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Mary Shomon

The Wild West of Thyroid Drugs: Forest's Levothroid Discontinued, Levoxyl Recall Continues, Synthroid and Tirosint Prices Rise

By August 6, 2013

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The thyroid drug situation is chaotic right now in the U.S., with discontinuations, backorders, and price changes happening at a rapid pace.

According to information from the American Society of Health-System Pharmacists, the Levothroid brand of levothyroxine - made by Forest Pharmaceuticals - is not backordered; it is is actually being discontinued.

Originally, Levothroid was supposedly recalled, with a return to the market scheduled for 2014. But now, all doses and bottle sizes of Levothroid are listed as discontinued as of July 2013, due to the inability of Forest's contract manufacturer to supply the product.

According to a financial website, iStockAnalyst, the FDA had regulatory and quality control concerns regarding the manufacturer, which then stopped manufacturing the levothyroxine drug.

Levothroid's discontinuance comes on the heels of a long-term recall of another brand name levothyroxine, Levoxyl, made by King Pharmaceuticals, a subsidiary of pharmeceutical giant Pfizer.

According to the Levoxyl website, the drug was recalled after the company received complaints from pharmacists and patients about an odor coming from the Levoxyl bottles. Supposedly, the odor was caused by some sort of oxygen-absorbing canister that helped enhance product stability. At the same time, the company recalled all Levoxyl products, and has indicated that it will be a full year before it can come back on the market...a somewhat unusual move that seems excessive - and perhaps a bit suspicious - under the circumstances.

For patients taking levothyroxine this leaves only brand names Synthroid and Tirosint, and a variety of generics.

Perhaps it should come as no surprise that patients are now reporting that prices for both Synthroid and Tirosint have rapidly increased this summer. Some patients with insurance coverage are also complaining that co-pays for Tirosint have just increased, in some cases by double, in just the past month. Until recently, prices for Tirosint were similar to Synthroid.

According to Drug Price Search, currently, a 30-day supply of Tirosint 100 mcg now costs approximately $75. Synthroid costs approximately $34, and generic levothyroxine costs approximately $12.

What do you think is really going on? Please share in the comments...

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Photo: istockphoto

August 6, 2013 at 8:32 pm
(1) Amy says:

Yes, just picked up my Rx for Synthroid and the price went up significantly. Actually caught me off-guard!

August 6, 2013 at 8:36 pm
(2) Ray says:

I take Levothyroxine and this is disturbing news. No one, anywhere else told me this was going to or was happening and I just saw my Thyroid Dr. 2 days ago. Not surprised at all that the other drug prices are going up. As usual for corporate America, it’s profits first, patients lives and wallets last.

August 6, 2013 at 8:56 pm
(3) Stacy P. says:

Yesterday I picked up some generic Liothyronine and the price was a lot more than it was 90 days ago.

August 6, 2013 at 8:58 pm
(4) YoKasta Martinez says:

I can personally attest to how expensive Tirosint is – and they have a coupon that will give you your first month’s supply free – but the catch is that if you take an odd dosage, like I do (175 mcg), and have to take multiple pills to get the same prescribed dosage (in my case, one 75 mcg and one 100 mcg pill), you only get the discount on one box, not both. So that means every month, I pay double what most other patients pay.

I can’t take generic levothyroxine OR Synthroid, so my options are limited. I wish they would put Levoxyl back on the market!!!

August 6, 2013 at 9:00 pm
(5) Lynn J says:

got a 30 day refill today at same price it’s been for years. $4.00 generic.

August 6, 2013 at 9:07 pm
(6) Lisa says:

This is another reason I get all my meds from Mexico.

August 6, 2013 at 9:08 pm
(7) Victoria says:

I used to pay $10 for three months of generic levothyroxine. A few days ago when I bought it, it was $11 for 30 days. :(

August 6, 2013 at 9:13 pm
(8) 702Annie says:

Yokasta Martinez: I’m in the same boat. I have to take two Tirosint (150 mcg + 13 mcg). Nothing else is worked for me, and even Tirosint is only making me feel so so. Because of the two pills, I now have to pay almost $150 per 28 day supply!! Doubling the price has really had an effect on me, like so many other. But they know we have to take these pills. I’d be interested to find out where you found the coupon mentioned.

August 6, 2013 at 9:15 pm
(9) Roberta says:

I was forced to switch from Levoxyl to a generic 3 months ago and have been feeling out of whack for the first time in years. I’ve been hoping it was just an adjustment period but it hasn’t levelled off yet. Why do the big drug manufacturers mess around with our health the way they do? And why is it OK? :(

August 6, 2013 at 9:20 pm
(10) Slekker says:

I ended up on ashp.org this morning to verify my pharmacists report that ritalin supplies were down because of a nationwide shortage. After going through the long list prescription drugs in short supply, I was curious about the list of discontinued meds and was shocked to see Levo on it, especially after the nightmare situation when dessicated thyroid supplies went short in 2010.

After immediately ordering extra synthroid and armour from my hmo, I checked the rest of the lists or anything other family members take. What I noticed was many of the discontinuations and shortages were attributed to substandard ingredients from Chinese suppliers. Some of the drugs cited contaminations and others cited a failure to comply with our FDA quality requirements. I joked to my dad that maybe China declared a secret war on us, but he insisted we’re just lucky our government is actually checking quality control. Maybe it’s market manipulation, but when you look at the types of drugs that have been discontinued or shorted from increased production costs to comply with basic guidelines, it is scary. Some of the drugs have no comparable generic brands

August 6, 2013 at 9:27 pm
(11) Theresa labarbera says:

The reason the prices are going up is because the pharmaceutical companies have to pay the Dr’s more money to lecture and push their product.

August 6, 2013 at 9:45 pm
(12) Terry says:

FYI on Tirosint is 28 days !!!!! and the highest dose 150 and you then have to take 2 separate doses to reach the higher doses…so my co pay is $35 a box costing $70 for my 175mg dose for 28 days!!!! Way too expensive!

August 6, 2013 at 10:27 pm
(13) Caroline says:

I just recently petitioned my insurance company to cover my Tirosint . . . since my blood work is finally stable on it, my free T3 levels are better on this (straight T4) than they’ve been on any T4/T3 combination, and my docs agree that this is the best med for me. I have GI issues, and this med seems to work so much better for me than anything else. There is no generic Tirosint, so I fought for them to cover it for me at the generic price. I also fought with them to cover genetic testing on my second biopsy looking for thyroid cancer (which I was diagnosed with last summer). I encourage everyone to push/fight–eventually one day, perhaps others won’t have to!

August 6, 2013 at 10:27 pm
(14) sandy says:

I switched to bio-identical hormone replacement and have never felt better! There are four possibilities in the alternative arena and I take Armour Thyroid, for which there are virtually no concerns about breast cancer. My husband is a doctor and has no concern, nor do I. It is cheap, although I would use it even if it were not. Find a woman practitioner who offers alternative interventions. I am so happy that I finally did after years.

August 6, 2013 at 10:30 pm
(15) Marcie says:

I’m extra happy right now I’m one of the lucky ones who can take successfully take generics (Levothyroxine, Liothyronine).

August 6, 2013 at 10:47 pm
(16) Slekker says:

For some reason, the lnk to the pharmacists page about the levo discontinuation doesn’t come up the right way.

Go to: http://www.ashp.org/DrugShortages/NotAvailable
And scroll down to: Levothyroxine (Levothroid) Oral Tablets

August 6, 2013 at 10:54 pm
(17) Sue says:

Was on Levoxyl for years doing very well cannot take anything else due to lactose issues. Tried everything else but became sick from them finally on tirosint but still do not feel good. Called Pfizer and was told they could resolve the problem in a few months but t could take the FDA another 6 months or more to resolve the issue. I was told to bombard the FDA with phone calls to get it back on the market again sooner. Calling Pfizer can’t hurt either. Maybe they should pay the difference between my $7.00 for Levoxyl and the $40. I spend on tirosint to feel like crap!

August 6, 2013 at 10:59 pm
(18) Kerry Finn says:

I took Levothroid for a long time. When I couldn’t get it, I used Synthroid but it always rankled my that I had to pay so much more for the same thing. Now I take Unithroid. I REFUSE to pay those prices for Synthroid. What a rip-off! (I also take Nature-Throid.)

August 7, 2013 at 8:47 am
(19) Penelope Conlan says:

I really don’t know what’s going on but wondered if there is only going to be one supplier in the future. Or, is this setting up a competitive situation once Levoxyl returns to the market, driving prices higher. I have to admit the price has always been very reasonable and I cannot believe the price of raw material suddenly went up so increases must be due taking advantage of the shortage. It’s so political, it’s hard to know what’s going on.

You didn’t mention natural thyroid pills. I was on Levoxyl and made the switch to Nature Throid through a doctor I found on their website. He did not know what he was doing as blood tests revealed through my primary physician. I now must wait until August 30 to get in and see a new endocrinologist and have filed a complaint with the state. My primary found my heart rate was in the 90′s, with palpitations, etc. and my T3 was double the upper range, with TSH below normal range.

August 7, 2013 at 8:52 am
(20) Marian Jahn says:

Market manipulation?

August 7, 2013 at 9:23 am
(21) Bettie says:

My synthroid has stayed the same price. Hasn’t gone up yet. I take it because my dr. said the generics come from different labs and you never know if the dosage is the same. Doing well on synthroid and cytomel combination. I look for all drugs and dr. visits to go up with our new OBama care plan.

August 7, 2013 at 9:40 am
(22) Elizabeth S, says:

To YoCasta: Maybe you can get your dosage dispensed in 25 mcg pills, 7 per day. This would count as one prescription.

August 7, 2013 at 10:15 am
(23) Kris says:

Had no idea it was recalled til I got my refill and it wasn’t levoxyl. I asked why they gave me the wrong drug and the pharmacist told me about the recall. Would have been nice to have heard about this when it was recalled instead of taking it for a couple months before I ever found out. Hope it isn’t anything serious as I took 2 months worth of the pills after the recall started!

August 7, 2013 at 11:35 am
(24) Amy says:

I took Levoxyl along with my Armour and was doing grand. I can’t take Synthroid; it makes me so sick (fillers?) I wonder how many people who can’t take Synthroid are OK taking Tirosint? I take the lowest dose along with my 90 mcg Armour. Any feedback would be appreciated :)

August 7, 2013 at 11:49 am
(25) Deanna says:

It is the greedy and crooked pharmaceutical industry at work trying to protect their bottom line. As per normal, they are showing no regard for their customers which has left many of us in a terrible place scrambling to find medications that work for us. I refuse to believe the explanation for the voluntary recall of Levoxyl. If indeed there was a problem that led to an “uncharacteristic odor” the only safe and logical measure would be a total recall of the product. This leads to my conclusion that either he company and the FDA have total disregard for patient safety, which is a very real scenario, or the drug company discontinued production because they weren’t making money, yet another and even more plausible explanation.

August 7, 2013 at 11:49 am
(26) Jean says:

I hope this does not affect (price wise or availability wise) those of us who take natural. I switched from Armour to naturethroid during the shortage, then when it hit the naturethroid I went compound because I vowed never to go back to Synthroid or the likes ever again. Finally settled back on naturethroid and feeling decent. Do not want to have trouble again.

August 7, 2013 at 12:11 pm
(27) cyndiann says:

I take a generic natural thyroid medicine and I noticed the irony in that doctors don’t want to prescribe it, saying that it isn’t made well, that doses would vary from one pill to the next which isn’t true and now the drug they push turns out to be at least as bad.

I have noticed that my drug is getting harder to find as more and more people switch to it. This news will probably make it worse. The synthetic drug makes me sick.

August 7, 2013 at 3:02 pm
(28) Martha says:

This is a scramble that was predicted by many more than a decade ago for a number of drugs, it goes beyond thyroid meds.

Thyroid meds are incredibly cheap compared to the cost of manufacture. They have tiny profit margins. The plants are aging. The FDA regulations for manufacturing drugs are getting more and more strict (as well as regulations for supply chain control), so it is more and more expensive simply to follow FDA guidelines in manufacturing and distribution. No business will support products that don’t make a profit, and when plants wear out the business has to make a serious decision. We don’t want a monopoly on thyroid meds, and we want our drugs to be safe and effective, so who pays?

Many don’t wish a standard business model to apply to our health care because our health and lives are at stake. Yet, look at the profit margins of the software company that we use, the cable company, the gas companies, the phone company and many others (much higher than those of pharmaceutical companies).

Rather than placing blame, it is time to come up with a new paradigm.

August 7, 2013 at 3:54 pm
(29) kathy says:

I’m in Canada but a US Doctor prescribed Armour Thyroid for me when I was on holday. It is supposedly a natural product and 30 pills are only 17.00 and most of that is dispensing fee.

August 7, 2013 at 4:04 pm
(30) Bunny says:

Love it! Last month, I badgered my doctor into letting me try the Armour. Had my test done yesterday and it turns out the Armour did the same job as the Synthroid I’ve been on for 35 years. I’m very pleased and he was very surprised.

August 7, 2013 at 5:24 pm
(31) FedUp says:

I take Tirosint & imagine my surprise when the copay went from $30/mo to $68/mo in one month! It’s a Tier III non-form med on my insurance. I called & got nowhere even though I had hives & itching on the generic & the Synthroid made me nauseous and sick all day. Synthroid is half the cost of Tirosint on my insurance & they can’t help me. So frustrated! Big business (and stakeholder quarterly profits) are trumping patient health. What’s new in healthcare? So disappointing.

August 7, 2013 at 7:36 pm
(32) marilyn v. says:

Canada here,I take synthroid and am amazed at the costs listed, I get 3 months at a time to save on the dispensing fee and only pay $i8.40.
(90 pills $11.40 & $7.00 dis.fee)

August 7, 2013 at 7:36 pm
(33) Toni says:

I had to switch to a compounded pharmacist and so far so good. They make the exact dose you need without the fillers. Some people are allergic to the fillers. I’m also going to be doing a hormone saliva test through them to get my hormones regulated. I highly recommend looking into compounded drugs as an alternative. The name of the pharmacy in Minnesota is Moudry.

August 7, 2013 at 7:40 pm
(34) Toni says:

Has anyone ever been told that you can’t take Amour Thyroid if you have Hashimoto’s because it causes inflammation?

August 7, 2013 at 8:45 pm
(35) Laurie says:

Almost everything related to health care is going up due to the affordable health care act. My insurance premiums are expected to increase 88%. Hospitals are closing and hospital workers are being laid off due to the 2% medicare cut that is part of it. Hospitals are not allowed to Bill medicare or the patient. They just have to take a 2% loss so they are cutting and jacking up prices to stay in business.

August 7, 2013 at 9:36 pm
(36) PCLow says:

I am really upset too. CVS CAREMARK — boy they are really bad (santa cruz, california). With my new synthroid I had to pay twice as much $33.48 for 30 days supply. Recalled levoxyl (had been on it since 2003 after my son was born) have been on synthroid since late April. I have hypothyroid. . Since being switched to synthroid — I have noticed that I have been losing more hair. What does that mean? Why would my hair be falling out more now than ever?? Ughh :/

August 7, 2013 at 10:41 pm
(37) glenna says:

Sorry, I don’t buy Pfizers excuse. They are shutting down plants to raise profits. Call the FDA and they say it is Pfizers call, the FDA didn’t make them shut down production.
I am using a compounded medication, but not really sure what to think about it. Some days are good, some are blah, some are horrible. However, it is better than Synthroid and the other generics. Had trouble with Tirosint, too!

August 8, 2013 at 1:21 am
(38) Carla says:

It is even more frightening for those of us with no thyroid, due to cancer or other disease. We have to have this drug to stay alive. So many of us become sick on other brands. They are messing with our very lives, as well as our health. I am soooo angry.

August 8, 2013 at 1:28 am
(39) Carla says:

Think of the higher prices as the equivalent of another new tax. The FDA is at the head of this. Big Pharma doesn’t care; they have lobbyists. Thanks, politicians.

August 9, 2013 at 6:00 am
(40) Linda says:

I think we should all be writing and calling Pfizer – better yet, a Twitter campaign and a Facebook campaign would really get their attention.

I think it is appalling how they have handled this. I find the reason very suspicious and I actually wonder if they are pulling it because the drug does not generate enough revenue.

I’m on my last month’s worth of Levoxyl, which I was perfectly happy with, and not looking forward to taking Synthroid as I know it is not the potentcy that is equivalent with my Levoxyl.

I also know it is not bio-equivalent.

August 9, 2013 at 3:46 pm
(41) Michelle says:

I had to refuse the synthroid at the pharmacy because I cannot afford to pay the extremely high cost of it and I also found out that my insurance has moved it to the highest tier.

August 11, 2013 at 5:00 pm
(42) trudy says:

And now Acella is no longer manufacturing? That is what I was told today at Walgreens. Seems armour is forty bucks now too. UGH. I have to add sugar to that to get it to work.

August 13, 2013 at 8:56 am
(43) Susan says:

I was on Levoxyl since my cancer surgeries, allergic to all others. My only option is Tirosint, which started at $30.00 and is now $50.00!! I can’t afford to pay this and the Insurance companies don’t care. We spend so much each month for coverage and nothing helps! I’m disgusted!! Levoxyl needs to be put back into production, I don’t understand why they can’t start making it again…..

August 13, 2013 at 9:17 am
(44) Lisa says:

Better still people.. Jump off the Western Medicine bandwagon and cure your thyroid disease naturally. I cured my Graves Disease by taking Iodine and getting rid of Fluoride, Chlorine and Bromine. Start with a Fluoride free toothpaste and only buy water that is fluoride free. People can think I’m an idiot for saying this but I did my research and it works.. I am now Graves Disease free and my thyroid is functioning properly no drugs required. I had Graves for 10-years and I have been in remission for 2-years. Don’t remove your thyroid because Western Doctors tell you to. Thyroid Disease can be cured! Big Pharma and Western Doctors just don’t want you to know that because then you’re a slave to Big Pharma for the rest of your life. Dr. Brownstein was my saviour.. I suggest people research his work on Google if they want to save their thyroid and save some money in the process. He has a few video’s on you tube also.

August 13, 2013 at 9:18 am
(45) Kari says:

Just like what happened with Armour a few years ago. Chances are they will bring back an “improved” formula that doesn’t work! I am still out of whack because the original Armour is all that has worked well for me and they don’t make it anymore! I feel your pain!

August 13, 2013 at 9:20 am
(46) Kay says:

My doctor says I have to use Synthroid. Why is the cost so high compared to generics? Also, why do insurance companies not want to cover Synthroid when it is prescribed by my doctor?

August 13, 2013 at 9:27 am
(47) Laura says:

This is sad, truly sad, but totally outrageous to think how high they are pricing our drugs. Drugs that we need to function. The drug companies have held us hostages for years now with all their ridiculous pricing . Now this, Two companies not manufacturing properly and then going under is by no means the open avenue for the makers of Synthroid and Tirosint to feel this is their opportunity to get richer off of those who are bound to these drugs for life. And our government just sits back and allows this to happen? Where’s the justice for all of us Americans who need these drugs. The drug companies need a huge overhaul, they have no compassion for any of us. Truly pathetic.

August 13, 2013 at 9:28 am
(48) Debbie says:

I used to take Unithroid, because it was the first one to get FDA approval (Synthroid wasn’t approved until 2 years later, due to “grandfathering”). Because it is a “branded generic”, my insurance company refused to pay for it, and put me on generic-generic levothyroxine. It took me 2 years to get used to it. I still don’t have the same level of vitality I had with the Unithroid, and am considering paying out of pocket just so I can be back on it again! I would suggest anyone who is on a med that isn’t working for them to try Unithroid. I think the binders and fillers they use don’t cause issues like Synthroid and Levoxyl, etc. At least they didn’t with me.

August 13, 2013 at 9:32 am
(49) Melissa says:

It’s pretty obvious that this whole mess is a strategic plan by Big Pharm to increase profits: get rid of stuff they don’t make money on, increase the prices of what’s left to make even more money and force people to use substandard, high-profit generics if they can’t afford the brands. I will be very surprised if we see Levoxyl again, but if we do, it will not be 1) as reliable and/or 2) as affordable.

As long as these decisions remain totally in the hands of shareholders and the bottom line, this is what we have to look forward to in all aspects of healthcare. There are some things that shouldn’t be left to sheer greed and capitalism.

August 13, 2013 at 10:28 am
(50) Pamala says:

The problem isn’t big pharma in the US – the problem is that the US companies have sought out foreign manufacturers for years, instead of making it themselves and now those foreign companies are having a hard time existing in their economies. A good example of that is Novartis – the makers of Benefiber. They actually get it from a company in France who has gone out of business. Viola (no pun intended) no Benefiber.
Sad for people forced to take the generic. For me for some reason the generic 112 mcg. has some weird side effects, and does not seem to absorb into my system very well. I take the brand name and I’m fine – no huge dark spots all over me, and no rash. Fortunately I have good insurance and it’s the same copay no matter what the cost of the drug. I feel very bad for all you who aren’t so lucky.

August 13, 2013 at 10:28 am
(51) Laura says:

Perhaps it’s in anticipation that many people are soon to be or are increasingly being diagnosed with thyroid problems due to the radiation we’re getting from Japan…CaChing $$$

August 13, 2013 at 10:32 am
(52) Patti says:

I just had to increase my dose of Synthroid – from 137 to 150 – my copay for a 3 month supply went from $62 to $93 – I don’t know how much is from dosage change and how much is from drug and pharmacy company greed.

August 13, 2013 at 10:48 am
(53) Ed Arnold says:

Synthroid and Tirosint are not the only choices. I had been taking Levoxyl because King Pharmaceutical (has been bought by a big company) guaranteed that their products, Levoxyl and Cytomel, were gluten-free. When Levoxyl went off the market, I looked at the formulas for both Synthroid and Unithroid, and decided I like Unithroid better. Unithroid seems to be working OK, though I haven’t had any testing since I started it. Unithroid does have limited availability – most local pharmacies where I live don’t carry it, I get it from a mail-order warehouse.

If you have every had a problem with gluten, watch out for cheap T4 generics … the companies that make them don’t know what is going into them and will not guarantee them gluten-free.

August 13, 2013 at 10:51 am
(54) Bunny N says:

I badgered my Dr. into letting me try Armour with the agreement if it didn’t work as well as levothyroxine, I would switch back. Had my test done last week after a month on Armour and received “normal” results. He never tells the details. I’m pleased to be able to continue with Armour. I resent the way we’re always being jerked around with high prices by Big Pharma. Higher prices are a huge problem for older people on small fixed incomes with no medical insurance.

August 13, 2013 at 11:00 am
(55) Frank says:

Was switched from lyvoxal to synthroid. Had a bad experience with synthroid ten years ago when I first had my thyroid re,moved. This time I ended up in the hospital. Edema, congestive hea rt failure. Kidney issues. Tests came back normal. Asked if anything was different. Well, yes, the synthroid. Started the generic in the hospital and began to feel better. Now on generic for 7 weeks and feel good. No more weird symptoms. Still my endo said it could not be the synthroid. Cardiologist and kidney dr. Tell me mall tests are normal. Heart and kidneys are fine. I refused to take the synthroid somy endo reluctantly wrote for the generic. It had tone the, synthroid.

August 13, 2013 at 11:31 am
(56) Kerry Finn says:

I pay $17.50 for a 90-day supply of Nature-Throid and $19.38 for a 90-day supply of Unithroid through PrimeMail. I talked to my doctor about switching from Synthroid to Unithroid after realizing I couldn’t get Levothroid anymore, which I had taken for years. The price of Synthroid is ridiculous. It’s $69 for a 90-day supply on PrimeMail compared to $19.38 for Unithroid.

You’ve got to try other options. Don’t stay on Synthroid just because you’ve taken it for years. You can always go back. They will always be there, overcharging us.

August 13, 2013 at 11:34 am
(57) Tina G says:

I called Akrimax-the distributor for Tirosint in the US and they said that the price increases were due to increased production costs at the Manufacturing plant in Switzerland-the IBSA labs. It just seems extremely suspicious that they would need to have a 100% price increase at exactly the same time that the Levoxyl packs all get pulled from shelves. As patients we need to fight for our rights–insurance companies are all going off of old formularies–ones that include drugs that are no longer available on the market. Since Synthroid & Tirosint are the only brand-name meds left for those of us who are recovering thyroid cancer patients, then the insurance companies need to broaden their views on what is considered a preferred or tier 1 prescription. I urge you all to battle it out with your insurance companies and to get you doctors involved as well. I had my doctor write a letter explaining why Tirosint is a better medication in my situation. I am still fighting the good fight and I know it will be a long battle–but, if I don’t do it–who will?

August 13, 2013 at 11:38 am
(58) Khaki says:

I take tirosint and the price almost doubled in June. I wrote Akrimax and asked why and they said that price is in line with other major endocirine and heart medications. Translation: we charge what the market can bear. I requested a formulary exemption from my HMO and it was denied. They’re recommending Mylan but I have GI issues and an alllergy to iodine. Mylan has povidone, so I’m paying out of pocket for tirosint

It’s hard to get information about the problems at the manufacturing facility for levothroid. I think they were significant. The FDA shut them down. A friend told me NPR did a story on it but I can’t find it. I read one post that they also manufactured a pain killer and sleeping pill at the facility as well. The person in the post reported there was a mechanical error and the machines weren’t shutting down and cleaning between drug batches so there was contamination. I haven’t found anything else to verify that.

August 13, 2013 at 11:38 am
(59) Kerry Finn says:


I would insist that your doctor mail or email you a copy of your tests. It is just not acceptable that he won’t give you your results. One of the reasons I’ve been able to participate in my thyroid adventure is that I have kept all my test results, not just thyroid results, in a spreadsheet so I can easily see what has happened over time at what dosage. That’s a perspective that not even my doctors have. Do you think doctors make a spreadsheet of your test values? Most just look at your last test and make a pronouncement. At least that’s what yours does. If he/she won’t give you your own test results, I would fire him immediately.

Shopping for doctors is the only way to find the right one for you. I don’t manage my endocrine/autoimmune issues with my primary doc. I go to someone several hours away (sometimes have phone appts). I always give my primary my test results so he knows what’s going on.

August 13, 2013 at 11:39 am
(60) Robin says:

Toni (#34) – I have Hashimotos and Hypothroidism and was told TO take Armour. I tried Synthroid once and was SO messed up. Now I’m Armour or direct from a compounding pharmacy. I’ve never had any problems with inflammation on it, in fact my inflammation is greatly reduced on it and goes up with the Synthroid.
Of course everyone is different but try to find a doctor who will let you try out different medications so you can find what is best for your body.

August 13, 2013 at 11:51 am
(61) Gretchen Farrar-Foley says:

I switched to Tirosant because I cannot take Synthroid–had a bad reaction to it. When I first got it the price was $29.99 with my insurance co-pay. The next time it was $52.99 with my co-pay. What happened??? I think the drug companies are seeing a goldmine and jacking up the pricing. I asked my doctor to notify my insurance company that I cannot take Sythroid and then they will cover more of the cost of the Tirosan, but I don’t think it will be much more. This is awful! I just retired and although I can afford to pay more–having been on Levoxyl for years at $3 a month with my insurance and now having to pay $52.99–this is a big increase for me. What can we do?

August 13, 2013 at 12:06 pm
(62) Pat Aseltyne says:

Just realized that I no longer have been losing my hair though it was coming out strand by strand a few months ago. This article with all the possibilities of meds made me think that it may have been the meds since I changed back to levothyroxine about eight months ago. It was from a different drug company than I had been using. I have been taking meds for 40 some years and it was the first time that I had any problem.
I do have symptoms now that I had when I first discovered the thyroid problem – heavy legs when going up stairs; severe joint pains; I have been attributing this to old age, however, maybe not. I believe Drug companies need to be monitored for both effectiveness and pricing.

August 13, 2013 at 12:13 pm
(63) Sylvie Mack says:

I to can attest to the price increase. I can only take Tirosint which for some reason my insurer barely covers. Cost this time was $145.
Have Hasimoto’s and this drug is starting to work for me!! have no choice. Tried them all. Good luck to all with thyroid disorders.

August 13, 2013 at 12:51 pm
(64) bruno5050 says:

I am so thoroughly disgusted with how certain pharmaceutical companies and physicians continue to schmooze each other in order to control thyroid medications and the expenses associated with them. It’s like a dog-eat-dog world out there.

To me, it smacks of corporate greed. You would think thyroid issues are some type of orphan disease with the way patients are treated, year after year. I can’t think of any other very common disease where patients have to constantly battle physicians who belittle symptoms and drug manufacturers that play the $hell game.

As of March 2013, and after many poison pen letters, I gave up the fight. No more physicians or meds for me. Dealing with my Hypothyroid/Hashimoto’s disease is far less stressful that dealing with pharmaceuticals and/or physicians.

August 13, 2013 at 12:54 pm
(65) Linda Skipper says:

I have been on Tirosint and compounded time-release T3. I have to pay out of pocket for everything as my insurance won’t pay for any. I am in between doses of Tirosint so must pay for two doses. I have contacted the company who makes Tirosint by mail because my cost for Tirosint alone was $132 for one month supply at Walgreens. I checked around and that was the best price I could get. Add that to the compounded T3 and I am paying hundreds a month because those prices have also skyrocketed!

Has anyone had any luck with ordering Cynomel, a Mexican generic of Cytomel from mymexicanpharmacy.com? It is a quick release form of T3.
I have also heard of a compounded liquid caplet but don’t know where to get it.

August 13, 2013 at 12:55 pm
(66) Diane J Marie says:

I was taking both Levoxyl and Nature Throid at the same time. That worked for me. What’s going on with Levoxyl makes no sense, by what Pfizer says. Sounds like politics and profits, darn it all. But I wish I could still take Levoxyl.

Where I live, I called a number of pharmacies asking if they carried the generic brand, Unithroid. They all claimed they did not carry it. With each, I then asked what brand of generic they carried and they came back to the phone and said Unithroid! So now I take Unithroid and Natue Throid.

It’s sad that politics and profits–profits before patients–has dominated the thyroid replacement industry.

Years ago, when first diagnosed, I was prescribed Synthroid and the awful experience of having that drug in my body is something that has stayed vividly with me. The fillers and binders are bad quality. I lost hair by the gob-ful.

I tried Levothroid years ago and that was worse quality: My TSH jumped to almost 20. What was the manufacturer thinking?

In the levothyroxine industry, there needs to be a CEO–who also has hypothyroidism!

August 13, 2013 at 3:16 pm
(67) Janet says:

The games that thyroid med manufacturers play are both worrisome and wearisome. I don’t take levothyroxine; I take natural thyroid and am going through the same issues right now, so I’m empathetic with those who can’t get a steady supply of THEIR best med.

(Mary, I wish you would write a similar article about NP and other natural meds. The “backorder” of NP is suspiciously fishy, and I can’t find any information about it online or from pharmacists. Would you please investigate for us?)

August 13, 2013 at 3:34 pm
(68) JT says:

Abbott sold their prescription Synthroid to a Canda Co. That is when I noticed a change in the price. It happen late last fall. You can research it. It is on the Abbott website.

August 13, 2013 at 3:41 pm
(69) Star says:

With the new health care bill being ready to go online in 2014 donít you think that the drug companies are trying to make that last dollar before they have to bring down their cost? Itís just a idea. Why is it that other country drugs cost less than those made in good old USA?

August 13, 2013 at 3:43 pm
(70) Paula says:

I just got mine filled this morning at Fry’s. Copay was the same and no problems.

August 13, 2013 at 3:45 pm
(71) Paula says:

I just got mine refilled at Fry’s. The copay was the same as always.

August 13, 2013 at 3:48 pm
(72) Rebekah says:

This whole this seems very suspicious to me……I suspect that Big Pharma will do what they did to Colchicine–gout treatment for decades, generic form. The one company that made BRANDED colchicine–Colcrys–bought up all the generic patents……so now……no generic and a 90 day supply costs about $1000…….however, you can get generic from Canada for about $100 for a 90 day supply……pretty soon, we will be getting our drugs from Canada………and the irony is, a lot of the drugs we get from Canada, are manufactured in the States…..go figure……

I used to be a Pharm Rep so I know all the political machinations that went on then–it has only gotten worse now! May the Good Lord help us all……

August 13, 2013 at 4:04 pm
(73) Bonnie says:

I believe that the insufficient Levoxyl dosage is a major issue. I have taken Levoxyl for years but last fall started to not feel well. My doctor upped my dosage a bit but I still didn’t improve much. Months later, I found out about the recall and dosage problem. Stuff happens, but they should have come clean about it all so we could address it appropriately with our doctors. The Pfizer letter that went out to pharmacies and doctors was so generic. I think they covered up the truth and did us all a disservice. I am taking Synthroid now and doing fine so far.

August 13, 2013 at 5:39 pm
(74) Sherry P says:

I was on Synthroid, did not work. Then Armour, and it worked great! Then they changed it and during that time I went to a compounding pharmacy, and that worked but its not cheap. So I went back to Armour and it does not work, The Pharmacy told me that Armour is now CORN based and if you are food sensitive to corn IT WILL NOT WORK! Forget my insurance I am useless unless my thyroid is functioning!

August 13, 2013 at 6:29 pm
(75) Nancy23 says:

I was on Levoxyl for years and doing great. On the generic now, I feel rundown all the time. I hate this! (On a side note, the heartworm meds for my dogs are also discontinued! What is going on?)

August 13, 2013 at 11:39 pm
(76) Judith Auerbach says:

When I was first diagnosed with Hashimoto’s, I tried Synthroid, Levoxyl, generic levothyroxine, Armour, et al. I had serious GI reactions to all of them so my doctor had me try Tirosint, which works like a charm, but the price has continued to go up. My insurance doesn’t pay anything for it so I pay it all out of pocket and I’m retired and on Medicare. The price in Feb. and May was $86.10 for an 84 day supply. When I recently reordered it, I was shocked to see that the price was now $105 for an 84 day supply. I contacted Akrimax, with no response. The only way I can order it through United Healthcare is to get a waiver (or preapproval as they call it) once a year. My doctor has to write a letter telling them once again that Tirosint is the only form of levothyroxine which my stomach will tolerate. Apparently the binders, fillers and dyes in the pill for are what causes the reaction and apparently that is why the manufacturer decided to put it on the market, because a lot of patients have the same problem.

I spoke to AARP (who has the plan through Unit Healthcare) and they told me that basically, the insurance companies go by the Medicare formulary and that Tirosint isn’t in Medicare’s formulary.

I have tried battling with the insurance company to no avail. Perhaps an appeal to Medicare might help??? It’s frustrating to feel so helpless with the insurance companies and the drug companies. I’ve toyed with the idea of uprooting and moving to Canada. At least they’re civilized.

August 14, 2013 at 12:18 am
(77) Lou says:

My thought is drug companies saw an opportunity with patients scrambling for a replacement for drugs that are off the market.

Here’s what the distributor for Tirosint told me: “At Akrimax, we understand your concerns about the affordability of pharmaceutical care. The Tirosint price adjustment was necessary to ensure the continued availability of the product. In recent months, the cost of manufacture, importation, and essential physician and patient support services has risen to the point where Akrimax cannot continue to offer Tirosint at its former price. Even with its July 1 price increase, Tirosint still offers value to hypothyroid patients. The new price, while higher than direct competitors, is within the range of other pharmaceutical drugs used to treat chronic cardiovascular, metabolic, and endocrine conditions. Tirosint is a unique drug for hypothyroidism, and is appropriate for patients for whom traditional T4 tablets are not a viable therapeutic option.”

My response back to them was they didn’t reinvent the wheel… they just remodeled it.

I can’t take Synthroid because it makes me really sleepy… I know… not a common side effect. I tried the generic after Levoxyl was recalled and it was even worse. Tirosint makes me nauseous about 45 minutes after taking it… eating fixes that. My mouth gets a lot drier especially toward the end of the day. I can handle these things much better then not being able to stay awake during the day or not being able to wake up in the morning if meds are taken at night. So… I’m stuck paying.

August 14, 2013 at 6:05 am
(78) Linda says:

I am British and live in Spain. I need to take some Eutirox and some Levothyronine. Eutirox is quite inexpensive but Levothyronine iis not available in Spain or UK, it is only used in hospital for people going into Thyroid coma. Even though the Endo prescribed it, I have to have it delivered from Gibralter and it is really really expensive and difficult for me to afford. Is there anywhere I can order it from safely that is cheaper? The distributor in UK cannot send directly. I am also interested in Thyrolaor natural thyroxin but have no idea where to get it from. Please help, thank you. Linda

August 14, 2013 at 11:45 pm
(79) Alice Arrington says:

Sick to death of drug companies, the FDA, and insurance playing with a drug that is absolutely necessary since my thyroid was removed due to both follicular cell and papillary cancer. First they took thyrolar which was the best ever for me. Then Levoyxl disappears. I was forced to use synthroid, but it doesn’t feel nearly as effective. Sounds like a drug company and the government (and maybe even insurance companies) have gotten together to take more of our money because this is a life sustaining drug.
I am tired of playing, “Who took my medicine?”. But what are my choices?

August 15, 2013 at 2:22 pm
(80) Patricia says:

Someone here said Armour Thyroid is not being made anymore. Is it true? Does anyone know why Armour is not on the Medicare approved drug list?

August 15, 2013 at 8:44 pm
(81) Caroline Bly says:

Yes…my Synthroid went from $25 for a 90 day, to $45 for a 90 day. So discouraging!

August 16, 2013 at 12:38 am
(82) sunshine says:


August 16, 2013 at 4:50 am
(83) sunshine says:

When levoxyl was recalled..i went for my refill and unaware i was given the generic brand for Synthroid i went on with my daily dose…two 1/2 weeks later i began to experience painful joints and muscles!.. i would wake during the night unable to move without excruciating pain all over my body..needless to say i continued a few more days.. i couldnt move my body to get out of bed without pain…i began to be depressed as i tried to lift a spoon or cup to make my coffee on the morning. I felt as if i had slammed a car door on my fimgers. It finally dawned on me when k i looked at my jar and saw generic synthroid i told my Dr….and was told levothyroxine has never caused anyone these side effects….well

im living proof stupid dr’s rely on the books instead of the patients progress..i threw that bottle away in front of the doc…days later in the mail arrives Synthroid brand so ive been taking it..its been 6 weeks no more pain any where except for a headache when i cough..but still feel rundown nowhere near as good as levoxyl..I felt WONDERFUL ON LEVOXYL..I WAS BEGINING TO MAKE SO MANY PLANS FOR MY FUTURE!! Now my life is on hold because i cant trust myself to feel strong enough to just barely get through the day..I’m JUST THANKFUL TO WAKE UP EVERY DAY..Like someone said on an earlier post here..someone at Pfizer should have hypothyroid!! So FUNNY,BUT SO DARN TRUEEE!”"

August 16, 2013 at 4:54 am
(84) sunshine says:


August 17, 2013 at 11:58 am
(85) Sylvia says:

I tried Synthroid and felt awful . My Dr. suggested Armour Thyroid and I did well on that until they changed the formula. I them went to a compounding pharmacy and I feel great …..I was told last week that they would not be able to compound prescriptions anymore because of some bill that was introduced in the Senate. Does any one know why or what this is?

August 18, 2013 at 12:56 am
(86) sunshine says:


August 18, 2013 at 1:17 pm
(87) Sandra says:

Hello from France,
Do you still receive thyroxin in the USA ? Here in France the main provider cannot deliver Levothyrox ( because the lab has sold a too large quantity to China), so they tell us to use another variant and then “generic products”. But the two labs producing “generic products” have stopped producing thyroxin. The situation is confused. So could you tell me, please, if you have difficulty in your country to get the molecule ? Many thanks for your help to understand the global situation.

August 18, 2013 at 10:34 pm
(88) Iodine says:

These drugs are the highest selling products in the USA. If you take them, big pharma owns you for life. Wait for the Iodine supply problems (already starting) this year.
My suggestions
Lugols solution – Potassium Iodide
B- complex
Kelp supplement for the transition from weening of the drugs.
Hemp oil
It won’t take long to get your body to start making hormones again, like the other person said.. avoid other halogens (fluorine,bromine)

If you have been abused by the health system and had your thyroid removed(destroyed) check my last suggestion.

Or if you can’t be bothered to look into any of these things (Dr Brownstein)Go to your local butcher, get him to remove all the pig thyroids for you. Eat those instead ;)

August 19, 2013 at 9:38 am
(89) G. Snell says:

I have Graves disease. Back in 1996 I had a sub-total thyroidectomy, which means I still have SOME of my thyroid. I was put on Synthroid because the surgery left me hypothyroid. After 4 1/2 years on the couch while 8 different doctors thought they could find the correct dose for me, I found the right doctors with the correct dose. Eventually, I was switched to Levoxyl. Three years ago a doctor put me on the “Cave” diet and I lost a lot of weight. Things were going fine until 3 months ago when I had to switch back to Synthroid. Now, in just 3 months, I can’t sit down and relax without falling asleep—-and I have already gained back 5 pounds! I have a friend who switched to Armour and feels 100% better–and is losing weight. This week I’m switching to Armour, too. We’ll see.

August 19, 2013 at 3:01 pm
(90) June says:

In the UK Eltroxin has just been discontinued because Goldshield has now been taken over by Mercure Pharma. My pharmacist has told me that Levothyroxine is being manufactured in place of Eltroxin and is identical. Time will twll. Some years ago my TSH shot up to 42!! After investigation by MRCH it turned out there was a problem with TEVA, a generic manufacturer, and it was withdrawn.

August 19, 2013 at 4:30 pm
(91) YoKasta Martinez says:

(22) Elizabeth S, says:
To YoCasta: Maybe you can get your dosage dispensed in 25 mcg pills, 7 per day. This would count as one prescription.

I currently take 4 pills a day for my Type II Diabetes, 8 pills a day for my migraines (which I’ve had since age 9 and STILL aren’t controlled), 2 Vitamin D3 pills, 2 Omega-3 pills (because I have a significant cardiac history in my family), and a single multivitamin per day. That’s a grand total of 17 pills a day for a drug that if not *EXACTLY* the dosage my endo prescribes, will leave me suicidal and a laundry list of other things that I dread thinking about. The Tirosint, although expensive, actually works a bit better than the Levoxyl in terms of getting into my system, as it’s a liquid capsule form of levothyroxine as opposed to a pill that has to dissolve and then circulate throughout the body. Additionally, in order for me to do that with the Tirosint, I would have to have 18 boxes of Tirosint to equal that dosage, if I took 7 25mcg pills a day. That’s not worth it to me.

It looks like the time has come for me to start shopping Canadian and Mexican or even British pharmacies, where price controls actually exist – I’m sick to death of the American public paying for Big Pharma’s R&D at the expense of our lives!!!

August 21, 2013 at 9:40 am
(92) Jan Burgess says:

Here in France and also in the UK, Eltroxin has also been discontinued and so I presented the pharmacist with a generic script. The cost – TWO EURO’s 30 for a 30 day supply!! This was from a company called ‘mercury’.

So sorry for those in the US who seem at the mercy of big pharma. In France and in the UK, the State plays a huge role in keeping prices secure for the good of all its citizens, not just the rich ones.

August 21, 2013 at 9:57 am
(93) Kevin says:

I have been on Levoxyl for a long time and was very worried when I couldn’t get it. I started taking generic and after a couple of months it seems fine. It is a lot cheaper too.

August 21, 2013 at 11:37 am
(94) Angie says:

Is there anyone else here who like Bonnie (comment 73) started having problems the fall BEFORE Levoxyl was recalled? Because I was very sick the fall before this whole recall happened and I doubt very much it was just a packaging problem, otherwise they would have repackaged it which does not take a year to do. Has Mary Shomon done any kind of survey to see who was feeling sick BEFORE the recall??? I think something was very wrong with Levoxyl, yet we were told it was okay to keep taking the stinky levoxyl we already had, that it was just a smell. I took it because Levoxyl became so hard to find and finished a 90 day supply of the smelly stuff, but have not felt like myself for well over a year now. Anyone else have this problem? Also is all the generic Levoxyl really generic Synthroid, because Synthroid makes me very sick. I’m less than 30 days on the “generic”, all my smelly stuff gone and am concerned I need to find something different if it is really Synthroid. Also if you did get sick before the recall was the reaction high or low? Mine was mostly high (tachycardia, diarrhea, palpitations, runaway pulse) but it also seemed severely low at times (constipation, dry skin, low b.p.). It was like the dose wasn’t consistent. Anyone else get ill on Levoxyl beforehand?

August 21, 2013 at 12:49 pm
(95) Ms Piper says:

This is to Angie (# 94): I’ve been a thyroid patient for a long time
and have been through a number of situations where the thryoid
drug has been reformulated (and patients not told) or later been
recalled, etc. I have found that I often had a lot of symptoms for
awhile before I discovered that something was up with the drug,
so I do think it’s possible that your Levoxyl was going screwy on
you for months before their recall became public.

In one of my worst instances like this, I got just what you’re
describing…..bad symptoms of hyperthyroid, but also low thyroid
symptoms, too. It’s like the drug just couldn’t work right on me
anymore because of the way it was changed, no matter what dose.
(this was when Synthroid was fiddled around with in 1982-83).
I’ve had similar things happen over the years with other versions
of the different thyroid drugs as they changed formulas or
manufacturers, or later would get recalled. I’m not on Levoxyl
currently, but I did want to share this with you or others reading along.

If Synthroid makes you very sick, you may want to try out
Tirosint…..it’s the only one that’s shown much real promise for me
since they quit making Old Synthroid, but some of us have to go
gradually with building up a Tirosint dose, because it may hit us
more strongly than we’d like (due to lack of so many fillers to
block some of the active medicine). Good luck to all.

August 21, 2013 at 4:22 pm
(96) Ed Arnold says:

When Levoxyl was withdrawn from the market, I looked at the formulas for both Synthroid and Unithroid. I decided I like the Unithroid formula better, although it is harder to get. Have been taking Unithroid a while now and things are going well. Unithroid might actually be stronger than Levoxyl … I have had to drop my dose from 100mcg to 75mcg since starting Unithroid. (Adjusting by feel, not by test.)

August 21, 2013 at 7:57 pm
(97) sunshine says:

TO#88 IODINE..HI, YOU SAID WE CAN ALL HEAL OURSELVES BY JUST FOLLOWING DR BROWNSTEIN ADVICE..AND YOU SAID IT IN SUCH A SARCASTIC AND CONDESCENDING WAY..My question to you madam or sir, have you ever suffered through the debilitating illness along with the depression that comes with it?? I have been suffering with this disease for a short time compare to some of the people on this forum and already do i feel for these people because i can emphathize..You however show no compassion of any sort..if you have healed yourself with Iodine, etc. Why are you visiting this website? Doesnt make sense. Also, ive considered Iodine but my illness has been so.severe and i have been hoping my stinkin medicine would soon kick in. I tried iodoral and Iosol.with no luck at all..just like some medicines like synthroid and nature-throid work different not every ones body will.respond the same that goes for iodine too. My TSH went as high.as 18 and youre in no mood to experiment..but when it was lowered i tried.it to no avail…what was your.tsh?? By the way ive been on all b tablets..iron..folic acid..L-Tyrosine,Selenium, Vit D3

August 21, 2013 at 8:49 pm
(98) Jeannine says:

My synthroid 150 just increased from $50.00 to $72.50 this is my
co-pay with insurance. I feel like they know they have us., what are
our choices?? We have to take this the rest of our lives.

August 21, 2013 at 9:03 pm
(99) Ann says:

I had been taking Levoxyl for years and I was feeling great. Went to refill my pills and find out about the recall. Tried generic levothyroxine and felt awful, nauseated, hot flashes, headaches. Been taking Synthroid for about 2 months and still feel terrible – cant sleep, anxiety, mood swings, weight gain. I don’t know what to try now. Very frustrated that these pharmaceutical companies can do this to people.

August 21, 2013 at 9:15 pm
(100) CaraW says:

I, frankly, am fed up with the whole mess. i haven’t felt great in a long time, but when Levoxyl was recalled, I was told everything was interchangeable. Three doctors and a Generic and Synthroid since April 2013 I grew worse. I finally quit taking any of it. I may die I guess, but, I feel better in some ways than I have in years. What I need is pharmaceutical companies to quit capitalizing on people who depend on this stuff ad a doctor who knows about thyroid.

August 21, 2013 at 9:15 pm
(101) ceebee says:

First of all, they can keep their Synthroid…synthetic thyroid hormones are not effective. Before I educated myself about synthetic vs natural thyroid hormones, I too had been placed on Synthroid. The result? I started to rapidly gain weight! The Synthroid was the only thing that was new for me and my weight gain started within a month of starting the Synthroid. Thinking that this was more than just a coincidence, I contacted my doctor and asked if, by chance, the Synthroid was causing my weight gain. She said “no, absolutely not”. But I know now that, yes, it absolutely can! As far as this ‘shortage’ is concerned, I don’t think it’s a ‘shortage’ at all. I believe that evidence based practice supporting the efficiacy of bioidentical thyroid is finally revealing that natural desiccated thyroid hormone is the treatment of choice and all the synthetic pharmaceutical companies are attempting to create a ‘need’ for synthetic thyroid hormones, by creating a shortage.

August 21, 2013 at 9:29 pm
(102) theresa says:

I AM going to start experimenting with the pig thyroids!!!This is ridiculous, and scary!! I have had bad luck with every kind of thyroid I have tried. They work for awhile and then they change them, or they can’t get them, or the compounder screws up. I am currently taking Thyroid from Thailand, but that is a little scary also. so far so good, but one day the axe will fall on that also, probably. If I can dry jerky, I can probably dry a thyroid…..I also had good luck with iodine, and I still have a thyroid. I’m getting back on that, too. Easy to regulate, sometimes not so easy to get

August 21, 2013 at 10:11 pm
(103) Anne says:

I think the synthroid or similar drugs and problems with other drugs on the market are caused by the muslims taking over everything they can get their hands on. Who is in charge of the white house and all it’s functions – it is not the white man. Who tries to get on all the political boards be they civic, provinical, state, county, community, or pharmaceutical. It is not the white man running the show anymore, no matter what country you go to. We have a big problem with this. Watch for prices to go up on other products as well. By the way what percentage of muslim peoples have thyroid problems? I do not know. It seems nowadays everything has to be made for and catered to them from your grocery store items on up. Think about it.

August 22, 2013 at 3:16 am
(104) Joy says:

I live in the UK and take Eltroxin having previously not felt at all well with generics except the generic ones made by the company that also makes Eltroxin. I have spoken to MercuryPharma who makes them and they have said the generics made by MercuryPharma are exactly the same as Eltroxin except for packaging and the markings on the tablets. My experience of taking them indicates that is true. MercuryPharma said that Eltroxin is not discontinued but will not be available again until next year. Hope this info helps you, Jan Burgess, as it sounds like you are having similar problems in France to I am having here.

August 22, 2013 at 11:53 am
(105) GG says:

For #88, I do understand you with trying to do thing naturally when it comes to our health. I agree with you that naturally healing our bodies is the best way to going back to basic. It’s not just the water, tooth paste but the foods that we consume each day. The famers are adding additives to the soil for quick grow for plants and animals as we consume them. Cleasing our bodies will be a start and adding certain supplements might help, it can’t hurt. The Drug companies are about making money as well as some doctors and not about where we feel like crap. It is ashame that humans don’t care about other humans at a time of feeling like hell.

And #103, it doesn’t matter the color of your skin, we are all human beings, trying to stay healthy in a world full of chemicals, and politians that sit in office and don’t think about the middle or lower income individuals because they have insurances and health care that they can receive the best of everything. We all get sick with something in our lives and skin tone has nothing to do with it. Some of us eat, exercise and mediate back to basics to try to stay healthy humans beings.

August 23, 2013 at 6:56 am
(106) joanjpw says:

Wanted to know what Canadian pharmacy Marilyn V uses for her synthroid. Do they fill US mail orders?

August 25, 2013 at 11:27 am
(107) Anna says:

I’ve been on nature-thyroid for many years and armour before that. I have insurance but found it was cheaper for the doctor to write out a script for the whole year. I have the peace of mind knowing that I’m cover with meds for one year and the price was cheaper than making the monthly trips to pharmacy and having it covered on insurance.

August 27, 2013 at 1:24 am
(108) tracie says:

I have been using Unithroid for almost 3months now since levoxyl had the recall and have been doing well. I go for a retest in a few weeks and we will see how that goes. Just thought I would let everyone know it is always made by the same manufacture and is generic price and also has never been recalled and was the first to get fda approved.

August 29, 2013 at 8:28 pm
(109) Momofjill says:

We need an advocate with a voice important enough to get to the bottom of this issue! Something is very wrong with the differing reasons for the discontinuation of Levoxyl. So many people have taken to the Internet with complaints, it smells like greed!! It is absolutely evil to play with people’s very lives

August 31, 2013 at 10:30 am
(110) Sandra says:

to Momofjill , from France, I totally agree with you. I’d like to be sure that we all will receive thyroid products in the future…I need to know if all products are not use to respond to the huge needs of countries such as China. After the original product which is out of stock in our respective countries, the authorities tell us to take some generic products. But are we sure that one day everything will not be out of stock for us ? I’m scared.

August 31, 2013 at 9:03 pm
(111) Patricia says:

I cannot take Synthoid and am now on Tirosint and feel awful. My doc won’t prescribe generics because of the unknowns in the manufacturing process. Very frustrated and not sure what to do. Does anyone know if there is any near-term hope for a return of Levoxyl? Desparate in St Louis!

September 2, 2013 at 12:57 pm
(112) Sonjia says:

As always….when something like this happens….its about the “bottom line”…..this has always been a cheap drug. I’ve been on this drug since 1999 when I had my thyroid completely removed…there’s absolutely NO need for it to double or triple in price….I use to purchase the generic at the drug store for $10 on a 90 days supply….This past Sat. in Costco….it was $27 for a 90 days supply….You can do your only math!! Shame on the drug companies…..

September 3, 2013 at 9:21 pm
(113) Patricia P. says:

I had a total thyroidectomy in 2009 for papillary cancer. I took Synthroid until this spring when I found a doc that would prescribe NDT. I never felt “right” on Synthroid but my endo was happy with the lab values. I tried Armour but had horrible total body “traveling” itching, and loose bowel issues that were embarrassing. Switched to Naturethroid. Itching gone but bowel issues remained. My PCP put me on Tirosint with samples so I have yet to buy any but that will come up soon. Also started on Cytomel. Felt OK the first week or so. Not so much now. I had to fight my insurance company to pay for Synthroid. I’ll probably have to do it for TIrosint too. I’d prefer to take an NDT if I could find one I can tolerate. I have compared fillers but nothing pops out as to what the culprit could be.

I wish that those of us with no thyroids, especially those of us who have had cancer, who must have these meds to surpress any remaining thyroid tissue to survive, could somehow band together and get these labs to make thyroid products that are immune to investor profits and greed.

The FDA took Darvocet off of the market because it had “addiction concerns and some cardiac issues”. Then why are meds like Vicodin, Percocet, Oxycontin, & Celebrex still on the market? Because the maker rakes in big bucks from it. Darvocet had been around for 50 years, long past its patent, and was a money loser for the maker.

Anyone who thinks the FDA has the consumer’s best interest at heart is truly naive.

September 8, 2013 at 3:11 pm
(114) Shelly Z. says:

I am a 28 year Thyroid Cancer survivor. I was on levothroid for years until the fall of 2012 when I could no longer get it. I was told they were no longer going to produce it, so my doc changed me to levoxyl. In June 2013 when I went to renew my prescription, my pharmacist told me the medication was recalled. I was put on Synthroid.

For months I had been feeling awful–no energy, lack of focus, weight gain, intestinal problems, depression, etc.- classic symptoms of hypothyroidism. I had been under a lot of stress and taking my medication,so it never occur to me that my symptoms were thyroid related until I found out about the levoxyl recall. My doctor put me on Synthroid. Several weeks later, I went to see my doctor and I was extremely hypothyroid even though I was taking levoxyl daily. Then the Synthroid was making me ill. My poor body could not figure out what the heck was going on.

My doctor told me he had been notified by the manufacturer of the levoxyl recall because of the odor issue, but he said after looking at my levels there was also an efficacious problem as well. So I contacted Pfizer to file a complaint. A week later, I received a letter back stating since I could not give them a lot number, they could not investigate my complaint. After talking with my pharmacist, I found it interesting that the only people who know where which lot number goes is Pfizer and its distributors.

So my doctor prescribed a lower dose of Tirosint -137 mcg rather the 150 mcg of Synthroid I had been on. After two months on the Tirosint, my symptoms are slowly going away. Unfortunately, I recently went to pick up my Tirosint prescription, it cost me $44 dollars for a month supply because my insurance will not cover Tirosint or Synthroid.

September 16, 2013 at 12:29 pm
(115) Lindsey says:

I am dealing with this nightmare as well. I was doing well on Levoxyl for 10 years – never even had a dose increase – and the last year after this recall I have been to the ER twice and sick constantly. I am now on Synthroid but feel poisoned. Thinking of switching to Tirosint. Can anyone tell me what your dosage ended up being if switched to Tirosint? Did you have to decrease or stay the same? Any help would be appreciated. I need my life back!!!

September 16, 2013 at 9:28 pm
(116) SK says:

I have to use a mail-order pharmacy and get a 90 day supply of Tirosint

In May it was about $90
In July it was approx $180
I just priced it, and it is now $620+

Be aware and price it before refilling your order

Shame on Tirosint!

September 23, 2013 at 6:36 pm
(117) Mary says:

I was just flabbergasted at the sudden increase in price of my generic levothyroxine. Just last month I paid $4 for a 30 day supply at Wegmans. Today it cost me $17.99. That’s 4.5 times the price! What the heck!?!?

September 29, 2013 at 3:10 pm
(118) Nancy says:

Just refilled my Levothyroxin 100 mg prescription by Mylan and my co-pay doubled to almost $20. The Target rep said they had to take it off the $4 list because the manufacturer doubled the price. He also said there is now only one manufacturer of this generic wheras before there were four. Medicare Part D has not paid me one dime in four years. The entire medical complex is corporate welfare.

September 29, 2013 at 4:02 pm
(119) dana says:

November 2012 visiting Atlanta Ga. forgot my levoxyl called CVS they could not find one drug store in Atlanta that carried it. One year later back in another state they tell me they have a recall. It is the only thyroid med I can take without horrible side affects. I am now 4 months into a substitute and my health is starting to have side effects just as it did until I found levoxyl THE BRAND. I know it will be a battle for me until 2014 and I swore I would never change but I have know choice. My doctor said it was a medical emergency and I must have it. You think pfizer gives a crap. I have taken this med for some time and never found any smell or side effects. It is a scam. Told the drugest that the new meds they want me to try leaves my eyes dripping of blood Looks like itand my feet are so tender it hurts to walk. On and on it goes they do not want you to take meds that work there is no money if you feel well. I am so pissed that I have to live life with thease effects because of money and the pharmacies need to be sharks.

September 29, 2013 at 6:34 pm
(120) Jeanne says:

Just had my prescription filled for levothyroxin by Sandoz at Walgreens/Duane Reade. Just a month ago it was $24.12 now it’s $35.75. It’s bad enough I am sick without Levoxyl. But now this!!! Who is watching the drug companies? Why in this great country called America are the sick being ripped off? It truly baffles my mind.

September 30, 2013 at 4:58 pm
(121) Carolyn L says:

I picked up my 90 day supply of levothyroxin this morning and was truly surprised as to the $16 increase.
I called CVS Caremark and they said the manufacturer had increased the price. People need this drug to stay health, why increase the cost?

October 3, 2013 at 7:52 pm
(122) weezie says:

Just filled my 30 day prescription for levothyroxine and price went from $5.14 to $9.36. After years of only paying $4 for a 30 day supply, the price had already been raised once earlier this year. I’m afraid to wonder how far this is headed.

October 4, 2013 at 2:37 am
(123) Elaine says:

My thyroid rx for one month tripled in price I found out today. I told the pharmacy to send it back. I have no insurance and this hapened as a direct result of the “affordable care act.”. What a scam this is.

October 6, 2013 at 2:43 pm
(124) Susan Michael says:

LUDICROUS. From $4 for a 30 day supply6 to $12!!?? For a generic drug?? Are they crazy?? I will be 65 in March and for now, I am without health insurance. I have my pills dispensed by Target Pharmacy. I was in total shock at the increase. I cannot stop taking these meds……..What is happening here??? What can be done??
Lying thieves. This whole generic/brand name drug issue is criminal. What is the average person to do.

October 6, 2013 at 7:55 pm
(125) docholihawk says:

This price manipulation is directly the fault of the Pharmaceutical companies who insist on record profits every quarter. They think if they don’t make a record profit it is actually a loss. It’s all about greed and the almighty dollar which to them is more important than human life. It’s not only the big companies. The medical profession is as corrupt as any on earth. When you take thyroid medication your test results fall into a range on your t3 and t4 counts. If it’s a range why are doctors already prescribing dosages that require 2 prescriptions when a slightly different dose would still fall into the range considered normal. Since the late 80′s doctors have stopped being concerned about people as humans. We represent $$$ to them. Every time I go to the doctor a nurse comes in and gets a list of the meds I’m on. When the doctor prescribes a new med I ask them if it will interfere with my other meds and their response is always I have to take a look. If they were concerned wouldn’t they look at my meds before prescribing. Finally nothing will change as long as the politicians who are currently in office. They are all criminals. I don’t care what party they belong to they have all sold out to the $. I say give them one term and if they haven’t done anything vote for their opponent. Until American people force the politicians to change they will continue to line their pockets and say to hell with the average American.

October 7, 2013 at 6:49 am
(126) Bendy says:

I do sympathize with everyone. I called in my Tirosint rx last wed and went to pick it up at the pharmacy Sat and was told it was not being released any longer by the manufacturer. I emailed my endocrinologist doc and she said that is not true. I sit here out of medication either way. Rediculous. The price in all the thyroid medications has skyrocketed. However, people paying $4 for their rxs are part of the problem, not the solution. This began as a marketing ploy by drugstores to get clients away from each other, driving matching $4 costs. Do you think the science behind medications, keeping facilities in shape and complying with the FDA is going to be kept up for something you pay $4 for? Furthermore, most of the people complaining about $30/m for their rx pay way more than that for their cable, daily coffee, or cell phone service. I think we need to re-evaluate the situation and put things into perspective. My friend who is a pharmacist recently quit after 20 years because she said the $4 and $10 for 3 m supplies on pills doesnt even pay her to fill the rx. As for the Obamacare being the cause of this – it hasnt been enacted yet. I see most people here are complaining they dont have health insurance – you are part of the problem, not part of the solution yet. I will gladly pay $45/m for my rx if it is made well and works well, but insisting on $4 rxs is ludicrous and cannot be maintained in the real world. Do you think research for other medications is free? The old cheaper standby drugs help to pay for research on new drugs – new drugs that havent been developed dont pay for themselves and research grants have almost completely dried up. My husband is a vaccine researcher and I am a veterinarian. Mexico does have cheaper drugs, but they also have very little control over their manufacturing facilities, their research for medications is worthless to non-existant. What drug do you use that country developed? – really want that?

October 10, 2013 at 2:24 pm
(127) Sheila says:

All year my 90 day supply has cost approx $8-9. However today I paid $23.34 at CVS for a 90 day supply of Levothyroxine 75mcg. At my local grocery store pharmacy, I checked and they still only charge $12 for non-insurance cost. CVS/Caremark is a ripoff. From now on I’ll have to check their prices online first so I don’t get ripped off.

October 11, 2013 at 4:16 pm
(128) nancy gentry says:

Just went to pick up my prescription and it went up $21.00! Ridiculous!

October 12, 2013 at 4:58 pm
(129) Alisa says:

I was just put on Tirosint by my new doctor. Just picked up my first RX of it and am being charged $75 a month for it. When I was on Levothyroxine I paid $4 a month. Exactly how are we suppose to be able to afford this price increase? Is there no way Pharmaceutical companies can’t be controlled somehow? It doesn’t cost them that much to produce these pills.

October 17, 2013 at 12:18 pm
(130) mlw says:

This smells just like the price gouging that goes on after a storm when everybody needs a generator to have power. There are laws against gouging the public. In my opinion, this appears to be one of those occasions. My copay went up over 3 times more for Synthroid than for Levoxyl. I am sure my insurance company is also paying more for their share of my prescription. Companies can get fined for gouging and have to reimburse customers. I hope the appropriate authorities are watching this one and evaluate the situation properly.

October 17, 2013 at 12:24 pm
(131) zach says:

Levothyroxine is one of the only drugs that my endocrinologist won’t prescribe generics for. He said that the Levoxyl recall due to cannister odor could have been resolved quickly as it had nothing to do with the drug itself. He also believes that it will NEVER come back on the market and suspects an under the table deal with Abbott, maker of Synthroid. Time will tell…

October 17, 2013 at 5:40 pm
(132) Denise says:

I was on Levoxyl & Cytomel for 10 years and was doing perfectly! Then it was recalled and I was put on levothyroxine for a month. I happened to have my TSH checked with other bloodwork and my TSH was 12!
It had been normal for years and my last test was just 5 months before this.
I believe the problem with the Levoxyl was the dosage was not stable and therefore 75mg did not actually contain 75 mg and caused my thyroid level to get out of whack.
Now I’m back to losing hair, freezing, and muscle aches! Levoxyl was the only drug that helped my symptoms.

October 19, 2013 at 6:59 am
(133) Robin P says:

Totally disgusted after levoxyl was recalled. Doctor does not prescribe generic. I was forced to go to Synthroid. I couldn’t believe insurance won’t cover synthroid. Out of pocket cvs charges 40 a month. I finally tried to investigate Canadian pharmacies. I told my doctor and gave me the name of 2. Big Mountain Drugs and Northwest pharmacy. He says some other patients use them for insulin because its too expensive. Its legal in the US as long as you get a, script for 90 days. Anyway I chose Northwest and the price is criminal. Its 18 dollars for 90 pills 175 mcg of Synthroid. Its should be against the law that prescriptions in the us are so ridiculously overpriced. 120 dollars compared to 18 dollars.

October 19, 2013 at 11:01 am
(134) Karen says:

I miss my Levoxyl! I pray that Pfizer will bring it back on the market and not change the formula! Since the recall, I have tried all the generic T4′s and the Tirosint, which gave me nausea and then I finally threw up violently one day! Needless to say, it didn’t work too good. Unithroid causes tingling in my hands and feet. Sandoz thyroid gave me a whooping migraine and body aches! I am truly a sensitive guinea pig and if I can use it, about 99% of the world can too! Pfizer, Levoxyl, was perfect and made me feel good just about every day! Please don’t change it! There was nothing wrong with the formula. The accudose formula with the fewest binders was the best! You had a winning formula that was helping many people to get their lives back together again. This recall should have never happened at the expense of so many people getting sick! Facebook changes, Youtube changes, Coke Cola tried to change their formula………It is sick how we feel like we have to change things all the time. “If it ain’t broke don’t fix it!” Whoever wrote this saying was not kidding! It is the truth!

October 22, 2013 at 1:56 pm
(135) Marian says:

Today I went to the local pharmacy to pick up my 90 day supply of Levothyroxine. Normall I get 90 days for $10….on the pharmacy’s discount drug plan. Today it was $23.81 because they ran it thru my insurance and that was my copay. The pharmacy tech explained that the price of the bottle the pharmacy normally purchases has gone from $90 to over $600 so they no longer offer it on their discount drug list……What the heck is going on ???

October 23, 2013 at 12:44 pm
(136) Barb says:

I went to get a refill today at Target pharmacy and found the price for generic synthroid went from $30 for three month supply to $90.
Shopping around for somewhere else.

October 23, 2013 at 9:52 pm
(137) not happy about this says:

I just went to costco to pick up my 180 day supply of synthroid.
In April, my last pick up, it cost me $14.
They told me this time the same thing will cost $67!!!!
I believe the recall was manufactured.
Those dirty crooks!

October 24, 2013 at 11:18 am
(138) Melba says:

The same thing is happening with Amour Thyroid the price has more than doubled and the pharmacy said that it is no longer covered by insurance part “D”.It is a game they are playing with everyone —Always with the Amour because they want everyone on Synthroid and It does not address the T3and T4 issues. The drug companies and Medicare are trying to override what the Drs. prescribe. Lord knows what it will be under Obama Care.The laughable ‘Affordable Care”. The American people are being scammed.

October 25, 2013 at 5:44 pm
(139) Eileen says:

I just came from Costco with a 100 pill refill of levothyroxine. Last time #14, this time, $43…..Costco has always had the least expensive price for all my meds. They said nothing about a recall or stoppage of availability. So I am wondering what will happen in three months.

October 28, 2013 at 1:42 pm
(140) lyradd says:

Was told by a pharmacist that ALL prescription costs are skyrocketing because of Obamacare. There are price limits for prescriptions in Obamacare and the drug manufactures are raising prices before these cost restrictions take place.

October 29, 2013 at 6:15 pm
(141) Craig says:

lyradd – That pharmacist has no idea what he’s talking about.

October 29, 2013 at 8:24 pm
(142) Pharmacist12 says:

I am a Pharmacist in the United states and a Thyroid cancer survivor and have taken Levoxyl for a decade. To Pfizer/King pharmaceuticals …PLEASE fix this. There are so many of us out here feeling miserable now that you have taken Levoxyl off the market. Also, I have to say I dont think as a US schooled medical professional I would have ever believed the misery and awful feeling this could cause until experiencing it myself. Not only the lack of a Thyroid, but, the difference in manufacturers of the levothyroxine. But , it is real and millions of us are going through it. It is political/ big money manipulation. We the pharmacists have nothing to do with it and I cant tell you anymore than what has been said by others here. I do believe we will not see Levoxyl back on the market. It is awful treatment of patients by Big Pharma/political machine. No matter what your beliefs politically are.

October 29, 2013 at 8:37 pm
(143) Pharmacist12 says:

I am a Pharmacist in the United States and also a Thyroid Cancer survivor and taker of Levoxyl for a decade. I feel absolutely wonderful on a combo of Levoxyl and Cytomel. But horrible on anything else.

I agree with most everyone here in saying this is Big Pharma/Political manipulation. Its about money, not us. If it isn’t…. Pfizer/King Pharmaceuticals prove it. Bring back Levoxyl at its current formulation…NOW, not in 6 to 8 months when we have all switched to something else. NOW when so many of us feel horrible.

As a medical practitioner schooled in the states, I would never have believed it possible to feel as awful as I do without a Thyroid and with a “simple” switch of T4 medication. Now, having lived through it, I believe and understand that you can! Its awful!

I’m afraid I don’t see these companies changing anything to help us. It is sad.

October 30, 2013 at 12:17 pm
(144) Rationalist says:

Of course, these shortages and prices increases could never have anything to do with Obamacare,…right…?

November 1, 2013 at 3:12 pm
(145) Grant says:

Purchased Levothyroxine today at Costco for $30.00 (90 day). Last refill was $9.99. This is a generic drug. Wondering why the price has tripled since last refill.

November 2, 2013 at 3:30 pm
(146) J. Miller says:

In 2008, a 90 day supply of levothyroxine cost $12 without insurance at Costco. In 2011, the price went up to $19 and stayed relatively stable. Today, November 2, 2013, the price is $36 and that is double what it was! Didn’t know there were so many problems finding this stuff at a decent price. Went to Walgreens, and they wll sell you a 90 day supply for $26..what’s up with this stuff???

November 3, 2013 at 5:08 am
(147) Sunshine says:


November 3, 2013 at 6:37 am
(148) sunshine says:

Well I haven’t been on this site since August of this year…I’m #82, 83, 84, 86, 89. one day I was laying in bed so depressed, I decided to pray and ask God if healing was real and still for today. even more I wanted to know if it was for me. I told him Lord if healing isn’t for me then I rather he just take me and end my life than go on living like this the next morning I decided I was going to believe the DOCTOR ABOVE ALL DOCTORS! I said Lord you put the stars in the sky and created the heavens the moon and the Sun You created ME Who am I to question your healing ability. who am I to not believe in your word And I believe your Promises are Still true! I believe if Jesus was here on earth and I needed open heart surgery. I would trust Jesus with my heart in his hands..so therefore, I believe you now with my life in your hands and ask for you to heal me so I started from a whole tablet to half a tablet then I went to the store and bought every vitamin I could barely afford. I would go in my living room and put music and force myself to dance like no one was looking I started to feel better.ive started to wear makeup again I can comb my hair without feelling exhausted. I do care what I look like before I just didn’t and I did look a mess and now I dance without getting tired…I GIVE GOD AND HIS PRECIOUS SON AND MY SAVIOUR JESUS ALL THE HONOR AND THE GLORY WITH ALL OF MY HEART I WILL NEVER FORGET HIS MERCY AND LOVE HE HAS SHOWN ME..I HAVE MY LIFE BACK! I needed to share my story with all of you

November 7, 2013 at 4:43 pm
(149) seashells says:

Thank you Sunshine for giving God all the Glory. Only God can take a mess and make it into a message!!!

Thank you Jesus!!

November 7, 2013 at 5:39 pm
(150) Darlene says:

I was on Levoxyl for for years before and after my thyroid was removed in 2008…after some dosing adjustment I was dong wonderfully for years, I even lost near 100 pounds ( weight I gained after my goiter, cancer and thyroid was removed… I was always a slim 130 as a 5’8″ woman) at 250 lbs I was able to get down to down to 155lbs…. until late last fall . I began having pain in my chest radiating to my back. I fell asleep every time I sat down and even got small fractures in my sm. bones in my feet when I waked on my Gazelle and an inability to move my thumbs well due to the pain in the joints in them. Opening jars became impossible….My Dr put me on synthroid this past spring after the recall, initially felt better than I did with the last few months of levoxyl but after 2 months of use I began to experience severe headaches, severe swelling of hands, feet, and face not to mention my brain fog and eye irratation that resulted in a blood vessel bursting in my eye lid…. the list goes on and on. My mood swings are terrible and I have gained weight back up to 180lbs…I have a Drs. appointment next week and was looking here to see what if anything I could use that would make me feel better,,,I have severe tree, grass, soy, corn allergies and am thankful for the info on synthroid regarding fillers but am still at a loss as to what to try

November 12, 2013 at 11:01 am
(151) Lynn says:

I have been on levoxyl for 13 years. Last may, because of the recall I was switched to mylan brand generic. Within six weeks I gained 13 pounds. Absolutely cannot lose it even if I don’t eat. My skin looks like a crocodile and my depression is out of control. This is so frustrating. Was told by the pharmacist yesterday that levoxyl is not coming back at all. What next?

November 12, 2013 at 5:12 pm
(152) Anne says:

I called my Pharmacy today and inquired about Levothyroxine. I was told the generic brand is fine. The brand Levxyl has been recalled.

November 13, 2013 at 9:06 am
(153) Steve says:

I normally pay $9.00 for a 3 month supply under my health insurance plan…until now. Yesterday, I paid $21 for a 3 month supply in the Washington DC area.

November 16, 2013 at 9:03 pm
(154) Quentin says:

I have been a HYPOthyroid patient since 1998. I took Armour brand natural thyroid extract for 8 yrs or so, until it went a little off mark and was put on synthetics. I first was put on Synthroid, but it didn’t agree with me. It was scary. After one other synthetic, I finally got Levoxyl and it was the best!!!! I need to take Levoxyl …. it was the best, and most agreeable with my thryoid disease Levoxyl was more accurate, and with Synthroid and others I was shakey and misspelled words, etc..

Now, Levoxyl is gone, – I have been on Levothyroxine since the recall of Levoxyl. Levothyroxine seemed fine, but now my levels are off. TSH is high (although T3, T4 is ok) and the doctor has prescribed a new higher dose of Levothyroxine to reign that in, but I am now left with a higher heart rate, with symptoms of “hyperthyroid” which is the opposite of my disease.

I will have to reduce dosage back to my normal dosages, and retest!….
I just wish Levoxyl was still an option. The powers don’t understand when they pull a brand that it in some cases like mine, might have been the only and best brand that would make me alright.

The pulling of the brand due to one smell someone had one day, is an outrage. There should have been more review, etc.

I just read that levothyroxine may be discontinued also!!! leaving me no choice but to go on synthroid live with however my body reacts?!?

November 16, 2013 at 9:22 pm
(155) Quentinr says:

… also, one more thing: I have been taking Melatonin for deeper more restorative sleep… It works good for me when I take only 1.5mg, not the full 3mg pill as sold.

However, I read that Melatonin – over a long period for hypothyroid patients – can slow thyroid production. So, my first step was to refrain, although reluctantly, from any more Melatonin for a while to see if that helps.

But after a week of that, I still feel lousy and think cutting back to my last 10-15 year dosages are the right step, then retest.

Does anyone else know more about the Melatonin+thyroid relationship?

November 16, 2013 at 11:39 pm
(156) Kathy Vogt says:

It took many years and a hospitalization to get me to a dose of Levoxyl that finally brought my TSH to normal. I do not metabolize Synthroid. i am on Tirosint (two 137 capsules…same as the amount of Levoxyl I was taking). One 137 isn’t enough and two 137′s is too much. Since the Tirosint is gel, it can’t be divided. After ten years with no issues I am now on a roller coaster ride. And last month Walgreens charged me over $130 for a 30 day supply. Something has to give.

November 18, 2013 at 5:55 pm
(157) Anne says:

Just tried to pick up a prescription for Levothyroxin at Target where I have been getting for years a 90-day supply for $10. Now, the same amount is at Target is $40. I can get it cheaper through mail order, but what a hassle! I don’t understand how drug companies can just raise the prices of drugs that have been stable for 20+ years and not realize the impact it has on consumers. It’s disturbing.

November 22, 2013 at 10:32 am
(158) Dennis Callahan says:

Wow. I was shocked last night to find my prescription cost jumped 600%. I go to Target and was paying $10 for a three month supply of generic Levothyroxine 125. I had switched from CVS where it was $18/month. Target pharmacist apologized and said costs had skyrocketted. Good ending though … when I mentioned that CVS was cheaper now and insinuated that I’d take my business there she started to hunt over my health insurance and then asked me if I had AAA inusurance (yes the car people). When I showed her that card she took 10 minutes and then said that they could go back to the $10/3mos price!!!!! And she mentioned that they didn’t want me to back to CVS.

November 22, 2013 at 9:00 pm
(159) Indigirl says:

I’ve been hypo since ’09. Never really felt right until a couple of months ago when I tried 88 mcg of Tirosint. Amazing! I had energy, the fog lifted, and I was actually happy. Unfortunately, 28 days of Tirosint is $60 vs. 90 day of Levothyroxine which is $17. I have a PPO and went to Walgreens. I’m back on Levothyroxine, and am tired and sad again. I just read that there won’t be a generic for Tirosint until at least March of 2021.

I’m so frustrated that treatment for this very common health issue has been mediocre at best. I really feel that there is a lot to this disease that is poorly understood, and for reasons I just don’t comprehend, there doesn’t seem to be a great push to understand it . And I really don’t understand why Tirosint has to be so expensive. One can easily feel very lost and hopeless in all this.

December 1, 2013 at 12:01 pm
(160) Vee says:

I had stable thyroid issues for over twenty years before going to the US for grad school–then had all sorts of crazy health issues including asthma, distress, chronic pain, and multiple anemias. Went to France (before realizing the US drugs were the problem) and got treatment for less than $10 per two months with thyroid medications without dye and produced with regulated, stable doses. The generic I had been switched to was identified by my French doctor as the problem–and I had to recover over months. The US generic costs many times the cost of the branded medication in Europe–and it fried my body and mind while I was trying to complete doctoral studies. I don’t have words for how unimpressed I am and for how dangerous I think the situation is. In the course of seven years I was changed between medications at least six or seven times (not to mention generic substitutions that were likely variable). I was not informed and did not consent to those changes. All of the other problems from allergies and asthma to anemias and food intolerances have faded since getting off the pills. The laws in the US set up a bad situation–the pharmacies do not have to inform patients or doctors of substitutions–and the new US supreme court decisions on generics mean that patients can’t sue if something goes completely wrong … as it did for me. Then you had to fight to have it taken seriously — while abroad I was immediately checked for vitamin deficiencies, etc. that were causing nerve pain and brain fog. Wow. Just. Wow.

December 1, 2013 at 1:55 pm
(161) Vee says:

And not to put too fine a point on it — it’s a perfect storm of outsourcing, greed, limited liability, tort reform, ALEC, deregulation, lack of appropriate oversight, and market manipulation that makes a travesty of the hypocratic oath. All I did was take the same pill, at the same time of day, at the same dose throughout. For shame. I want nothing to do with such a system that costs millions their lives, well being, and relationships.

December 1, 2013 at 1:57 pm
(162) Vee says:

Oh yes, and protected with a great deal of patient shaming and misinformation about the illness and how best to treat it. Because if treated well we can be fine and even thrive regardless of thyroid issues.

December 1, 2013 at 2:15 pm
(163) Vee says:
December 1, 2013 at 3:31 pm
(164) Vee says:

And what Big Pharma & Alec get up to state by state – here New York:


December 4, 2013 at 11:12 am
(165) Alan G says:

My Synthroid has been running anywhere from $23-24 a month since the first of the year, 2013. This morning, December 4th, the price jumped $6.50 to over $30! Guess the price increase being talked about finally caught up with me. Curious now to see my monthly prescription insurance report to see how much Humana figures reflect the amount it rose.

December 8, 2013 at 5:49 pm
(166) fitnessgal says:

So it is not the Dr’s fault. The pharmaceutical companies stopped that kickback thing years ago, it is against the law now to pay for trips, meals etc. The reason thyroid meds have gone up is a simple supply and demand. Since the one company stopped making it and you can only get it from a few places now what do you think they did? Raised the price. It is just like everything else out there, when you have a monopoly, they get to set the price!! My copay went up from $4.00 to $10.00 for 30 days. I used to get 90 days for $10.00. In the end it is my insurance company who won’t foot any more of the bill. So if you want to blame someone blame them.

December 20, 2013 at 11:05 pm
(167) Kate says:

Hi Everyone. I took Levoxyl and cytomel for five years and then suffered a thyroid storm that put me in the hospital for almost a month. It nearly killed me. While there I was placed on Synthroid-low dose and overtime it was increased. Hair loss, dry skin weight gain and brittle nails-thank you Synthroid-never had those problems prior to using this thyroid. This month, my new supply somehow contained something that started severe headaches and nausea within 30 minutes of taking it. These increased (blood work normal). Doctor has removed me from the 62mcg daily dose. I am taking nothing as am waiting for the compounding pharmacy to ship my new compounded thyroid (25mcg to start). We were going to go the Tirosint route but just called them this morning and the gelatin they use is made with pork! (am very allergic to it.) Would have been on Armor all this time otherwise. So I told them they should inform the public. How many people have taken Tirosint and suffered symptoms only because of the pork allergy? Hopefully the

December 20, 2013 at 11:11 pm
(168) Kate says:

Hi Everyone. I took Levoxyl and cytomel for five years and then suffered a thyroid storm that put me in the hospital for almost a month. It nearly killed me. While there, I was placed on Synthroid-low dose and overtime it was increased. Then came the hair loss, dry skin weight gain and brittle nails-thank you Synthroid-never had those problems prior to using this thyroid.

This month, my new supply somehow contained something that started severe headaches and nausea within 30 minutes of taking it. These increased each day (blood work normal). Doctor has removed me from the 62mcg daily dose. Now, I am taking nothing as am waiting for the compounding pharmacy to ship my new compounded thyroid (25mcg to start).

We were going to go the Tirosint route but just called them this morning and the gelatin they use is made with pork! (am very allergic to it.) Would have been on Armor all this time otherwise. So I told them they should inform the public. How many people have taken Tirosint and suffered symptoms only because of the pork allergy to their gelatin?

Hopefully the new compounded thyro will work, meantime am at least migraine free-just a little tired and amazingly feeling much happier than have been the past six years on Synthroid. Thank goodness for Bio Identical hormones otherwise this would have been a real nightmare to weather through.

December 24, 2013 at 12:33 pm
(169) steve says:

If only there were safe, effective thyroid medications that were proven to have the same amount of medication as brand name drugs that people could take to alleviate the cost of medications….

December 28, 2013 at 6:48 am
(170) Tired of being F A T says:

I’ve been on Synthroid for a b’zillion years since TT and RAI (mixed papillary and folliculr cancer) and it is the only brand that so long as I take the massive dose I have been on for over two decades, I don’t feel terrible on… but, I haven’t found a doc in St louis that will prescribe Cytomel to go with the Synthroid (my endo and PC won’t, and the HMO doesn’t have another endo). I ended up obese from the thyroid issues and I can’t get rid of the weight, no matter what I do. Because of the obesity, I ended up ith endometrial cancer. I need to get rid of this weight before I end up with another weight-related disease. I understand replacing part of the Synthroid with Cytomel fixes the weight loss/maintenance issue (slowly) without changing lab/serum values.

Does anyone know of a doc in St. Louis that will prescribe Cytomel (dual therapy)?

Is it legal to buy Cynomel from the online Mexican pharmacy without a prescription since no prescription is required in Mexico?

Thank you.

December 28, 2013 at 10:54 am
(171) Sus says:

I take generic levothyroxine and pravastatin, which until recently have been on my pharmacy’s special pricing list. Last month they came off the special pricing AND my cost (for the levo alone) went from $10 for 3 months to $26 for one month. Of course, I have a health savings plan so until I reach my deductible I get a minor discount. Since I work in the pharmacy, I did a bit of research and found that our cost from our distributor has increased substantially. If it is still on anyone’s special pricing list, they are losing a lot of money.

January 12, 2014 at 10:39 pm
(172) Jan says:

I was on Levoxyl for years and did really well. Was switched to generic and did horrible. Can’t take Synthroid. I did some research and discovered there are different manufacturers for the generic levothyroxine. One made me feel horrible – I am now on a generic made by Mylan and doing better, although I still miss Levoxyl.

January 15, 2014 at 11:24 am
(173) BONITA says:

This is clearly market manipulation and taking advantage of all the people with thyroid issues. I was on Levoxyl for years with noproblem and can’t take Synthroid – so am stuck with Tirosint. First couple months were $30 each, pricey but I dealt. The next month the same dosage was $65!!!!! Really? Clearly taking advantage of the currently limited market, they should be ashamed of themselves. As soon as Levoxyl is back, I’ll be on that again – I hope it’s soon.

January 19, 2014 at 1:22 pm
(174) kelly twitchell says:

kjt1962 Any news on the Levoxyl returning anytime soon? It’s the only thing I can take. I have every bad symptom there is some days can’t function mentally it is a nightmare feel like I’m losing my mind at times

January 19, 2014 at 8:31 pm
(175) Sharon says:

According to news report Levoxyl will be back March 2014. After being on it for 14 years switching to synthroid has been HELL!!!! Never have felt so disoriented, cold and foggy headed. Reminded me why after thyroidectomy I tried it and switched all those years ago. I have multiple sclerosis too but this makes that a minor irritation!

January 21, 2014 at 2:56 pm
(176) David says:

Follow the money. It is common knowledge that it costs (did cost) a pharmacy more to fill a prescription of generic thyroid drug than the tablets are worth. Imagine the mega pharms – WalMart, etc. – looking at their cost reports saying “hey!”. How they do it is not the point. They will find a way to make it pay – that’s how business works.

January 31, 2014 at 12:35 am
(177) Chris says:

I have been counting the days till I get my Levoxyl back. I’ve got no thyroid so I’m completely dependent on this stuff. Kaiser switched me to Mylan and I’ve never felt worse.
I’ve done some research. Mylan’s operations are being investigated. The people in production of the pills were disregarding something called a “red screen” that alerts the operator that something in the pills is not quite right.
But wait, there’s more, the COO of Mylan is the daughter of the former Governor of West Virginia (now senator) whose appointment as COO of Mylan included a scandal about her business degree being falsified for political favors by West Virginia University. People at the University resigned, she got promoted.
So at the same time levoxyl and levothyroid become unavailable because of FDA intervention, this new generic Mylan is the only thing I can get at Kaiser. And Mylans stock nearly doubled last year during the time I’ve been taking their horrible product. Check it out, the articles are easy to find, just Google “Mylan investigated”.

February 5, 2014 at 11:51 am
(178) Helen T says:

Shop your local pharmacies for prices just as you would shop for lower prices on your meats and veggies.

Price quotes for generic thyroid drugs at 5 major chain pharmacies in my town ranged from $4 to $18 for a 30 day supply. These were cash price quotes as if no insurance was involved. A cash price quote was easy to get because the often harried pharmacist does not need to enter your insurance info into their system to give you a price. Also, sometimes the insurance price is HIGHER than the non-insurance price; strange but true.

So shop for your prescriptions as you would shop for your food. Prices vary widely.

I also found that all of the pharmacies stocked Armour Thyroid , the product that had once disappeared several years ago is now readily available again.

February 13, 2014 at 1:14 pm
(179) Jan Sturdevant says:

I paid $10 for .075mg Synthroid, 90 pills in August 2013. Now the cost through the same insurance is $75!!! Why and where can I get it cheaper?

February 17, 2014 at 2:54 am
(180) J May says:

I have been on thyroid meds for almost 14 year, and incapacitated for the last 6 years. I have tried Levoxyl, Sunthroid, Cytomel, Armour, Canada’s ‘Thyroid’, and Nature-Throid with horrible results from all. I switched to Tirosint only the other day, after being on a combination of both Armour and a minimal dose of a variety of synthetic t4 only meds. My boolwork showed perfect results at a free t4 at 1.1 and a free t3 at 4.1, but I felt horrible and like my throat was closing shut. I switched to Tirosint a few days back, and I am starting to feel normal after six years of extreme suffering. It costs more, but I am will to pay the price for some quality of life and wellbeing.

February 21, 2014 at 8:48 pm
(181) Patricia Hollingsworth says:

I consider games are being played to make people who have to take
thyroid medication unable to obtain the drugs most suitable and
reasonably priced. Synthroid was never suitable and I lost hair
and gained weight with this drug, Tirosint is expensive and also
i am unable to keep my weight stable. We have lost the most
suitable and reasonable drugs for monetary reasons.

February 26, 2014 at 4:09 pm
(182) carole garrett says:

As of last week. Levoxyl is back ! I had to inform my pharmacist who wasnt aware that it was available so she had to special order it. My daughter who doesnt have a thyroid, re-started 3 days ago but is worried it doesnt feel the same as it did before. Feels more like she’s on Synthroid which made her feel hypo. She’s been taking generic since Levoxyl went off the market & gained 15#. Tirosint felt like Synthroid to her. I’ve been having paipitations on generic. What a roller coaster ! Any one having similar experiences ? thnx

March 20, 2014 at 11:40 am
(183) Lorie Emerson says:

I am changing my treatment to Armour, which does not have the side effects of a synthetic like L-thyroxin. My Dr. who operates a wellness center is treating with natural treatments, vitamins, diet and lifestyle changes, so I will be able to heal my thyroid and get off any prescription drugs. I have learned from Dr.Oz and my own on line research, the dangers of many prescription drugs. A healthy body can heal itself with out causing other illnesses.

April 12, 2014 at 7:51 pm
(184) BT says:

I was put on Tirosint when Levoxyl was recalled. (My hair loss resumed and took another six months to stop. Ugh.) My insurance would cover very little of the Tirosint, so I joined the Walgreens Discount Pharmacy club. I was paying around $96 for a 90 day supply of Tirosint. I paid that price in January. When I went to fill my Tirosint two weeks ago, it was going to cost $232 for the same 90 supply! The pharmacy filled a 30 day supply through my health insurance and it was $70! We called our prescription coverage company (CVS Caremark) and through the mail order they can do a 90 day supply of Tirosint for $120. I checked prices on Levoxyl since it is back out. If I fill it through the prescription/insurance mail order service, a 90 day supply of Levoxyl will be $17.21 and a 30 day supply will be $8.65. I was also told that regardless of what thyroid drug the doctor calls in, unless they stipulate to ONLY fill with the named drug, CVS Caremark will substitute Synthroid. I was told my endo’s office must say “Only fill with Levoxyl. Do NOT substitute another drug.” I googled “CVS Caremark and Synthroid” and found other similar stories. There is something fishy going on there.

I see my endo this week and will be going back to Levoxyl. I am crossing my fingers that it is a smooth transition.

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