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Thyroid Disease Blog

By Mary Shomon, About.com Guide to Thyroid Disease since 1997

Five Reasons You Can't Get Your Thyroid Problem Diagnosed

Thursday August 23, 2007
Many thyroid patients write to ask why it can be so incredibly hard to get diagnosed. "It shouldn't have to be this difficult," Annette R. recently wrote to me. Annette saw four doctors before one was actually willing to test her thyroid. Why does it end up being so tough for so many patients? A few things to think about...

1. Your doctor doesn't know about the recommended TSH guidelines. Back in late 2002, a fairly dramatic change to the TSH "normal range" was recommended. This means that millions of people with TSH levels between 3.0 and 6.0 may be told that they have "normal" TSH levels -- and it's not true. Your doctor may be one of the ones who doesn't know -- or doesn't want to follow the new guidelines!

2. Your doctor failed to test your antibodies. Some practitioners routinely do not test thyroid antibodies -- which can evaluate for autoimmune thyroid disease -- in addition to TSH. They refuse to recognize that even when TSH is normal, elevated thyroid antibodies may cause symptoms and require treatment.

3. You didn't get a complete thyroid evaluation. Did your doctor do a complete clinical examination of your thyroid, including feeling for lumps and checking your reflexes? Did your doctor run the full range of thyroid blood tests -- not just TSH? If not, he or she can easily miss a thyroid diagnosis.

4. It's just time for a new doctor. Sometimes, it's time to wipe the slate clean and start over with a new doctor. You may be struggling to get an appointment or a callback, you can't get test results, the doctor's office has lost your files, or you're dealing with other frustrations. These are just a few signs that you need a new doctor.

5. You didn't get your thyroid tests done at the right time of day. The time of day you have your thyroid tests done can affect the results -- enough that you may be told your thyroid is normal -- when it's not. Unfortunately, this is not something most doctors know, much less tell their patients. What are the guidelines?

Photo: Clipart.com

Comments

August 24, 2007 at 3:56 am
(1) Jolene says:

so what are the guidelines-the time of day when you get the most accurate thyroid test results> your link doesn’t work.

August 24, 2007 at 6:47 am
(2) Dorothy says:

Before treatment, my TSH was 3 times as high in the afternoon as in the morning. My guess is that activity level raises TSH in a diseased thyroid because the thyroid has to work harder but needs as external boost. Maybe that’s what they call your “second wind.” I wouldn’t be surprised if eating has a similar effect.

August 24, 2007 at 8:05 am
(3) Sue says:

What is the best time of day?

August 24, 2007 at 9:34 am
(4) Phyllis says:

What is the best time of day, your link did not work for me either.

August 24, 2007 at 9:45 am
(5) Kim says:

What is the best time of day, your link doesn’t work for me either.

August 24, 2007 at 10:22 am
(6) Delores says:

What are the guidelines? The link is still not working. Please e-mail this again when you get the link working.
Thank you for all your info.

August 24, 2007 at 11:10 am
(7) Jane says:

I have also tried repeatedly also to open link about time of day for testing

August 24, 2007 at 11:37 am
(8) Mary Shomon / Thyroid Guide says:

SORRY!!! EEK…html error.

It’s http://thyroid.about.com/od/gettestedanddiagnosed/a/tshtests.htm

August 27, 2007 at 4:30 pm
(9) Denise says:

Ihave struggled to get diagnosed for 18 years. I even went to an endo who supposedly specializes in thyroid. She tested my antibodies & even though they were high (& I had symptoms) she said they weren’t high enough so no treatment! Thank you Mary for your website, newsletter & books. You have kept me going!

August 29, 2007 at 10:39 am
(10) karin says:

I recommend the book ‘Solved The Riddle of Illness’ by Stephen E. Langer M.D. that explains in depth the problems associated with thyroid dysfunction. I obtained this book at a health food store and has been a valuable source of information.

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