Edward R. Arnold
- In recent months, I've decided TSH is not very useful, especially the lower end of the range. Since going on T3-only medicine because I couldn't convert T4 properly, I've heard repeatedly from other patients on T3-only that endocrinologists tell them horrible stories about how T3 will hurt them when their TSH is suppressed (typically less than 0.1). When a patient feels well, and has no symptoms of thyrotoxicity such as fast heart, heart arrhythmia, high blood pressure, etc., the fact that endocrinologists tell ridiculous stories to their patients is an indication to me that this is just one more example of Tyranny of the TSH.
Very Proactive Doctor
- My doctor has been using the .3-3.0 scale since 2001 when I first started seeing her. My lab uses the older scale of .5-5.0. However, my doctor is more concerned with how I feel than the number on the test. If I say that I don't feel well at 2.0, she increases my medicine to the point where I feel "normal." I feel blessed to have a doctor that not only follows the new laboratory standards, she puts a lot of weight into how I feel on a daily basis and gives me the power to direct my treatment as long as it isn't harmful to me.
- —Guest Guest Cindy
- The in-plan lab uses the old TSH reference range. Recently, my husband's TSH was .34 and his free t3 and t4 were slightly elevated. Now the endocrinologist wants blood work done in 3 months, and he wants my husband to lower his dose of Armour. His lipid profile as well as his triglyceride levels have never looked so good.
- —Guest ginnyfrompv
We're All Different
- Though our hospital and doctor have adopted the new TSH scale, with me the old scale is still the best, because just that little increase in medication sends me into heart palpitations!
Figuring it All Out
- I have been extremely tired since I was 12 years old. It worried my mom, so she took me to the doctor and they ran some tests. They thought it was serious. 15 years later my mom was diagnosed with Hashimoto's and then thyroid cancer. She told me to keep an eye out and get checked. Unfortunately, I relied on the doctors. Every year tests came back normal. Then 5 years later I stumbled onto this site and a couple others. I was struggling with hypoglycemia and extreme fatigue. My other symptoms I didn't recognize as part of the problem. So I found out what it might be and what tests to run. I had to fight with my doctor to have them give me the antibody test. I was told my insurance wouldn't cover it. Then I was told no one would treat it even is that is what it was. I was told to come in and discuss the symptoms. I told them no, I would do it after I got my test results. Sure enough thyroid antibodies were there. However my TSH was 2.38 so she would not treat me. Then I changed doctors!
- —Guest Allisyn
New to Hypothyroidism!
- I am 23 and have recently been diagnosed with hypothyroidism. My TSH level in my first blood report was above 500. Yes, you read it right! The doctor was stunned at this and ordered another test and there my TSH was 106. I have been on medication for 2 weeks now. I suffered from body swelling, lethargy, and cold feet, but since i have always been very active I am not overweight. The swelling has reduced but other symptoms keep coming and going in phases.
.5 to 6.0 Range
- The lab my doctor uses does use the old range, but my doctor treats me according to the new range. I told him I feel better when my TSH level is below 3.0 so he said we would try to keep it below that. If your doctor works with you to keep your TSH level down, does it matter if the lab uses the old range?
TSH in Children
- My son is 13 and has a TSH of 4.1 yet our pediatrician says it's normal. He weighs 185 and is very active, but the doctor will not help me or recognize a possible thyroid condition.
- —Guest Sue
Tired of the fight
- After 10 years of fighting with the docs, I switched to an "alternative" doc in town. Wouldn't you know it, my TSH has ended up at 13! The bad part is, this guy wants you to buy the natural Armour and straight T3 from him - and titrate it yourself! I'm sooo tired of trying to get it right, and so tired of feeling like crap. They wouldn't treat it at 3, but had no problem with ANTIthyroid treatment at .07, when I got really fat and puffy, their response was "you're obese, go for a walk." When I was under 100 lbs, it was "eat, you're too skinny". Now, at 13, it's "triple your meds." Hopefully, I'll get skinny again before I stroke out. I think they should toss out the test and go "old school" and treat the SYMPTOMS!
- —Guest BeenThere
- My doctor and lab consider anything between .27-4.2 uIU/mL to be normal.
- —Guest guest1
- Forget finding a pediatric endocrinologist. After numerous pleadings with my 17 year old daughter's general practitioner, we finally found an endocrinologist to treat her. She was put on antidepressants, had a TSH of 11, and low vitamin D. My mom was hypothyroid and I've been hypo for 17 years (now Hashimoto's). She was sleeping 20 hours a day, freezing cold in the extremeties, was gaining weight, and had NO energy. Fire the doctors who think the old range is normal. Keep searching for one that will actually listen to how you feel and take into account symptoms and family history. Too many just go by the old standard.
- —Guest Nancie
Not Being Treated by an Endocrinologist
- I tested positive for both Graves and Hashimoto's antibodies, My TSH ranges from 3.0 - 6.4. My latest test shows my adrenal gland is not functioning properly and the numbers were very high. I have thyroid opthamology in the form of achy/painful eyes everyday and my endocrinologist is NOT TREATING ME. She said my thyroid is still functioning. I believe she is using the old TSH range, but even then, my TSH exceeds that at times. She said she didn't know what to say about my symptoms although they not include heart aches, kidney pain, muscle and scalp pain. By the way, I was the healtiest at 26 years old: 5'2" 110 pound female before this thyroid switch flipped on overnight nearly a year ago. Nice, huh? I am searching for my next endocrinologist.
- Not diagnosed yet. My doctor keeps telling me the blood work us normal. I have every symptom of thyroid. I will be 61 soon and I don't care if I sleep my life away I just want my hair back. I'm saving what comes out of my brush and on the counter and putting it in a Ziploc bag to take to my next visit. I used to clean the shower drain every 6 months or so. But is hard to get down on the knees so been some over a year. The hair was big as the drain opening and about a foot long & hard to get out. I told the doctor I was going to bring it in but I thought it was too gross. But will clean it again when time for my appt. My dotor is trying to shove cholesterol meds on me but I refuse to take them. Tried generic Mevacor and I got severe muscle problems. I don't like drugs or doctors but want this fixed before I go bald and am so fat and tired I can't roll out of bed. Thanks for letting me speak my thoughts.
- —Guest J
- My TSH level is .03. I was taking 250 mcg of levothyroxine a day.My doctor said I should have known the dosage was wrong.I am so mad at him. I have lost seven months of my life. He is so arrogant. I will be seeing another doctor.
- —Guest r.pond
Mayo Clinic Range
- I concur with the previous statements about the Mayo Clinic. I was diagnosed with hypothyroid disease in 2007 after battling several doctors. The first one read my ranges and noted that my TSH was a little high at 7.0, but since I wasn't overweight, he wasn't worried about it. With much negotiation and seeing an actual endocrinologist, I was prescribed levothyroxine. Then just yesterday, I went in for an exam and my TSH was at 5.0, which is up from what it had gotten down to, and the doctor said I was just fine. So they definitely still use the old scale. I would have expected an increase in dosage on my medication, especially since I have been feeling fatigued, etc.
- —Guest Tina