Joy
- I have suffered from hypothyroidism for almost ten years and it has been very difficult to manage with diet and medications. Most of my doctors have not known how to treat this condition. I am 30 lbs over weight and it has been impossible to drop the weight. I really wish there was more training for nurses and doctors in school for this condition.
- —Guest Joy Strait
Support
- For a long time I didn`t know what was wrong with me until I finally found out that by thyroid wasn`t working. When I told my friends and workmates I found out that many also have a thyroid problem and that helped me. It is very important that you can talk to someone about your symtoms. My doctor reacted a bit helplessly, and that´s why I used the information on the Internet to learn more about it. That was also very helpful. it`s really unbelievable what problems the thyroid can cause. But since I´ve been taking hormones I feel a lot better.
- —Guest Bärbel Sullivan-Stütz
What we tell our family
- I hate this condition! I am about to have a goiter removed. I had the right out in 2000. I hear that people just end up fat blobs and the medication is useless. I'm sick of feeling cold, down, dry hair, this blinking brain fog -- feeling "dumb" I call it. I wish it would go away. The consultant I have is a rude pig. When he realised I was not paying him private, I became the scum patient, and he speaks to me like I am something he has thrown up. I took my husband along to meet the pig and he treats my husband like he was a child in a class. God help me this rude pig will be doing my surgery. He said my thyroid hormone is ok. Well come and live in my pathetic tired world...People do not understand...they give you that "shut up get on with it" look. I would just like a normal energy day.
- —Guest Sharon
the figures are fine.
- I so agree with what's in the open letter. After 8 years of Hashimoto's and feeling worse and getting more handicapped each year, I think the majority of endocrinologists in France don't get it at all. Their answer is always "yes, but the figures are fine". So if I'm less than TSH 5 it's good, if it's higher then we'll up the dose. If it's in decimals like 0.01 then we'll cut the dose. In an average year my dose changes 4 or 5 times, my hair is getting thinner and thinner, my weight has gone up and up from 154 pounds to 198 pounds despite Weight Watchers (who told me I should stop cheating...) and one general practitioner who told me there was nothing to do about the weight gain but we'd monitor regularly for the inevitable onset of diabetes and the other doctor who told me that once the figures were ok, then weight loss would follow and if it didn't I was secretly overeating. It's hell. And it's really time that things changed. Thank you for listening.
- —Guest Beverley
Unsympathetic Doctor
- My doctor told me the reason that I ached and felt cold was my age and being postmenopausal, because when you get older you feel the cold more. I am 62 and still working. All these comments because I asked to see a specialist (at my expense.) Hence, time to change doctor.
- —Guest sue
My Mother in Law
- My mother in law SO does not get it. She's always hinting around about my gaining weight, and telling me about this or that diet. She has told my sister in law that she thinks I'm lazy and that I've gained weight because I eat too much -- even though she's seen that I follow Weight Watchers and go walking pretty much every day. She has a slight thyroid problem, and didn't gain any weight, so she thinks everyone else must have the same experience as she has, and so she is so totally NOT helpful.
- —Mina J.
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