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Pam, Finally Diagnosed, and Now Ready to Help Others!

First, Let me say thank you for such an extremely well written and informative book about Hypothyroid Disease. Since recently being diagnosed earlier this month, my goal has been to read and learn as much as I possibly can before my next Dr. appointment.

I would especially like to share my story with you. I just reached what I hope is the climax of my story with the diagnosis of Hypothyroid Disease. Please bear with me if this gets to be a little long.

On Wed. December 6, 2000, at the urging of a friend, I decided to go to the Urgent Care because I was not feeling well and my glands (especially in my neck), were extremely swollen and physically hurt. I was also extremely tired, sleeping all day, having difficulties physically moving my body and felt like "death warmed over." At the time, I believed and felt certain that I had Mono.

The Urgent Care Doctor was wonderful and very interested in hearing about my symptoms. She wanted to know how I felt, then decided to go ahead with the blood test for Mono. After waiting for almost an hour, the Dr. returned with the negative Mono results and discharged me from her care. However, unbeknownst to me, she decided to do additional blood work and ordered a TSH test. The next day while at the office, I received an urgent phone call from the Dr. requesting that I call her regarding some disturbing test results. Well, of course, my first thought was that they had misread the tests, that I had Mono and had infected the whole office! Thankfully, that was not the case! Instead, she had called to inform me that my TSH levels were extremely high and that I needed to see my Internal Medicine Dr. immediately.

Now, before I go further, I have to state that I HATE going to the Dr. I've always had the same response "It's in your head" or "we can't find anything wrong with you." So I had pretty much decided to forget Drs. and just go on my merry way and die when the Lord decided to call me to heaven! I would only go to the Gynecologist once a year and to the urgent care when I was not feeling well... Oh, I'm also upset w/ my Gynecologist for not seeing symptoms that I consider obvious and should have put up a signal that more tests were required.

Lets see, where was I... Oh, yes! The internal medicine doctor. Well, I made an appointment w/ an Internist for the following Monday, Dec. 11, 2000. I was very impressed with the Doctor. He is fairly young, probably early 30's and close to my age. He took the time to listen to what I had to say, explain in layman terms what was happening to my body (I've since realized that he neglected to say anything about T3) and do an exam. In the meantime, he did a reflex test and stated that "I was a perfect clinical example of a Hypothyroid patient." I had extremely slow reflexes and he could see physical symptoms of Hypothyroidism. He then proceeded to give me a sample of Levoxyl 112 mcg to get me through to my next appointment in 1 months time. He admitted that he was starting me on low dosage and that we would continue to monitor my progress until the right combination of medicine was found. During the exam, we had a free flowing and open conversation. Only time will tell regarding what type of Doctor he is and if he is interested in my opinion, thoughts and desire for the proper treatment that works for me.

In the meantime, I have since found out that from age 11 through high school, my Mother would have me tested annually for thyroid problems. Each time the results were returned reflecting that I was High Normal. I look back to when I was younger and realize now that my chronic dry skin problems, unexplained rashes, muscle fatigue along with the need for 12+ hours of sleep and unexplained weight gain while actively exercising clearly pointed to an untreated thyroid problem.

I feel angry about the time that I've lost because of an abnormal thyroid. The depression and poor concentration throughout college! All of that could have been avoided if only I had known and my mother had been better educated to not believe everything the doctors told her. If it had not been for the urgent care Dr. I would have continued on in ignorant bliss.

I can say this much, I'm definitely going to be very involved in being an advocate for my own health as well as making other people aware of the problem. I really want to do more and get the word out that Hypothyroid Disease is a serious problem that goes untreated. More must be done!

Pam

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