as the rest of us would have been. Maybe we would have less medical crisis (so they call it).
—Guest Tracy

Born Without

I was born without a thyroid gland. I have been on Synthroid and Levothyroxine my entire 21 years of life. I suffer from depression, have pain all the time and experience a ton of health issues no one knows about, but I don't have health insurance or money (being a full time college student) to go in and get my levels tested anymore. I'm worried, reading some of these articles, that my body will fail me.
—Guest nicole

Local Specialists in Australia

I'm looking for a doctor in Australia who specializes in this field, using natural hormones, preferably Queensland. thanks, peter
—Guest peter

Natural Thyroid

I cannot take T4 of any kind. I was on it for at least 4yrs. and very sick. I had heartburn,felt like a truck on my chest and hypo symtoms no matter what dose. I finally got back on natural Armour from Canada and feel like a real person again. The new refomulated Armour is not the same!!! I wonder if the drug compies have something to do with it. There is something wrong and lets find out what is -so we can live better lives.
—Guest Diane

Levothroxine/ Bone Loss

I am wondering if anyone taking Levo has expirienced bone loss in their Jaw. I have and I came across a few articles of others who have as well. When I went back to read them they were gone off the internet. I am concerned about this as I have already lost one tooth. I did come across a class action Law Suit but it is not in the U.S. Anyone with this problem please share with us.
—Guest MOMOFMANY11

Have Bad Chest Pain

Hi I have been on levothyroxine for a couple of years now. I have sleep problems and also chest pains which I never knew where bieng caused by the medicine I am taking! I told my doctor about the chest pain he has done nothing. I have been into A & E twice with the pain thinking i was having a heart attack. My doctor has increased my dosage to 150 from 125 having read your articles I think I should stop taking levothyroxine and see my doctor again. I would like to know your thoughts. steve from the UK
—Guest steve

Synthyroid versus Natural

I am still confused over all the news articles posted about natural desiccated thyroid products working so much better than Synthroid. It seems to be the biggest story of importance to many and, if it is so important to get the natural one, then why is it that so many thyroid cancer patients, who have had their thyroids removed or irradiated, do not have the bad symptoms that others have? Why do two people I know with thyroid cancer who take Synthroid continue to live a happy productive lives? Why do others like me, suffer greatly with autoimmune thyroiditis? Does it all boil down to Synthroid versus natural, or are their other problems and solutions that need to be addressed in diagnosing and developing treatments for individuals? People are suffering out there and as of yet, there is no one approach that seems to work for all. Perhaps it should be handled more symptomatically rather than diagnostically. Why do some patients on Synthroid do so well and others do not?
—Guest Dianne

Increasing Demand for Dessicated Thyroid

Increasing demand for this alternative to synthetics shows more patient awareness of thyroid complexity. The more we all know, the more control we have over our various thyroid conditions.
—YvonneArdith

Oprah Winfrey

I was at first angry with Oprah for not sharing the devastating affect that thyroid disease can have on a body. Then I was angry because I felt she lied about going into what she called "remission."
—jinthral

Great article, Mary.

As a person who has to keep up with my own field of work, I know how much work it took you to get there. Thanks for being there. Looking forward to the next ten years of progress. Let the community make some patient studies of long term effectiveness desiccated thyroid v. synthetic be on the 2020 list!
—quilteresq

Natural Thyroid Shortage

Natural thyroid shortage is a big story, but the real story is the reason for the shortage. So far there has been no solid explanation for the shortage. If this an example of our future health care and our inclusion in making decisions, we're in trouble. Synthetics are not the answer for everyone -- drugs, fabrics or food.
—Guest Diane

Trying to Find Armour!

Of course, I have MEDCO, which has no Armour. Trying to find it locally is a challenge month to month. I have been getting a new prescription each month because I'm using different pharmacies each month. UGH! When will it every stop?
—Guest Margaret

Armour shortage & feedback about symptom

To be aware of the Armour shortage was helpful. Thankfully the generic works for me because Armour is still not available here and my general practioner likes synthetic. Also other people's thyroid symptoms were a great help to figure out some of my own.
—Guest Sandy

Holtorf Medical Clinic

thank you for the interview with Dr. Holtorf. I live in NC and am now a patient of Dr. Moses Laufer at the Holtorf clinic. I truly believe that message was meant for me to read. Two weeks later, I was in Torrance, Calif. with my new doctor. I have had a total thyroidectomy and was getting sicker and sicker, all the while, being told my lab tests were right on the money. I feel blessed and am looking forward to better health this coming year.
—Guest Brenda Oehlson

Natural Thyroid "shortage"

I fought to get on Armour, fought to get to a good TSH level for me, and now I can't get Armour. It's ridiculous what we have to go through to feel normal. I'm being put on levothyroxine because of the lack of availability of Armour. I'm pretty bummed about the whole situation. I feel that the pharmaceuticals are behind this because as more people turn to natural thyroid, less people use their expensive products. If, when I switch next week to the synthetic medication, I feel as if I've been hit by a Mack truck (again), I'll not hesitate to ask my endocrinologist for a script of synthetic T3 to see if it helps.
—Guest Jackie Fershin

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