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Mary Shomon

Hives Linked to Autoimmune Thyroid Disease

By July 19, 2004

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Research reported on in the journal Dermatology found that the frequency of thyroid autoantibodies is significantly higher in patients with chronic urticaria (hives) than in healthy controls. In the study, all the patients with thyroid autoantibodies had so-called "normal" test results. Researchers concluded that there is a significant association between chronic urticaria and thyroid autoimmunity, but only the thyroid antibody tests are relevant in patients with chronic urticaria, versus thyroid function tests.

GET MORE INFORMATION ON HIVES AND THYROID DISEASE

Source: Verneuil L, et. al. "Association between chronic urticaria and thyroid autoimmunity: a prospective study involving 99 patients." Dermatology. 2004;208(2):98-103.
Comments
January 21, 2008 at 4:30 pm
(1) Mary says:

This is how I was diagnosed with Hashimoto’s!!! After battling facial and neck hives for over a year, an allergist found the cause-high levels of thyroid peroxidase antibodies. I do not have these now that meds are regulated, but I have other issues!

March 20, 2008 at 11:08 am
(2) heather says:

Mary
How did they regulate the hives? I have had hives for 8 years due to thyroid antibodies, but nobody can get rid of them? I am now pregnant and have only been able to use chlortrimeton and zyrtec 3x per week. Any suggestions

August 18, 2008 at 6:14 pm
(3) pam says:

I am battling hives for about 5 weeks now. I had them once before about 10 to 11 years ago. I am also gaining alot of weight I dont know if it is the benadryl the hives or my thyroid . My mom was diagnosed with Thyroid problems around my age.I am 38 years. I have also been having strong periods and I had a very bad Migrain headache about 4 weeks ago which I never get. Could I have thyroid problems. Im desperate to get rid of the hives

August 22, 2008 at 4:04 pm
(4) Lynn says:

I have Hashimoto Thyroid with hives (autoimmune). My allergist sent me to South Carolina to Dr. Kaplan (who is now retired). When I have a breakout of hives I take the following drugs: Atarax, Zyrtec, Zantac and Prednisone. Usually after a day or two the hives are gone.

August 25, 2008 at 1:30 pm
(5) sandy says:

My hives have nearly dramitcally lessened since I was switched to 2 50M (white) tablets of levoxl instead of the 100 m which was yellow. I also started taking Quercitin once a day around the same time.
When I do get hives I put a baking soda paste on them and the itch goes away.

August 26, 2008 at 1:18 pm
(6) Chelsie says:

How much of the atarax, zytec, zantac and prednisone do you take? I have been having hives because of the thyroid autoimmune and I am taking zyrtec, claradin, and pepcid and they are not going away. They can get so bad that my throat swells as well. Zyrtec used to work great all by itself and now I feel like nothing works.

August 26, 2008 at 4:19 pm
(7) Jana says:

I have Hasimoto’s and recently broke out in hives for about a month. I was also having lots of other hypo symptoms, but because they came on gradually, I was ignoring it. Now I’m taking my temperature 3x a day, upping my dose of Armour, and taking supplements. Something that really helped was colloidal silver – 1 tsp 3x a day under the tongue. Plus if you rub it directly on the hives as soon as they crop up, it will settle them right down. Vitamin C, probiotics, and fish oil too. Pay attention to your symptoms, & take your temp!

September 1, 2008 at 12:03 am
(8) Becki says:

My sister has been battling disfiguring hives for 14 years now, and although she has seen many doctors who tell her it is a thyroid problem, no one seems to be able to do anything. She has been on corticosteroids and every antihistamine in creation. Any advice?

October 5, 2008 at 12:36 am
(9) Cam says:

Hi, i have had hives for over 25 yrs. Currently am 32 yrs. old. I have been to over 11 specialist who have all thrown their arms in the air with no theory. My personal theory is hormonal. Although, I have no proof, my sister has thyroid disorder and I have never tested outside the normal range. I have learned to live with the disease but, with a career and sometimes looking disfigured it is difficult. Ironically, when pregnant twice, i I didn’t have hives. I live off of steriod shots and packs. Try spraying spray starch on itiching hives, this seems to work for me. I pray my children (3 & 1) do not inherit this disease. I have learned to live and hold a career and fortuntaly, do not have hives in my adulthood but once every year or so. I currently work in a cancer hospital and realize this disease is nothing conpared to what I could have. …….smile!

October 17, 2008 at 9:56 pm
(10) Eileen says:

I agree with Cam. Hormones. My hives started after my daugher was born and only from ovulation until the first day of my period. I would have them for several hours each day really bad. Even with photos of my breakouts the doctors looked at me like I was crazy. Four years later I was pregnant again. No hives for 9 months plus the time I spent nursing. Then Bingo, they returned when I stopped nursing. 10 years later I was diagnosed with thyroid disease and by that time had hives 24/7 unless I took antihistamines (thank God they work for me). I do have to say that now that I am nearing menopause I feel the hives are less intense. In my case it just doesn’t make sense that hormones wouldn’t be involved.
Good luck to all of you who suffer with chronic hives.

December 2, 2008 at 8:41 am
(11) JYR says:

I have had several episodes of chronic hives in my life, which last for several months. I believe that they are triggered when I get some sort of viral infection (a cold, for example). But, not all viral infections trigger the hives. For the most part the hives are manageable with Zyrtec. Several years ago, a doctor finally figured out I have very high levels of a thyroid autoantibody. My TSH levels were normal. He treated me with a very low dose of Synthroid (thyroid replacement). He had to increase the dosage a few times over several months, until the hives were finally stopped. Then, I could stop taking the Synthroid, and the hives did not return. I had no problems with hives until 6 weeks ago, when I got another cold that triggered the return of hives. Now, I’m back on the Synthroid. A lot of doctors aren’t familiar with this treatment, and may not be comfortable prescribing Synthroid if your TSH is normal, but it works, and there are scientific papers proving it.

December 6, 2008 at 10:08 pm
(12) Erika says:

Wow! I have so many symptoms similar to many of yours. I’m on my second bout of chronic hives. The first last about 14 months and I determined that it was Zyrtec that was causing the problem. Now about 2 years later, they’re back. I have Graves Disease, I have a complete hysterectomy about 5 years ago (so that put me in automatic menopause at age 33). I’m on Synthroid. Now, just about everything that I take gives me hives, Claritin, Clarinex, Lipitor, Crestor. I’m getting frustrated, and thought that maybe the hormonal imbalance may be causing the problem or maybe even my thyroid. My endocronlogist just tells me that my immune system is changing…what does that mean!?!??!

December 30, 2008 at 9:46 pm
(13) Kim says:

Erica,
I’m so glad i found this page! I’ve had hives for almost two years. I was diagnosed with hypothyroidism when i was 3 and had my thyroid removed. I have been on synthroid all my life. Two years ago i started getting hives. After months of testing, a MRI found a tumor on my adrenal gland, which was removed last summer. the hives went away for a few monts, then came back. My endo doctor then recommended an ultrasound of my neck and abdomen, and found enlarged lymph nodes on the right side of my neck ( which i had removed htis past summer)…..
NOW THEY’RE BACK AGAIN! Has anyone on here had cysts or tumors as well?

January 22, 2009 at 9:46 am
(14) Monet says:

I spoke to someone recently who told me that it is hormonal…an alternative doctor. He said that the hormones in your body are out of balance….thyroid, female hormones, and possibly adrenals.. You need to have all of your hormones checked and look at the labs yourself. Doctors can and will tell you that your labs are normal when they are borderline…too high or too low… In that case if you have symptoms, you should really be treated… Usually Alternatives, DOs, or Naturopaths will treat even when in “normal” range.

February 15, 2009 at 1:13 pm
(15) Lee says:

To all,

Please be very careful when taking Prednisone for your hives. My daughter was given the drug for an extreme case of hives and have a terrible reaction to it. Prednisone is documented to cause some people to display Cushing’s Syndrome symptoms. My daughter has just been through this. She gained 40lbs in a month and started retaining incredible amounts of water and has been to the ER at least twice in the past month. PLEASE be careful.

March 12, 2009 at 1:35 pm
(16) Chantal says:

I am so happy to have found this site. I started getting hives 6 months ago, ironically within weeks after starting a new birth control pill (which I had been off of for years). Maybe that is what threw my hormones out of balance. I only took them for one month due to the hives (and facial swelling) but the hives have not gone away. A recent blood test showed more than double the normal amount of thyroid antibodies. I am making an appt with an endocrinologist. We’ll see!

March 25, 2009 at 11:29 pm
(17) Mandiy says:

I’m so sorry that you’ve all endured this, but so glad to find you all here. I’ve been dealing with hives now going on 4 weeks, I have no health insurance so I’ve been to the ER 4 times, the last time because my face and throat swelled so bad that I couldn’t breath. But because of the no insurance, the treat me, send me on my way and tell me to watch what I eat. So I’ve been tryig to figure all this out on my own. I’ve had Hashimoto’s thyroiditis for over 16 years and reading all of your comments makes me feel like I’m not going crazy. I have been afraid to eat because no matter what, I end up with hives. I currently take 250mg of levithroxin, but my levels haven’t been checked in about a year. Now at least I have hope that I’m not just allergic to everything. Thank you so much for sharing.

November 12, 2011 at 12:43 pm
(18) Phyllis says:

I get facial swelling too. It comes on if I eat any processes foods with preservatives. Nitrates, Nitrites. Etc.

April 6, 2009 at 10:10 pm
(19) Kerri says:

Hi All- anyone have cold hives? Ive had them on and off for the last 7 years and nothing seems to be helping. Ive taken Allegra, Claritin, Zyrtec,etc… nothing is working. The strangest thing is that Ill have the hives on and off during the day and then they go away at night. Once I get up in the morning I am hive free and then slowly, but surely they return. It is so frustrating!!! Anyone ever take Periactin and had it work?

October 1, 2010 at 10:28 pm
(20) marlanea says:

Mine are oposite, I only get them at night , then they go away durring the day.

June 13, 2011 at 11:06 pm
(21) iryna says:

mine too,i get them closer to the night. and sometimes wake up covered in hives. it’s been only 2 weeks. and i’ve never had them in my life before. feel like i’m going crazy. i’ve been diagnosed with Graves’ disease few months ago and been taking Tapazol since. last 2 weeks were a nightmare. going to see my endo doc in 2 days…praying for help!!!

November 13, 2011 at 10:50 am
(22) Sarah says:

Wow, someone else who is allergic to the cold!

I have had cold urticaria since I was a child. Never had ANY doctor even suggest that it might be due to a thyroid or other hormonal imbalance. Even dermatologists. I even had an anaphylactic reaction once so bad that I thought it was the end. Around the age of 20 I realized that antihistimines may help (NO doctor suggested this, they only suggested I buy an epi-pen!) and I started taking reactine extra strength which you can get a prescription for in Canada but only if you ask FYI. One dose usually works for two days, and I only take it when I am going to be outside for long periods of time. I developed a tolerance to the reactine and so switched to other antihistimines on and off but reactine works best even though I have to take two extra strength now in order to go swimming and avoid anaphylaxis. I am now 32 and my wonderful naturopath found that I have thyroid antibodies and my hormone levels are all out of whack. I also have endless symptoms of thyroid dysfuntion dispite being the healthiest person I know…After reading so many testimonials including one from a good friend who had the exact same cold allergy that went away after her thyroid was regulated, I am SURE they are related. YOU really have to be your own doctor!

April 25, 2009 at 11:11 pm
(23) mcc says:

I started experiencing extreme angioedema and hives about three years ago. I could find no trigger and several specialists were perplexed. Finally I was diagnosed with high autoimmune thyroid antibodies. After Prednisone and kenalog did not work, I was started on levoxyl. My exact cocktail consists of 1200 mg of Zyflo (the only drug of its kind – look it up, it works) twice daily, 10 mg Zyrtec once dly, and .25 mg of Levoxyl once daily. No hives or swellings since I started this combination. I have noticed that if I am on my period AND get a sinus or viral infection the combination makes me susceptable to hives. I stopped birth control because of this sensitivity. Sometimes around my period I might get slight swelling of my left ankle. I have since found that salsa, chinese food, and alcohol can also be triggers, so I stay away from them. I give Zyflo a lot of credit, so please look into it. Don’t take steroids if you can avoid it.

May 17, 2009 at 11:25 pm
(24) valerie says:

This is so comforting. I just discovered that I have anti-thyroid antibodies (TPO-Ab level of 149 and TSH between 4.39 and 5.06) and was put on 50 mcg of synthroid (generic). I have also been suffering from hives for probably 16 years–started on my neck and now they are usually on my face–I get them several times a week, sometimes multiple times in one day, sometimes they’ll go away for a while and return. I’ve tried to figure out what causes them but there’s no definite pattern, except that I get them almost consistently around the time of my period and sometimes mid-cycle. They were really bad both times I got pregnant, but then subsided. Unfortunately both pregnancies ended in miscarriage, which is why I was tested for thyroid problems. Anyway, I have been using oral and cream antihistamines for the hives. It doesn’t keep them from happening but it relieves the intense itching. I would be soooo thrilled if this thyroid treatment meant no more hives!!! I had a suspicion as well that it might be hormone or autoimmune related.

October 25, 2010 at 10:54 pm
(25) Joann says:

Valerie Sorry about your m/c’s. Have you considered adrenal fatique. Your morning coritsol levels should be above 15. Hydrocortisone is a natural product that can be considered. Hashimotos is not a thyroid disease, it is a autoimmune disease, vitamins that improve your immune system are critical (vit. D3).

May 24, 2009 at 3:02 pm
(26) Betty says:

I was diagnosed about 17 years ago with Hashimotos thyroiditis, and have been on synthroid since then for treatment of hypothyroidism. For the past couple of years I have had periodic episodes of severe hives, usually on my thighs and forearms, occasionally on my trunk and face. I have been treated with steroids and antihistamines for the severe outbreaks, and don’t want to go back to steroids. Non-drowsy Claritin works sometimes, but I find Zyrtec makes me extremely tired and unable to function during the. My hives occur during the night and usually accompanied by my body feeling feverish. They disappear during the day. Has anyone found a specialist that can help with this? Any vitamin supplement regimens that work?

May 26, 2009 at 1:09 pm
(27) mary says:

Betty, I have very similar symptoms.

Hives come on in the morning. I take Benedryl all day. By evening they are better and then, between 8-11pm they start up again, sometimes very bad.

Worst locations, hands, forearms, legs.

I just got thyroid test results showing high antibodies, high TSH, but normal Free t4.

I don’t know what to do, but your problem is so similar to mine.

June 17, 2009 at 11:44 pm
(28) max says:

I, too had horrible hives. I had to have a lab work that was for a specific antibody, not my regular thyroid workup. There is only one lab in this section of the my state that tests for this. I tested positive. My doctor then raised my dosage of syntroid. This seems to work for me. If I do itch, I take Zyrtec. BTW, before I was diagnosed, I was taking prednisone and atarax for the hives. It was determined that I was having an allergic reaation to ATARAX!

August 6, 2009 at 11:14 am
(29) Dee says:

Anyone ever hear of Autoimmune Progesterone Dermatitis? After having hives for over a year and thinking it was hormonal, I found this “disease” on the internet. Google it – it is a real diagnosis. My doc is treating me with a low dose of estrogen and the hives have disappeared! I am estatic. I wonder how this is tied into the thyroid–mine is enlarged but my TSH is “normal” 4.12. I’m waiting for the results of a thyroid ultrasound. I’m just glad I researched my symptoms, had a doc that would listen to me AND prescribe something. Good luck everyone. Hives SUCK.

September 1, 2009 at 6:29 pm
(30) Debbie says:

I have had hives now for 10 months, every day. Mine are dermagraphic and pressure sensitive. I was diagnosed with autoimmune thyroiditis. I’m on 100 mcg of synthroid every day, Allegra in the AM so I can function, 150 mg of Tagamet, I take Zyrtec at night. I have gained 20 lbs in 4 months. I am so tired all the time. Stress either emotional or physical makes the hives worse. I’ve been on increasing doses of synthroid for 5 months, no improvement in the hives. How long will it take for the hives to go away!

October 19, 2009 at 2:21 pm
(31) miranda says:

im 21 and i have been having hives for about 3 weeks now and its got so bad at time that im braking the skin. i have been taking benedrill but because i have stomach problems all the time the benedrill is starting to hurt my stomach. im not alageric to anything and my mother did have her thyroid taken out. can anyone tell me if my thyroid is the problem??

October 27, 2009 at 4:40 pm
(32) Cristina says:

Miranda, it sounds like you might have thyroid issues- it runs in the family. I’m so glad I found this site, i thought I was going crazy. I’m 27 and have been experiencing hives on my neck and face for the past 6 weeks. At first i thought i was allergic to food and couldn’t figure it out. When the hives got worse I lost my appetite and became extremely frustrated. My hives started on my chest then cleared up with benedryl, they came back more severe but on my neck, then continued to break out on my face. After doing some research and finding that I’m not alone I’m finally going to a doctor since my mom was treated for thyroid issues about 15 years ago. Good Luck to you all! right now i use aveeno creams or vaseline to get rid of the itch and keep the moisture. I’ve noticed that my hives become more irritated during the day and start to clear up when I sleep. Heat and stress make it worse. If I find something that keeps the hives away I’ll let you all know. Thank you to all for your advice and support.

October 31, 2009 at 4:08 am
(33) EM says:

*If you take birth control pills and have hives read this:About 5 years ago I started having hives and eyelid swelling everyday. When they first started I began taking Claritin to try to make the hives go away. Eventually I realized the claritin made them worse as did zyrtec and benadryl and other antihistamines. Prednisone helped but it can be harmful with prolonged use. Lab tests revealed I had subclinical hypothyroidism (high TSH, normal t4). I also had an enlarged thyroid gland and positive test for TPO-ab (thyroid antibodies) which my doctor said means I had Hashimoto’s thyroiditis. I was started on Synthroid and the hives improved but I would still get them occassionally especially if I took any kind of medication (tylenol, vitamins, sinus medications, etc). After several years of this I stopped taking birth control pills that I had been on for over 10 years. My doctor checked my TPO-ab again and the levels had returned to normal after stopping birth control pills. I still take synthroid and I will sometimes still get hives but not nearly as often. I have read about a link between estrogen levels and Hashimoto’s thyroiditis. So if you have chronic hives and can’t figure out why I would try taking as little over the counter medications as possible and see if that helps. If you are on birth control pills I would talk to your doctor to see if you could go off them for awhile and use non-hormone birth control for awhile. I don’t know if it will help but if I had been told that years ago I could have saved myself a lot of frustration. Best wishes!

November 4, 2009 at 6:06 am
(34) DL says:

I have been treated fro Hashimoto’s for about 6 years- slowly increasing Levoxyl as blood tests indicate the need. About 2 months ago I started coughing, sometimes to extreme. My doctor isn’t sure if it is postnasal drip from allergies or if it is a flare-up of GERD. Anyway she gave me an inhaler for the coughing spasms. I think the abuterol inhaler triggered hives and now I have them even though I am not using the inhaler. This forum is the first that I have heard that Hashimoto’s and hives are connected. Makes sense to me as I was told once a person has an auto-immune disease they are likely to get more of them. aggghhh!

November 9, 2009 at 12:52 pm
(35) AnnaLore says:

I have hashimoto’s and hives. I’ve been working with a naturopath on treatment. You have to treat the root of the problem which is something you’ve eaten your whole life is intolerable to the body and now your immune system just can’t cope anymore. I was tested for food sensitivities and dairy and citrus are the main culprits. I am off of both as well as wheat, peanuts and almonds. That has helped. I take Thyroid Plus and selenium. The hives come when I have anything with citric acid in it – the preservative, which is a derivative of a mold called niger aspergilas, is in most preserved foods. Read labels.

Also, you have to work on hormone imbalance so I take Progestomend from Douglas Labs and adrenal support. I’m just starting to understand the relationship to adrenals of this disease. You have to treat all these areas as they are interrelated and contribute to re-balancing your system.

For the hives I take Multi-B vitamin (Thorne) and AllerC along with a tincture of milk thistle and the hives subside. I have to watch what I eat like a hawk and ask questions in restaurants. The worst is airplane food. They wash their vegetables with a citric acid wash. It takes days for me to recover and sends my whole system out of balance again.

All the supplements I listed are to support the body to create its own balance again. I won’t take chemicals like anti-histamines and synthroid etc. because they just mask symptoms not help my body to correct the imbalance. I highly recommend using a naturopath for Hashimoto’s since they work in a much different way than traditional doctors. My blood work proves it. TSH went from 27 to 6 and Anti tpo from 570 to 120 and continuing to go down.

best of luck to you all.

December 21, 2009 at 7:53 pm
(36) stephanie says:

I have had hives for 5 months now…My doctor said my thyroid is normal but I have an autoimmune disease that is producing an antibodies in my thyroid… I have tried everything… zyrtec, allegra, singular for antihistimines. I have been on prednisone everyday for the last 5 months and have gained 20 lbs. I take hydroxine at night for the itch. I have been seeing my regular doctor as well as an allergy specialist for this issue that has taken over my life. Today my doctor prescribed me to synthroid in hopes that it will make a difference. I have been on birth control for years, I think im going to stop taking it and see if it will help. At this point I will try anything to get rid of them… The prednisone is the only thing that seems to help but its not healthy and I cant stand the weight gain. I may try to schedule an appt with an endocrinologist but Im not sure any doctor really knows how to cure this, only mask the symptoms. please let me know if you come up with anything

January 3, 2010 at 2:16 am
(37) Terri says:

I have Hashimoto’s AND I get chronic hives too. I have been to allergists and dermatologists. I went to see Dr. Kaplan in S.Carolina and he prescribed a great cocktail of meds that allowed me to go off predisone. I was taking 25mg of Atarax, 3 times a day and two at bedtime, one Singular at night, and one Xyzal in the morning. When they would gradually start going away, I would start cutting back on the meds a little at a time. After all the doctors I’ve been to, I have finally been to a great endocrinologist and she told me it’s my Hashimoto’s thyroiditis causing my hives. She has other patients with the same problem. I go through phases of hives that can last 3-9 months. Now that I know how to take my meds, I don’t feel so helpless. I take 175mcg of Levoxyl and I don’t have hives right now. All I know is my thyroid is causing my hives. I haven’t found that adjusting my thyroid meds will get rid of the hives. The biggest thing is I don’t feel so hopeless anymore.

January 4, 2010 at 12:21 pm
(38) Sandy says:

I have had hives (on my skin and also my throat/tongue) for more than 20 years. Sometimes it is after I eat hot spicy foods; however, most often it is when I have been way too hot, and then cool down too quickly (think shopping in a hot store with your winter coat on, then going outside into the frigid cold of winter). The hives can be controlled by allergy medication, but not the diarreah/wheezing that also occurs. I am also taking levoxyl for my thyroid.

January 12, 2010 at 7:04 pm
(39) Shari says:

I’ve been getting chronic hives since the birth of my son 6 years ago. My grandma, mother and sister all have Hashimotos Thyroiditis. Although I told my doctor this for years, she kept telling me my thyroid levels were normal, but it turns out she only ran one standard TSH test each year. Finally, in total desperation I went to an allegry specialist. I had so many itchy hives that it was impacting my ability to do my job. She did a standard panel of allergy tests on me and when almost all came back negative, she ran several thyroid tests. BINGO-high level of thyroid antibodies! She put me on a low dose of Synthroid which has worked well overall. The hives are back and I may need my dose adjusted, but all my other hypothyroid symptoms have almost disappeared. I am glad to have found this website because I will try some of the suggestions here. In the mean time I am going back to the doctor to see if my medicine needs to be adjusted. I am so thankful for my allergy doctor and so disappinted in my regular doctor. Even knowing my family history and many other thyroid related symptoms I told her about over the years, she didn’t pick up on it.

January 15, 2010 at 11:42 pm
(40) Danielle says:

Hi everyone!! Sooo nice to see I am not the only one suffering with this irritating issue! I as well have Hashimotos with SUPER high thyroid antibodies. I get my hives only when I am in the sun for too long which sounds not too bad except for the fact I live in AZ:( Anyhow I have been on synthroid and levoxyl for years and even with stable some time and it doesnt seem to make any difference. Good luck to all of you!

January 18, 2010 at 3:40 pm
(41) hivesmama says:

Hi, I have a 7 year old daughter that has cronic hives. They started when she was 2 and she would break out every 4-6 months on the dot! within the last year they started popping up more and more. It seems to be only at night so we think it maybe when she is over tired. We have done what seems like everything to figure out why. She has no alleries (after being tested for everything). Reading on here it seems it’s linked to thyroid or menstral cycles. However my daughter is far from menstration. Could she still have thyroid issues at her age?? We have no medical insurance so I am trying to figure it out before we absolutly have to go in to the Dr. Benadryl works for her breakouts really well, it takes them away for an entire day, but night fall they come back, or maybe even a day or two will pass then she breaks out again. Any thoughts??

Thanks!
Frustrated mom

September 10, 2010 at 9:32 pm
(42) Gina says:

Hi.
Thank you for this web site. I thought i was alone in the world with hives and Hashimoto`s. 2yrs. I found a great Endo. Dr says i have this . not so happy – says no cure – antihistamine only thing might controle it . and myself and mind over matter. However having great sex keeps my hives down. Love the ones you love. It helps – kids,all family, lovers n all.

January 18, 2010 at 11:59 pm
(43) JC says:

to Dee:

4.12 is not a ” normal ” TSH level. 0.5-3.0 is now considered normal range. You are a bit high. That is probably why your thyroid is enlarged.

January 20, 2010 at 3:38 pm
(44) Jenny says:

So sorry for all the hives suffering out there! I have Hashimoto’s and several long periods of chronic hives (EVERYDAY, lasting for months to a year and a half). I believe that my thyroid is the underlying cause. When I have hives, its like an “on” button is switched and I become ultra-sensitive to ALOT of things. I did some bloodwork during my last outbreak for food sensitivities and found a whole list (milk, wheat, eggs, yeast, avocado, cranberry, etc. etc.), which I have eaten for years with no problem. My Naturopath doctor said that Hashi’s patients tend to have more food sensitivies. So for now, I will avoid those.

I have read the study about the link between Hashi’s and chronic hives and how taking Synthroid/Levothroid/basically a synthetic T4 only pill will help. But for some of us, we have problems converting T4 to T3. During my last outbreak of hives, I switched my thyroid meds to Naturethroid (same as Armour and is natural dessicated thyroid and has T4 and T3), and after about 2 months (it takes awhile for your body to adjust to the new meds), my hives disappeared. Several months later, still with no hives, I checked my thyroid and had a TSH of 12 but still with a normal range of FREE T3 so I didn’t feel the hypo symptoms as bad. Looking back I should have probably just increased my dose of Naturethroid, but my “old school” endo talked me into going back to Synthroid (T4 only). Low and behold…my hives returned after 2 months, with a TSH of 1.75 and a MUCH lower FREE T3. I felt awful…and jittery. So its not just about TSH. Your FREE T3 and FREE T4 values are what really affect the hypo symptoms and the hives. At least, I’m testing that theory now. I still have hives but they have been much better as I wait for the NDT to help.

In the meantime in order to deal with hives and live my life, I take 10 mg of Zytec in the morning and at night, along with 300 mg of ranitidine (Zantac) at noon and bedtime (make sure NOT to take this in the morning with your thyroid because alot can interfere with your thyroid meds, especially antacid). The ranitidine really helps me with the angiodema (puffing). I take 2 Benadryl throughout the day if I need it and at bedtime. And I’ll take 2 Atarax(hydroxyzine) if I’m really itchy, but this one makes me tired and feel more brain foggy (if that’s a word! LOL). I also try to drink lots of non-fluoridated water, and did a few “cleanses” with herbs like milk thistle to try to eliminate toxins. I have just started taking an “adrenal support” pill since my saliva cortisol levels were abnormally high, but that is probably BECAUSE of the hives and my body is in overdrive to fight the inflammation. I’m just starting to read up on the adrenal connection with all this. I hope this helps…:)

January 22, 2010 at 8:35 am
(45) Nancy says:

I had my thyroid removed 2 years ago due to a huge goiter. I’ve since been diaganosed with Autoimmune hashimoto’s disease. About a month my surgery I broke out in hives and have had them ever since. I saw both a dermatologist and an allergist. They both diagnosed me with autoimmune chronic Urticaria. let me tell you, it SUCKS! If anyone touches me, I break out in hives. It hurts not to be able to get hugs anymore, but if I do, my back breaks out if they rub my back. I still take the hugs from my kids, because to me, it’s worth breaking out from them! If I can manage not to scratch, they will go away in about 15 minutes. They hit my back the most, but also my neck, arms, legs EVERYWHERE has had hives at one point. It’s brutal. I take allegra every day and that helps. I do wish they’d find a cure. But I don’t see any telethons for this ailment!

January 28, 2010 at 1:25 am
(46) linda says:

read all stories i have hives for 20 years and did my own research because doctors will not take time to investigate all tests came back negative for autoimmune but a positive ana which i think is because my immune system is in heighten mode well i discovered that the hives are due to a reaction to HEAT i stay out of heat at all costs no stores no beach no blankets at night keep temp down to 60 degrees and hive go away summer is the worst outdorrs and winter is the worst indoors i balance my day around the temp can not work can not take hot showers benadryl atarax and singular take itch away but not the hives or angioedema believe that i am having symptoms of anaphylaxis very mild but very worried that if i am trapped in heat i will die does anyone have same

March 5, 2010 at 8:27 am
(47) Vicky says:

Linda, I live in England where we only get a few days of hot humid temperature a year and I thought I was dying last year during weather spell. Because of this I’m investing in some form of air conditioning just for those times. I’d rather do that than spend money on a holiday & hope it offsets my carbon footprint!

March 12, 2010 at 1:41 am
(48) GP says:

So glad I found this website, it’s answered a lot of questions. I first broke out in hives about a month ago. I am 25 years old and had never had this happen to me. I had a TB test done about 6 months ago for work related stuff and the nurse said it looked like I could’ve tested positive but that it wasn’t too bad so she marked it as negative. If it was positive does that have to do with the thyroid? Ever since I broke out a month ago I’ve gotten them almost everyday. Some worse days then others, the itchiness is irritating me! I mainly break out in my back really bad and some on my neck and I’m starting to itch on my face and legs. I’ve taken benadryl and it seems to help but they keep coming back. I don’t know what else to foo, this is getting very frustrating!

March 12, 2010 at 2:35 am
(49) Lizard of Oz says:

I had severe constant hives from early June to mid September. After seeing my doctor several times and a dermatologist several times, I got prescriptions for steroids and other stuff that only reduced the hives for a short time, and wound up with a fungal infection as well. In September, on the fourth visit to the dermatologist, she finally realized I was hypothyroid. She said many people with hives have thyroid problems, and that the hives go away with increased thyroid drugs. Said I should have a test to see what levels I currently needed. Knowing my body reverses most drugs, I tried STOPPING my thyroid drugs (Levothroid and Cytomel). Within two days every hive DIED and never came back. Went back on the thyroid drugs on the third day. Never had another hive since then. So consider increasing or decreasing thyroid drugs for hive treatment.

March 14, 2010 at 9:26 pm
(50) Natalie says:

I have now been suffering chronic urticaria and associated extreme chest pains for 2 months. I feel like I can no longer go on! It all started with a miscarriage and subsequent infection after a D&C.
I went on antibiotics after the second D&C and was taking a variety of natural supplements. After a shock one morning of finding a spider on my head, the urticaria started. My GP kept diagnosing me with stress and anxiety and giving me pain killers and valium. He told me the urticaria would go. it hasnt.
I am on high dose antihistamines to control the hives which come back every time i forget a tablet. However the chest pains have not subsided. I feel like Im having a heart attack. Am going to an Allergist soon, however my TSH was in normal range (on the very lowest value of the normal range).Do you think this could still be a thyroid problem? I have lots of allergies and carry an EpiPen. I think my immune system is stuffed.

April 17, 2010 at 6:51 pm
(51) Liz says:

I had severe hives for over a year (Feb 2009-Feb 2010) and am now completely hive-free.

I tested negative for allergies to anything and had extremely high levels of anti-thyroid antibodies, but normal thyroid output. Tested negative for celiac disease, and am an otherwise extremely healthy 23 yo female.

I tried every anti-histamine on the market, prednisone, and zyflo. The hives kept getting worse and the immunologist, gp, endocrinologist and gastroenterologist all told me they could do nothing for me.

I found several medical journal articles through google searches and message boards that referenced two small studies that gave patients like me (severe hives, no medication had any effect, anti-thyroid antibodies) 100 mcg of Synthroid, and for those that didn’t respond to this, 200 mcg of Synthoid.

For me, 100 mcg of Synthroid mildly affected the hives. I begged my gp to let me try to increase the dose to 200, just to see if it helped. We started by increasing the dose to 150mcg, and within two days my hives were completely gone.

None of the doctors and specialists I have been to (I live in Manhattan) have been able to explain this, but I’ve been hive-free for almost three months and I feel as if I have my life back. I weaned off the prednisone a few weeks ago and I feel infinitely better.

As a side note, I have become slightly hyperthyroid as as result of the over-replacement of thyroid hormone, but have not had any side effects. Obviously, this is better than suffering from hives, and in the long term my doctors hope to decrease the Synthroid dose slightly.

I hope this helps someone. I know how terrible and life-changing (for the worse) hives can be, especially how frustrating it is to be told that no one can help you. This is corny, but advocate for yourself- the doctors won’t do it for you.

May 6, 2010 at 1:06 pm
(52) mbagirl00 says:

I have had chronic full-body hives (think torso, arms, legs, head, face, neck, chest, soles of the feet, palms of the hands) since August 2009…and severe angioedema since November 2009. My hives and angioedema go away with a Prednisone shot, but as others have indicated, this is not ideal. I am on Allegra (am) and Atarax (pm), which doesn’t really seem to work when I have a severe outbreak.

My allergy/immunology doctor tested my thyroid levels and I am normal except for having high thyroid antibodies. He stated that I may have either Hashimoto’s Disease or Graves Disease. After doing some research, it seems that I have many of the symptoms for Graves Disease (hair loss, hives, joint pain/swelling, etc.). And I learned that the most common cause of Graves is EXTREME STRESS. I have been under a lot of stress for over 2 years; however, the greatest stress occurred from Feb 2009 to May 2009: pregnancy, miscarriage, job loss and canceled wedding. The hives started 3 months after all of the above, but the day before I turned 44. As mentioned above, I have had hives for 9 months now. There have been occasions when the hives dissapate and are gone for several weeks; however, I have noticed a distinct link to stress. If I get stressed for any reason, the hives return. I have also noticed a distinct connection to drinking any type of carbonated drink.

I will be seeing an endocrinologist in the next few weeks and I am hopeful that my problem will be solved.

May 13, 2010 at 1:57 pm
(53) aquagirljess says:

I started with traveling hives about four weeks into my treatment for Graves Disease. I call them this because they pop up for about 30 minutes to an hour and aren’t particular to one place on my body. I’ve been taking PTU, which no one seems to think that the PTU is causing the hives, not even the pharmacist. It’s so discouraging to read that hives can be both a side effect, an allergic reaction to the meds and related the autoimmune disease all at the same time.

June 3, 2010 at 11:56 pm
(54) debbie says:

I started having chronic hives 2 years ago. All the antihistamines did initially was make me groggy. My PCP sent me to an allergist (who really didn’t want to see me – and only did because I had had some angioedema) My TSH and T4 and T3 were all “normal” – He ran the antibody tests and bingo 478, autoimmune thyroiditis. But still nobody seems to know what to do with you. I’ve since been to 2 endocrinologists, one who says it musts be due to the green dye in my estrogen pill – yea right – I will do fine for awhile and then its like my body becomes immune to the meds I’m on. The longest I’ve gone without hives over the past 2 years is 6 weeks. They are “better” on all the meds, but I sure want them gone! I take claritin in a.m. along with Zantac, .10 mg levothyroxine, and most recently Colchicin .06. At night I take 1 mg estrogen, Zyrtec (makes me sleepy), zantac and another Colchicine. Stress and getting over tired seem to flare up the hives. They are going to lower my levothyroxine to .88, as my last two checks were kind of low and being over 40 being hyperthyroid puts me at risk for atrial fib or PE. I hate the weight gain, 35 lbs in the first 3 months of the hives – and the inability to lose a lb! I think its hormonal and I belive mine was triggered by menopause. IF aybody comes up with the cure – sing it out loud! I wish the medical community could come together on this. Its frustrating trying to convince people to “do” something for you.

June 4, 2010 at 9:03 am
(55) Tracy says:

I have suffered from HIVES and angiodema for 25 years. Flare ups can last for 6 months to two years whereby I get hives all over my body (head to toe), my face swells up so bad that my eyes and throat can close over and I am hospitalised. I carry adrenaline everywhere I go and have a supply in my fridge at home and at work, I need to use it regularly. In the last 6 months I have used adrenaline at least 6 to 8 times.

For the last 25 years I have been put in the too hard basket by many a doctor. I have been to naturopaths, dieticians, tried acupuncture, hypnosis, antihistamines, steroids and much more. I have given up smoking, I donít drink, I exercise everyday and have even resorted to organic foods but nothing is working…..so frustrating.

The last 6 months have been so bad that I had to quit my job and I contemplated suicide, but still my doctor told me it was allergies. I decided at that point that no-one was going to help me and I needed to do something myself. So instead of topping myself I got on the internet. I found that I had all the symptoms of HASHIMOTOS (migraines, weight gain, pains in my lower neck, panic attacks, heart palpitations, dry skin, constipation, relenting fatigue, swollen lymph glands and more). I took this to my doc who did bloods and confirmed that I had Hashimotos (three weeks ago). Apparently my calcium is low also, and my research on the internet points to this also being a symptom of autoimmune disease.

The doctor has prescribed LDN (low dose naltrexone) he claims this is a miracle drug originally used to treat drug addiction. A lot of doctors wonít prescribe it due to pressure from pharmaceutical companies. Apparently the drug is not patent and if knowledge of how good this drug is for autoimmune and other diseases becomes well known pharmaceutical companies will go bust.

I have only been on it three weeks and I have noticed that the hives are not as aggressive and I am feeling better every day…..Hoping I will finally have good quality of life after 25 years of suffering thanks to naltrexone.

Also I want to thank you all for your comments, I really did think I was the only person in the world with this debilitating condition. Now that I know there are people out there that understand what it is like to suffer from chronic urticaria I donít feel so alone.

Check out http://www.lowdosenaltrexone.com

June 14, 2010 at 10:48 am
(56) Brooke says:

I was diagnosed with hashimoto’s about 6 years ago after battling 10 months of hives and angioedema. I’m on synthroid, and I take doxepin and zyrtec during breakouts, occasionally requiring prednisone depending on the case. They come and go with hormonal changes, especially pregnancy. I’ve never had my hormones checked, but may look into that. Thanks for the info!

July 3, 2010 at 7:19 pm
(57) Cheryle says:

I suffered with chronic hives so bad that they left my hands in chemical type burns with blisters and all. Given that I had never had a hive in my life I figured something was wrong. I was sent to several doctors and nobody could figure out what was causing the hives. I fiinally went to an allergist who is aslo an IMMUNOLOGIST. He looked at both sides of things and found that my thyroid antibodies were off the charts. He started me off with FOUR Zyrtec a day until the labs came back. I’m currently on 100mg of Synthroid a day and have been able to cut back to two Zyrtec so far. Any less than that and the bottom of my feet break out again. Funny thing is that I was diagnosed with Hashimoto’s THREE YEARS ago by my eye doctor. When he sent me to an endo, she just gave me a brochure and sent me on my way. My current doctor was livid that nobody bothered to monitor my antibody levels or start replacement therapy earlier. He says it would have saved me a lot of painful days and nights…not to mention the lesser risk of other thyriod complications. It seems that many doctors, endo-s included, don’t feel that Hashimoto’s is anything to worry about. Let them suffer from hives the size of watermellons and see what they think then! Hang in there all of my fellow Hashi’s family.

July 9, 2010 at 10:09 pm
(58) Sandra says:

Thank God for the Internet! I’m new to this “Hive Breakout”, 3 weeks now and it’s the most frustrating condition I’ve ever experienced. Hives started out of no where. Dermatologist said I had a peanut allery. Allergist ran a Zone 8 Panel and said I was positive for everything on it. I’ve suffered from severe allergies all of my life but never broke out with hives. Had an episode where the MD thought I had a TIA. Neuro doctor did blood work and said my condition is from Autoimmune Thyroiditis. I’ve got an appointment with the Endocrinologist in a couple of week. I pray for a cure!!!!! I’m currently on my third round of oral steroids, Zyrtec, Benadryl, Singular, Zantac and 200 mg of Atarax a night. Hives come and go but when they’re bad they’re really bad. Is this something I’m going to have to live with forever?????? Help! I’m open to any and all suggestions.

July 12, 2010 at 5:51 pm
(59) Mike says:

I had chronic hives for 6 years. We are talking dinner plate size hives raised 1/4 inch. Finally a doctor noticed my thyroid was swollen and discovered my thyroid was hyper active. I had my thyroid eliminated with radioactive iodine and have been free of the hives ever since.

6 years of my life went out the window due to these hives. Hopefully the link between thyroid/hives will become more well known to help prevent others in the future from suffering such a long time.

July 18, 2010 at 4:02 am
(60) Andrea Pederson says:

My husband has had hives for the past 7 years and as of yesterday my 13 year old son too! He is covered from head to foot with horrible itchy hives. :o ( I thought at first that it was a reaction to cutting flowers for me in the garden, but he said that the itching started earlier in the day. Now he is miserable and I have a sick feeling that he has whatever my husband has had all these years. I had read about the thyroid connection when this first started in my husbands case but he didn’t listen to me and he just kept going to an allergist instead of an endocrinologist, who never even thought to check his thyroid and only did the antihistamine and Prednisone treatments. And I mean for years and years he was on Prednisone…with no relief! (he gained 60 pounds on these drugs and could have easily lost his job at that time because he was always falling asleep at work because of the high doses of antihistamines!)
Finally a doctor at University Hospital in Denver concurred with MY understanding of the thyroid connection (my husband figured if I found this information on the internet it must be false and never thought a thyroid connection was even a possibility…) and this good doctor finally got my husband started on thyroid. The Synthroid didn’t help but later Armor made all the difference…but unfortunately only for about 2 1/2 years, and then the hives came back again, only WORSE! He has never been diagnosed with Hashimoto’s but I will insist that he does get tested now, after reading all of these wonderful posts. (and now my son also!) Many thanks to you all for sharing your heart rending stories. I hope the best for all of you. God Bless!!

August 7, 2010 at 8:32 pm
(61) lori says:

I have suffered with chronic hives since I was 10 (I’m now 29). I’ve had 5-6 bouts of hives in my lifetime, always triggered by stress or antibiotics (thank you, penicillin at age 10 for starting the ball rolling). Each occurance lasts 6 months to 1.5 years (!) and basically takes over my life. I start to get allergic to all medications I’m not normally allergic to, including NSAIDs, antihistamines (seriously– they make my hives worse), and prilosec. I can’t sleep, I miss work, I get awful acid reflux and feel very depressed. The thyroid connection is real. I test normal for thyroid. Always have. But, two of my doctors knew about the connection between hives and thyroid (Dr Compain in Rhinebeck, NY and Dr Spingarn in Saratoga Springs, NY) and got me on a low dose of thyroid– 150mg. My newest doctor freaks a little when my blood tests come back on the high end of normal but when I missed roughly a week of doses (trying to get back in the ‘normal’ range before my last blood test to throw off the results), the hives returned. Just for reference sake, I also have endometriosis and Raynaud’s syndrome, which are autoimmune diseases. Other things I notice with hives– my trichotillomania (compulsive hair-pulling) gets worse, as does my ADD. I also get an increase of stomach upset and headaches. My period makes the hives worse. Once your immune system gets messed up, everything falls to hell and it’s hard to get it back in shape. I didn’t know about the antibodies thyroid test, but I will be sure to get this tested. Thanks everyone for sharing. It’s hellish to suffer like this and have to fight to get doctors to understand that you know your body better than they do.

September 27, 2011 at 1:20 am
(62) Lori W. says:

Hi lori,

(I’m a lori too :) I just read your post dated August 7, 2010. I was searching for the relationship between thyroid disorder, autoimmune disorder and trichotillomania and stumbled upon your post. This is the second time that I’ve had hives, thryoid disorder was just discovered, I’ve had trich since I was 6 and waiting for the results back to see if I have Hashimotos. Do you think trich is an autoimmune type disorder?

Lori

August 9, 2010 at 4:49 pm
(63) Heather says:

I am 26 years old and in November it will be 2 years since I have been dealing with my second bout of hives. I have been doing all that i can to live my life as normal as possible. I notice that it gets worst when it is close to my period, if i have a cold or flu, if i am taking anti-biotics, or if i am very stressed out. I take 50 mg of hydroxyzine before bed and take 20 mg of predisone ONLY when needed, I do the best i can to avoid that! I have been on a diet and following it with a work out routine that is up to 5 hours a week and yet I feel like i am not seeing the result that i should with the amount i do. My general thyroid tests have always come back normal. I have been seen by an endocrinologist since I was twelve for hyper-insulinism. I am starting to wonder if my thyroid is the culprit and for some reason they don’t want to check. All I know is that last night i had a bad case which in volved a hive in my throat that i could feel everytime i swallowed, I took predisone but when I went to sleep I was afraid that i wouldn’t wake up! I know that no one is supposed to know when they are going to die but this is ridiculous! I have been keeping my spirit up this whole time but now i am afraid that this can kill me if it’s able to develop in my throat!! Any suggestion on what to do now!

September 13, 2011 at 7:00 am
(64) Amanda says:

I was watching Mystery Diagnosis last week and saw that there was a lady who was having anaphylactic (sp?) shock from her hives and was in and out of the hospital many times while doctor after doctor misdiagnosed her. She finally got an answer after two years of craziness – her body was rejecting its own progesterone. Her husband is the one who helped her find the answer by keeping detailed charts of when it would happen and they traced it to the two times monthly that she would ovulate. She had to have a hysterectomy and never has had hives or shock since that time. You might want to check that out….

My husband’s been having hives for two months now and they are out of control. I can’t blame his on progesterone, so….back to the drawing board.

August 11, 2010 at 3:29 am
(65) ali says:

Hi,

I have had chronic hives and angiodema of the lips for the past 2 years. Had a heap of tests – skin allergy, RAST, blood tests etc but they couldn’t work out what was causing it. I also had some other symptoms such as anxiety, insomnia, sudden weight loss, and now weight gain, and exhaustion.

After being to see a couple of doctors with no success I started doing some online research to identify some supplements that might help it. This is what I have found from this research and some trial and error to see what worked for me.

Take a high dosage multivitamin and mineral supplement – needs at least 50mg of the B vitamins and about 2 g of Vit C. B12 clears Hives attacks – you should take this in the morning however as it is an adrenal stimulant (am pretty sure I am suffering from adrenal exhaustion which often accompanies thyroid underactivity because I have ongoing sleeping and anxiety problems which are linked to cortisol levels) and can cause problems sleeping at night if taken late in the day.

Selenium and Zinc are important in quite high doses – like 50 – 80mg for zinc and 200 – 300 for selenium. They are both necessary for thyroid activity.

Pantothenic acid – at least 1, 000 mg is necessary for the adrenals if you have adrenal problems like me.

Vitamin D and K also very important for thyroid and reducing autoimmune response http://www.ihealthdirectory.com/vitamin-k-benefits/

I only just discoverer the Vitamin K thing as it is found in high levels in broccoli and I wondered why I felt so much better after eating it.

I have also just starting trying glucosamine http://www.news-medical.net/news/2007/05/15/25127.aspx

the article indicates that n acteyl glucosamine may prevent the autoimmune response responsible for thyroid and hives etc which would be ideal and much better than trying to replace a destroyed thyroid through medication.

I have tried glucosamine for a couple of days and it seems to work really well on hives and have ordered some n acetyl glucosamine which is supposed to work better and will give that a try.

I also take a thyroid supplement which contains armour thyroid and other minerals such as copper manganese and tyrosine – tyrosine is very important for the thyroid.

When I first got hives and everything else I was really unwell and miserable and my lip swelled up to about twice normal size and stayed like that for about 2 or 3 months. By taking supplements I have progressively got much better so that my hives are really little and my lip nearly normal size. The hives seem to have gone away with glucosamine but the lip still a little swollen.

I hope this information is helpful – the reason I suggest trying supplements is controlling or preventing the autoimmune reponse would be miles better that just taking thyroid medication because it leaves you exposed to developing all sorts of other autoimmune problems. I am only 30 and I have another 50 years left and I want to stay as healthy as possible.

I was put on steroids but couldn’t take them because of the side effects and I really think they should be avoided as far as possible.

October 1, 2010 at 8:23 pm
(66) sonia says:

OMG ALI MY DOCTOR TOLD ME SONIA TAKE HIGH DOSE OF A GOOD MULTIVITAMIN AND VITAMIIN D AND I ALSO ON MY OWN GET AN INJECTION OF B12….
I DID GET BETTER BUT WHEN I SLACKED OFF A GOT HIVES AGAIN ALSO TOLD ME TO TRY A GLUTEN FREE DIET!!!!!!

August 11, 2010 at 12:18 pm
(67) vinny says:

I have hypothroid take .75 synthroid for 3 years now.
In Nov 2009 started with hives. 3 dermatoligist ,an allergist , infectious disease doctor, 2 thyroid doctors, 3 biopsies and a internist later no clue why.
I take 160mg allegra and zantac in am and zytel in pm or I can’t stop scratching.
They are systemic because if I get a hive on right arm I will also get one on left arm.. Any hints you can give me I will try the itch has taking over my life.

August 12, 2010 at 3:14 pm
(68) Dee says:

I have had hives now for 7 yrs now. No allergies, no food allergies, blood levels for thyroid all came back negative. Take Xyzal and Nexium every day and for the most part is keeps them at bay. I flare up around mid Aug. through mid June. I’ve been on every antihistamine out there, all at once and no help. I’ve even had benadryl and pepsid thru an IV in ER and they still didnt go away! Now what, nothing is working and I’m miserable.

August 23, 2010 at 1:48 am
(69) Answered prayer says:

Have Hashimotos & adrenal fatigue that started after a time of severe emotional stress at 37. Blood cortisol tests were normal but family dr told me that I needed to buy a saliva test at a compounding pharmacy to see how much my body was metabolizing not just floating in my blood. My ANA blood test
(autoimmune marker) was very high though.
I ordered a ZRT Labs saliva test kit from the local pharmacy which concluded that my cortisol was extremely low as was my
progesterone. The compounding pharmacy referred me to a local OKC ob/gyn who
prescribed me bioidentical female hormones.
For the cortisol I needed DHEA for a few
months until my cortisol levels picked up
some. The thing that has made the most
difference in cortisol are the adrenal
supplements I ordered online from Dr. JAMES Wilson’s website adrenalfatigue.org and it takes 6mo-1yr to fully recover from that.
Now as for the hypothyroidism my ANA level is still high for now and I’m having energy again after a recent adjustment of my dose of natural compounded T3/T4 from this same ob/gyn. Going to have ultrasound soon of lump in my throat that made swallowing difficult but that has gotten much better with new dosage. I actually went outside to play with my kids today in very hot weather without too many problems afterward. For autoimmune
inflammatory symptoms I have had great relief
from staying on a daily dose of a supplement
called Inflameez by North American Herb &
Spice that I buy at the local health food store.
I had to start out slow on the dose b/c it made
me feel achy for a few days and now I can tell when I run out for a few days.
The books that have helped me tremendously are Mary Shomon’s “Living Well With Hypothyroidism” which kept me from making some big mistakes, and Dr. James Wilson’s “Adrenal Fatigue: the 21st century syndrome”.
My third pregnancy changed my body immensely and I believe that is where my symptoms started with extreme anxiety, tachycardia, heart arhythmias, and extreme irritability and anger and exhaustion. I couldn’t gain weight in the first 4 months of the pregnancy but then I would gain suddenly 5-8 pounds each month till delivery. I believe my thyroid was fluctuating from high to low at that point and symptoms stayed just under the radar and seemed like normal tiredness & hormones of having little kids at home until my emotional trauma 4 years later weakened my already strained system so much that I sought help and answers. God has been faithful to lead me every step of the way to the right sources for me and it’s improved incredibly but it’s still not over. My respect and sympathy goes out to all of you who are struggling to cope and find answers! I hope you find what works for you. I read in Mary’s book about how children can inherit thyroid troubles and I’m now keeping an eye on mine for any symptoms that start to emerge over the years. Hopefully they never have to deal with it.

September 14, 2010 at 9:53 am
(70) charo says:

Hi everyone

I havent had a chance to read everyones posts but they all seem to affect thyroids. i have suffered from chronic urticaria for 4 years.. it went into remission in 2008 and came back this year about 4 months after the birth of my baby.. i have an implanon inserted but i dont know how that affects anything as i was on other birth control before i planned to get pregnant. anyway my hives are so bad that im constantly scratching they cover my whole body including face neck hands and feet. i am on 25 mg of phnergen at night with a 10 mg of clarytyne . when i wake up usually 6-8 hours later i take 10 mg of phnergen and another clarytyne. i am also trialing dapsone (a drug usually used to treat lepracy) i am on 75 mgs of that current and have been for about 3 weeks. (it takes about 6 weeks to really build up in your system). i was told i have an auto immune disease but havent been told of graves or hoshimotos as i dont think that is what i have. i do have a high reading in thryoid production. basically my thyroid is working but the brain is not telling it to slow down with the production. I am not allergic to anything.. it is my immune system. This is frustrating but i have full faith in my specialist. he knows about this condition and unfortunately there is not much more i can do for it. there is another patient of his which is on a liquid injection which is only given to people in extreme cases as the price per shot is in the high hundreds! some people suffer from this for more then 20 years. I really hope we can find a cure but then again if we cant find cures for aids then i have little hope in finding a cure for my problem. hope this has helped any of you who are unsure what you may have.

October 1, 2010 at 8:12 pm
(71) sonia says:

Omg this is so interesting and i’m glad i fould this page,
i have crazy hives that last for a week then go away at times, i was recently tested and i had thyroid antibodies
present in my lab work but have not been treated for any thyroid desiease but these hives are unbareable

October 1, 2010 at 8:32 pm
(72) SONIA says:

I also agree with Ali, my doctor told me to start taking a good multivitamin and vitamin D-3 and i also have gotten b12 shots…..
When i started the vitamins and didn’t slake off i was fine….
also my doctor says GLUTEEN FREE DIET!!!!!!

November 10, 2010 at 4:21 pm
(73) Loretta says:

About 5 years ago I developed hives. I put up with them for about 5 months before one of my friends, who works for an allergist, saw them and made an appt for me. Best thing that could have happened! Dermitoligists don’t know anything and most endocrinologists only want to treat the thyroid aspect not the hives. The allergist worked to find a happy medium.
Everyone needs to understand that there is a difference in a standard thyroid blood test and a blood test for thyroid antibodies. If you have hives you need to DEMAND that your doctor run the test for the antibodies. Once my doctor found the antibodies he put me on a thyroid replacement drug (levothyroxin) and we just kept increasing it until the hives went away. I take a thyroid every morning and an antihistamine every night. If a standard thyroid test is done on me then I am waayyy out of the normal range but that is where the hives, fatigue, weight gain, etc.. go away. Doctors shouldn’t be so stuck on tests they should worry about their patients.

November 10, 2010 at 4:22 pm
(74) Loretta says:

A few “fun” facts – if you take the same antihistamine medicine for an extended period of time it can just quit working. This happened to me and my doctor just switched brands and everything is good again. This one sound weird but… if you have itchy hives and you’ve taken all your meds but you just want the itch to stop use anything with menthol in it. Bengay, icy hot, etc… The higher the concentration of menthol the better it will work. It will get warm like usual but then the itching will stop. Of course, I don’t use this on my face. For the face try lavendar oil.
Last year my doctor retired and I had to find a new one. I went to an endocrinologist hoping that he would be able to help me since it is a thyroid thing. Wrong! He just wanted to get my throid back to “normal” and didn’t care about the hives. Needless to say I went and found myself another allergist. In about a year or so I will try decreasing my thyroid intake again but it will be based on what works for me. Also, when decreasing thyroid, you should never quit cold turkey. Always decrease gradually.

November 15, 2010 at 9:26 am
(75) Maureen says:

I started getting hives Aug 16, 2010. Thought that planning my sons wedding in such short notice could have been the problem. Went to Dr. got a shot and within a couple of hours all were gone, but my lips swelled up to double size and then went away. The hive stayed away for about 4 days. Then came back worse. Went to Dr. again and put me on Predisone. They went away for 4 days again, then came back with a vengence. Not only hives this 3rd time, but achey legs and a headache along with on and off chills. Then the hives would subside and I would have chest pains on the right side, my right hip would get so bad, I could barely walk and there was a lump in my throat and swallowing was hard. Dr. said white blood count was up, which signifies infection, but no one seems to know what it is. Then went to a skin Dr. and he put me on Predizone, Allegro and Atarax. This seemed to work for about 1 week and a half. Then here they came again. Same office new Dr. He changed everything and now I am worse and all the symptoms are coming out at the same time. I don’t know where to go from here.

November 15, 2010 at 9:55 am
(76) Maureen says:

I started with hives on Aug 16, 2010. They kept getting worse until I finally went to Dr. He gave me a shot and they cleared up for about 4 days. Then they came back. This time worse. Went to Dr. again and he put me on a z-pack and predizone. Cleared up again for about 4 days and came back worse than ever. So I decided to go to a skin specialist. He put me on Predizone, allegra, and atarax. This seemed to help for about a week and a half. Then they returned again.
I was told by Dr. that my white blood count is high, which signifies and infection.
Now for the strange part. The first time just the hives. Second time hives and chest pain. Third time hives, chest pain, right hip pain. lump in throat, achey legs and chills. I get the hives, chills and leg pain and when they subside, then all the other symptoms come out. Now with this 4 time, they all seem to come out together. I have run out of things to do and places to go.

December 7, 2010 at 1:18 pm
(77) Anne says:

I have had multiple instances of chronic hives over the course of 10 years. The first instance was in my early 30s, where I had hives all over for 7 months. I was finally diagnosed with Hashimoto and was treated with synthroid. After the synthroid was regulated, the hives disappeared. For those of you taking steroids and various types of anti histamine, I recommend you discuss with your doctor trying to go on synthroid or related thyroid medication. The other medications only relieve the symptoms but do not get rid of the root cause. If you get bloodwork done, I recommend T3, T4, TSH, and thyroid antibody tests. Make sure these are fasting tests!

December 16, 2010 at 4:32 pm
(78) sara says:

I have had really bad itchy hives with no clue what it is…since sept. my DRs say I am fine and my thyroid is perfect. I am hypothyroid. I don’t know what to do! we are spending so much money trying to reduce allergens! How do you talk to your DR about this? I don’t have insurance, so I can’t go frequently, but I need this addressed. They keep telling me its just allergies…

January 30, 2011 at 10:27 am
(79) M Ozbrn says:

It seems most all posts are women, I have had chronic hives for 10+ yrs, tried all antihistamines in existence and take alot of prednisone, up to 50mg a day for severe breakouts, It seems to effect me more in winter months, with breakouts starting late afternoon and progressing until so severe, i want to use wire brush to scratch them, they are mostly on my torso, with a few on face. I have adrenal/cortosteroid shot at least 3x in nov- feb.NO insurance to go to allergist, but will check into thyroid thing with gp. Any men out there with this prob???? My mom gets it too although not s severe as I do. HHeellppp!!

March 2, 2011 at 12:33 pm
(80) Lisa says:

I to have thyroid disease and have hives. I have been on the thyroid meds for 21 years and in the past 3 years have had problems with the hives. Does any one possibly think that they have changed something in the thyroid medicine that is making every one break out in Hives? The doctors think that I am wrong but my pharmacist thinks that I am on to something. All though my eyelids do swell and my chiropractor says that it means that something is off in my body.

March 23, 2011 at 9:58 pm
(81) Becky says:

Hi everyone. I am so glad I found this site. I have been breaking out into hives for about 8 months now and was finally diag. 4 days ago with Hashimoto. It seems like the hives only come after I eat certain foods or I am extremly hot. My blood work came back neg. for celiac. Does anyone think it could be a senseitivity to wheat. It seems to come after eating food with wheat in it or after drinking soda. Not that soda has wheat in it. Any ideas. I am new to this. Also, what vitamins should I be taking. I am not taking anything except levothyroxine.

April 10, 2011 at 11:35 pm
(82) Tim L says:

Maybe this solves a personal mystery. I had a major outbreak of hives when I was 7. My 1st grade school picture shows a developing goiter. Was officially diagnosed at 8.But why just one major outbreak? Well still a mystery I guess.

May 27, 2011 at 1:21 am
(83) AngelicKit says:

I was just diagnosed with Hashimoto’s about 3 months ago. It was actually found by my allergist. I have been breaking out in hives since September – right after I had my baby. Nothing was helping. After months of trying to figure out on my own what was causing it, hiding behind turtlenecks and one trip to the ER, I called an allergist. An allergy test was given as was a blood test. Turns out I had a thyroid problem. I have been on Levothyroxine now for about two months. After many, many different rounds of pills to control the hives it looks like we have found something that works. At least on most days. I’m on 50 mg at night of Hydrodroxyzine and two Zyrtec in the morning. If I start to have a midday break out I take one more Zyrtec, but for the most part I haven’t really seen too much other than a few random red spots. Before I was breaking out into hives on my arms, neck, chest, thighs, stomach, palms of my hands and even sometimes my face. It was raised and painful. The person I am currently seeing for my Hashimoto’s does not believe my thyroid problem has anything to do with my hives. Though they will also not say what they think is causing it. My allergist at this point has been the only one really working hard to see this problem resolved. It’s been horrible. I don’t know if this combination will work for anyone else, but I did want to let me people know it is possible to keep the hives from taking over if you are lucky enough to find someone who takes the problem as seriously as you do.

June 14, 2011 at 3:01 pm
(84) vinny says:

See my blog august 11 2010. I changed my thyroid doctor (hypothroid condition) he said it had nothng to do with my hives. Well my new doctor said my levels were low and doubled my synthroid to two tablets a day . I have been on the new dose since Jan 2011, I also take Cleminstine 2.68 1 1/2 tablets a day. My energy level is up and the hives no longer control my life, they pop up once and a while. So I would suggest a 2nd opinion to all those who’s thyroid doctor think there is no link.

June 21, 2011 at 12:50 pm
(85) Ashley says:

I have hashimotos and autoimmune hives also. I had the hives for eight years as a child and they came back in December. They are getting worse and I’m in the process of trying to figure it all out. I see a natural health doctor on Tuesday and going to pick up a different combination of allergy meds from my allergist today. I’m willing to try anything at this point but I want to stay away from all the bad drugs like steroids and such. My thyroid doc and my family doc do not know what to do so right now I’m only dealing with the allergist. I’ll post any updated info after I meet with the natural health doc next week.

July 7, 2011 at 7:02 pm
(86) cha says:

hi! i was suffering from hives for almost 2 years…it was diagnosed as ulticaria due to my autoimune thyroid..TELFAST (Fexofenadine) 120mg once a day worked for me…i am in remission now for almost 1 year..hope this helps…by the way it was my immunologist/allegologist who prescribed this to me…

July 21, 2011 at 1:44 am
(87) Julz says:

I have had hives Daily for Seven years straight. If I do not take several antihistamines daily then I have absolutely no relief. Currently I am going through several blood tests and other tests and I am hoping that after this long time I will get some kind of answer. My Allergy specialist did an allergy test and nothing happened, no allergies. I get Hives everywhere on my body even the most uncomfortable places. During Pregnancy and even after I still have hives. I notice I am getting fatigued more and I am gaining weight. Not sure the answer or outcome of this condition but I hope it gets better. Good luck for all of you!!!

August 24, 2011 at 3:36 pm
(88) Judy says:

Had I-131 40 years ago. After starting on Synthroid, the hives began. The size of grapefruits. Was told I was number 28 in the US that is allergic to synthroid. Was put on Aterax. Took it for 30 years, what I was told, Aterax is for short term use only. Max. 5 years. I was totally fed up with the medical profession. I found a naturopathic doctor. I am off all pharm. thyroid and no longer take aterax. I am supplemented with a natural thyroid I can purchase on my own. No script necessary. Its great, my advice is find a naturopathic physician in your area. Best thing I ever did in my life.

September 6, 2011 at 12:09 am
(89) marmar says:

Hi hive sufferer,
I recently was diagnosed with hyperthyroid. I still have not started any treatment. Around 10 days ago I broke out in hives. Killing itches then a friend suggested I use yogurt on the hives. I also listened to my mother in law and ate lots of watermelon. Amazingly without using any antihistamine today I stopped itching :) ) I am so happy. I was miserable for the past few days. so just moist the hives with yogurt and replace it when it is dried. Eat lots of watermelon ::)) hope you all feel good very soon

October 1, 2011 at 11:02 pm
(90) Missa says:

Hello All,

Good to see I’m not crazy.. or rather… about hives.
I have been dealing with Hives for over a month. Show up and disappear daily, sometimes worse than others. Zyrtec masks symptoms mostly, but we don’t know the cause. Sigh.

I have been taking thyroid and birtch control medicine for over 10 years. No major changes food, or environmentally either.

Has anyone found that they have reacted to something they always use or eat, and THEN find the cause is something that isn’t new?

Also, should I keep taking zyrtec.benedryl to keep symptoms at bay or try eliminating things and NOT take a dose or so and try to track what shows up when?

OR is it better to not let my skin break out at all?

What are your thoughts. Dermatologist suggested keeping zyrtec in the system to try to break skin of the beaking out habit, and said… if its still doing this is 3 months we can send you to allergist… 3 mos sounds like a long time from now..

October 7, 2011 at 1:38 am
(91) AngelicKit says:

If you aren’t getting a lot of help from your Endocrinologist regarding your hives you might want to seek out help somewhere else. I see that you said you are seeing a Dermatologist. I’m actually seeing an Allergist who is taking care of my hives. The hives I’m suffering from is called Autoimmune Urticaria. My allergist was actually the person who figured out I had a thyroid problem.

Some doctors will take this problem more seriously than others. In my opinion finding the right doctor who is willing to work with you is key. I’m currently on Zrytec and Hydroxyzine. This is generally works really well for me. The only time I notice a problem that the combination doesn’t work is when the temperature gets too hot or if it is too humid. I’m sure if you are able to find a good doctor they should be able to get you on the right treatment for you.

Good luck!

October 20, 2011 at 10:27 am
(92) Mary says:

I started with chronic hives when I was put on Cipro this summer for an ear infection and shingles on the ear. Prednisone would relieve them, then when I was off it, they would come back. I am now going to an allergist and an pleased with the way they are working with me. They did the standard blood work for thyroid, and this last appointment they took blood to test for the thyroid antibodies (waiting for the results). They told me the main thing right now is to get them under control and me more comfortable. Zyrtec is working for me. I take one in the morning and one at night, then take 300 mg of Zantac (generic) at bedtime. I have Hydroxyzine to help me sleep if the itching gets too bad. Also have some 10 mg tablets of prednisone. Was told to take 20mg if the hives get bad (not go on a taper, more of a one time dose). I understand that unfortunately, 85% of the time they don’t know what causes the hives. I feel very fortunate that all my doctors–family practice, ENT and now allergist–are committed to helping me. Good luck to all of you who are suffering.

October 24, 2011 at 12:22 am
(93) treecie says:

My belief is that the thyroid issues and the hives (which I get occasionally) have a common cause – food or chemical sensitivities that trigger autoimmune responses. Such sensitivities deplete the adrenal glands, too.

When doctors test for allergies they usually test for only one kind, the IgE allergies, which trigger an immediate allergic response. There is another kind of allergy called an IgG-mediated sensitivity, which has delayed reactions and is harder to test for. You’ld probably have to go to a natural practitioner to have this test ordered; it’s a blood test called an ELISA assay; they send it away & the results are mailed to you. The sensititivities are likely to something you overuse or have overused in the past, so that your body started to treat them as toxins. The fact that so many people report having symptoms after a course of antibiotics makes me think there is also a candida connection.

I tested positive for Hashimoto’s and had high TSH but thyroid medication, even at low doses, often makes me feel worse – too hot, can’t sleep, feel anxious, etc. My T4 was too low, but my T3 was normal! Now T3 is what T4 converts to. But the doctor put me on Armour thyroid anyway. Interestingly, I had been taking supplements to help the adrenal glands before all this – pantothenic acid (B5), Siberian Eleuthero (formerly Siberian ginseng), & other B vitamins & some antioxidants & was feeling much better; I’d ruled out the thyroid issue, because I wasn’t abnormally cold or tired anymore. But then I took the thyroid meds on the basis of the tests and it threw me all off again.

I asked the doctor, “If I have an autoimmune disorder, won’t it affect other things beside the thyroid?” So, like, just because I take thyroid medication, does that mean I’m going to be all peachy keen? He didn’t have an answer. And I’m not peachy keen. And I’m going to keep digging.

November 29, 2011 at 11:43 am
(94) Johnnie says:

Hi-glad I found this site! My daughter is 11 years old and had had hives for 5 weeks now following a very mild cold. The hives went away for 4-5 days then returned 3 days before another cold. It is not fifth’s disease. She can’t swallow pills so she was put on liquid steroids and hydroxyzine. She had an allergic reaction to hydroxyzine which caused her lips to swell up. She is on day 2 of steroids and woke up with a few hives. The hives are from head to toe-normally. Not sure what she has exactly. Anyone experience something similiar to what I’ve described? Your input would be greatly appreciated! Thanks for listening!

December 12, 2011 at 12:12 pm
(95) stephanie says:

Hey there,

I feel for all of you! I am going through many of the similar issues. I just read through all these posts. I am 24 years old. My mom was diagnosed with Graves around my age and 2 years ago I found out I have hashimotos.

Two years ago I had hives all over my body. I went to see my primary doctor, allergist, dermotologist and then finally endocrinologist. The allergist put me on prednisone for 6 months and I gained 40 pounds. My endocrinologist finally tested my TSH to see that I have antibodies but none of the other doctors noticed because my thyroid levels were normal. She diagnosed me with Hashimotos.

I was started on 25mcg of Synthroid (morning), Allegra (afternoon), and Atarax(night). I upgraded my dosage to 100mcg. For 1.5 years I was hive free.

In the last month they have returned. I went back to my doctor and she said my thyroid level is normal and she won’t increase my dosage. The hives come on at about 8pm at night and then dissapear by noon the next day. They are miserable and driving me crazy.

I am going to see a new, more experienced doctor. I have written down many of these suggestions from the blog and I am going to approach him about it. I am interested in the supplements and Armour. My current doctor told me that hives are an autoimmune disease and are not related to the hives.

Its very dissapointing because they were gone for so long. Bottom line is, don’t trust your doctors, do the research and be proactive. I figured out all of this on my own. A lot of them just want the easy way out. Hopefully the hives will go away soon. Thanks!

January 9, 2012 at 2:53 am
(96) Carmel says:

Nice to know I’m not alone. I developed thryoid disease after my first child- hyper then hypo and stayed hypo. Thyroid levels went hyper after second child and I reduced medication. After third child 9 mths ago I went hyper again and reduced medication then 3 months later I developed cold uticaria (terrible since I live in the largest coldest city in the world!!) I’ve been terrified to go outside. Then I read about the thyroid connection so I got tested and tada hypo again so I have increased my meds again and I think it seems to be getting better I am definately tolerating the cold better. I also tried a gluten free diet before reading about the thyroid like and I have to say it did also make me feel better though it was a pain in the ass. Even if you don’t have celiacs disease lots of people have gluten intolerance that cause all sorts of problem – so I wouldn’t dismiss going gluten free for a couple months if you have exhausted other paths – but you have to be militant about it.
-also to the person who got worse with soda and wheat – both are high glycemic – raise blood sugar fast.
-has anyone else had a blood sugar connection -i seem to feel worse – more sensitive to cold – if I eat high sugar foods.
-I have also read on other sites that people with hives improved a lot after starting B vitamine supplements – I haven’t tried that but many say it helps.
-i also agree with all those who say self advocate – my doctor just told me to stay out of the cold (what indoors for 6 mths a year!) I had to go back after researching and ask for the thyroid test.
- I hope this all goes away for me and all the rest of you – here’s hoping

January 18, 2012 at 1:09 pm
(97) Melanie says:

Well I’m glad I found this sight. Maybe one of you could help me get some answers or suggestions. I have been to 3 different doctors. Each telling me different things. It’s viral, allergies, or stress. I’m 32 years old. I’ve been breaking out in hives for 2 years now Every day! I can take zyrtec which helps them go away, but within 24 hours I have to take it again. There are other sympstoms I’m having like tired all the time, chest pains, hard time falling asleep, emotional, anxiety, etc. It’s to the point I feel like I’m losing my mind. I can’t play around with my children because everytime I have pressure on my skin a hive comes out and I begin to itch. Although that is not the only time I break out. I’m really tired of hearing from friends it’s just stress. I can’t imagine that I have been so stessed out for 2 years that I break out in hives EVERY day!

January 21, 2012 at 7:03 pm
(98) AngelicKit says:

Melanie,

If you haven’t already tried visiting with an allergist, I would recommend it. It was my allergist who found my thyroid problem and that my hives were due to the thyroid problem. A simple blood test might be able to shed a lot of light on your problem. I’ve had hives daily for about a year and a half and I am able to keep them under control with Hydroxyzine and Zyrtec. It’s not perfect, but it works well.

I highly recommend trying to find someone who is going to help you to relieve your hives and to help you feel comfortable. Having someone help to figure out the problem and to make you feel good again is the most important thing when it comes to this problem. If they don’t take the problem seriously, find someone else who will. There is no reason to live in pain.

February 2, 2012 at 12:50 pm
(99) Melanie says:

AngelicKit,

I have visitied with an allergist. He told me it was a virus. He put me on two different medications. Also told me they would both make me tired. He said “All I can say is drink lots of coffee”. Well I’m always tired so it just made my fatigue even worse. I couldn’t function anymore so I stopped taking those two medications and started taking zyrtec every day. Which hasn’t helped as far as tiredness goes, but it does relieve the hives for 24 hours.

I just went to a dermatologist yesterday. Of course he said it’s Chronic Urticaria. Which I obviously I already knew. He told me that there may not be a cause for it. That it may just be body and my age. He gave me a prescription for a spray to apply once the hives begin to come out. He also gave me the name of a lotion and soap he would like for me to try to use every night, and said no hot bath, that it would just make me itch more. I told him I’m 32 years old, I understand that your body changes, but for me to be fatigue all the time, cold, my feet stay purple and cold, I feel anxious, and there are still other symptoms that I’m having. I just don’t feel like all of this could be caused by my age.

I had written down the blood test to check the thyroid antibodies, because I have had a few blood test already done. I tested negative for Lupus, and when he saw what I had written down, he said well lets do this blood test and see what happens. I’m hoping and praying that I can find something out. I want to feel good again. I miss waking up and feeling like the day was just going to be great. I wake up every morning and think, god I wish I could just stay in bed, and the fatigue continues through out the day. Coffee doesn’t even help.
I’ll post more once I receive these results. If anyone has any other suggestons please feel free to post.

Thanks

February 3, 2012 at 12:05 am
(100) AngelicKit says:

Melanie,

Wow. I’m really sorry that you have such bad luck with doctors so far. I know it can be frustrating, especially when it seems as though you are the only one that wants to take care of the problem.

Unfortunately, I made a mistake at choosing the endocrinology office which made my life pretty miserable for a few months. First I was told that my Hashimoto’s wasn’t bad enough to see the actual doctor and that I would be seeing her nurse practitioner instead. This woman refused to believe that the hives I was suffering from had anything to do with my thyroid problem and blamed the Internet for even having me think such things. Ugh.

Having someone willing to try things with you seems to be really important and definitely finding someone who cares about your problem. It took several different prescriptions with my allergist to find the right combination. I also suffer from a slight heart condition which makes prescriptions off limit. I am lucky that I have a doctor that is willing to work with me.

If you haven’t you might try calling around and ask to speak to a nurse at an allergist or even endocrinologist office and explain your situation and how you have been treated and see if you are able to find someone willing to work with you before actually wasting more time.

I’m not sure when you take your Zyrtec, but it might help taking them at night before bed.

I will say that my allergist did try to have me on Allegra during the day and Zyrtec at night, but the combination did not help with the hives for me but it might work for someone else. I’m stunned that your allergist just told you to drink a lot of coffee. Give me a break.

Good luck and keep us posted!

February 3, 2012 at 9:30 pm
(101) Kara says:

I was diagnosed with Hypothyroidism when I was 16. When i was around 23 I started having hives. After much testing I was diagnosed with Hashimoto’s. I take active thyroid medicine (liothyronine) and inactive (synthroid) together and my hives went away. However, the only pill that worked while I was being tested was Xyzal 5mg. It didn’t make me tired and kept the hives away all day.

February 8, 2012 at 3:13 pm
(102) Melanie says:

Well I have gotten the results back from blood work, and there are no antibodies. I don’t even know what to say or do anymore. Dermatologist suggested going back to my regular doctor to run more test. I’m tired of running test with no results. I’m beginning to think I’ll just have them and deal with them. Guess it’s Zyrtec for life. I’ll figure out the other symptoms later. I’ll keep checking these feeds to see if someone else has any other suggestions.
Thanks
Melanie

February 21, 2012 at 6:58 am
(103) Jenn says:

The cure for hives is baby oil (mineral oil) applied daily for a year! God bless this guy and his website… http://chronichives.yolasite.com/symptoms-method.php.

I no longer have chronic hives even though I have had an autoimmune disease (graves disease) that I am in remission from. Please don’t suffer anymore people. I have been on antihistamines and steroids which only worked temporarily. I originally got hives from taking melatonin as a sleep aid.

February 25, 2012 at 1:42 am
(104) TKL says:

I also have hashimotos with high antibody levels. I have hives consistantly with unbelieveable welts that last for weeks and look like burns. I can break out in a matter of hours with no cause. This website has been a blessing mentally. Thank you all for sharring your stories.

March 2, 2012 at 9:14 pm
(105) TKL says:

Important information that I was absolultly floored when I just found out. I was compairing synthroid and lavoxyl to see the difference in ingredients since I was not and had not tolerated the synthroid in the last three years. When I took it I had health issues and when off of it I felt good. Synthroid contains two ingredients that lavoxyl doesn’t. Lactose and Providone. Providone is iodine and when you type in providone on a general search what pictures come up but shrimp. Shrimp contains iodine and if you have an allergy to shrimp which I do have my pharmacist said you can’t and are not supposed to take synthroid or other meds that have providone in them. Number one reaction to providone allergy? Hives. go figure.

March 5, 2012 at 9:40 am
(106) Alice says:

I’ve been dealing with hives for over ten years and have been to numerous doctors for help. I’m on Levoxyl but recently was put on T3 to try something new for help and I had a major spike in my hives. So all this time spent with allergist and taking antihistamines and steroids and antidepressants, I think it all relates to the thyroid. I’m going to ask my doctor to increase my T4 even to the point where it brings my numbers down to the low side of normal because maybe that’s what my body needs to be balanced. I’ll keep you posted.

March 18, 2012 at 6:30 pm
(107) Charlie says:

Late last spring I broke out in what I thought was from the sun with circles, pink and excruciating itchy. The year before I was diagnosed with DeQuervaine’s Thyroiditis after biopsies etc. Some will go dormant and break periodically scratching until blood. I have diagnosed myself with everything from cancer to above. As I’ve read, doctors seem to be bewildered with what to do but the problem is absolutely mind bending. This has been an ongoing situation from youth. I pray this is not cancer related but will fight to the end for a result. Please email back if anyone has the same issues.

March 23, 2012 at 10:57 pm
(108) Katherine says:

SO werid,to see so many people who have the crhonic urticaria and thyroid disease. I had thyroid Cancer 9 years ago. I didn’t start getting these hives, however, until 5 days after a hysterctomy 5years ago. I was thinking maybe a lack of hormones? Itook Claritin for a year and they seemed to go away for almost a year, and now they are back. Mostly feet and hands. Sometimes inner thighs and trunk. I do not take any hormone replacement. They are truly bothersome! I can tell if I even have one! I usually take hydroxazine nad Zantac. I have had some sensitivity to shrimp in the past, so I will have to scheck out the fillers in my generic synthroid!

March 27, 2012 at 6:52 pm
(109) Tam says:

I was googling zyrtec and thyroid medication as I wanted to see if they interfere or increase side-effects and found this thread. I have Hashimotos and didn’t think my hives could be anything other than allergies, especially since mold and pollen are at crazy levels this year. I took zyrtec and I’m still itchy but also drowsy now. I have no other hayfever type issues apart from the hives, which does seem strange.
I’m seeing an endocrinologist in a couple of days, I’ll see what they say. I was diagnosed fairly recently, so I don’t even know whether my thyroid levels are normal now with the thyroid meds.
I’m really hoping it’s an allergic reaction and will go away with the mold and pollen.

April 5, 2012 at 9:18 pm
(110) Marie says:

I have been suffering from hives and angiodema for about 10 years. It doesn’t happen every day and also months can go by before I get another outbreak again. The very first time I had bad hives (they started on the back of my neck and went to my ears, swelling them double the size) and my eyes and lips swelled up too… I had patches of hives all over my body, This happened when I got sick with a very bad cold that year. I thought I was allergic to the nyquil I was taking, so I stopped using it, and they “went away”. It happens every time I get a cold or have a fever. The next example, my whole hand swelled up one time. I had just started wearing a ring on my ring finger, which was just a little too tight… I ended up having to go to the fire station and having them cut off my ring because the swelling was so bad (MY WHOLE FINGER WAS TURNING PURPLE!) They just assumed it was bit by a spider or some bug. It happens to my feet if I wear a new shoe, or flip flops, or lets say walking on my feet all day long… it will start out itchy around my ankle or the palm of my foot, then out of no where, my whole darn foot is swollen up. And then finally, I’ve noticed, around when my period is due, I start having random little hives all over my body. it could be anywhere. Then they explode into huge, itchy “welts” as I call them. It doesn’t happen every time I have a period, but I did make the connection that it’s related somehow. (if it helps, my cycle is abnormal.) Also, when I was pregnant with my daughter, I never had one single episode of hives or facial swellings the whole pregnancy. I was even sick twice during the pregnancy, with a bad cold/virus and high fever.

(continued in next comment below)

April 5, 2012 at 9:19 pm
(111) Marie says:

So, if anyone is reading this, what is your advice? I see a lot of similarities in my story comparing to others. Benadryl does not help me. The only things that make this go away is some type of steriod shot in my butt that was meant for an allergic reaction (I don’t remember what it was call) and hospital strength-thru the IV type of anti-histamine that I’ve had to do twice, because my whole face was swollen up. Every time I’ve been to the doctor or the emergency room, they’ve just told me I was allergic to something (Ibuprofen being one, but I take that frequently and it don’t have a reaction like that UNLESS I’m nearing my period, but I can’t tell you if it’s the ibuprofen or not since it doesn’t happen every time I take it) and telling me to do a process of an elimination of foods or whatever. I was even told once that it’s the soap I use. So I stopped using that soap, and…yeah. Still there. Help. :(

April 6, 2012 at 10:00 pm
(112) AngelicKit says:

Marie,
Have you seen an immunologist/allergist yet? If not, it might be a good place to start. It was my allergist that found that my hives are chronic urticaria and more than likely they are caused by my Hashimoto’s. Have you been tested to see if your thyroid is causing you any trouble? If an allergist cannot give you any answers you might check with a dermatologist. Before I met with my allergist I tried a lot of over the counter products. Benadryl only made me feel sleepy. Not helpful. Zyrtec is pretty good, though. I’m also on a prescription medication that does keep the hives at bay for the most part. Heat and stress seem to cause flare ups. Just keep notes so that when you meet with someone you have everything written down. Good luck!

April 10, 2012 at 6:51 pm
(113) Chris says:

I was diagnosed with Hypothyroid about 4 years ago. My TSH level was 7.265. My GP started me on synthroid right away and within 3 months my TSH levels were normal. Six weeks ago I was working out, and 30 minuets into the work out my whole body broke out in these little red itchy hives. The itching was so intense I had to leave. I got home, took a shower and within 45 minutes all the hives were gone. The hives only come when I work out. I saw the allergist yesterday, and she is doing a blood work up. I also made an appointment to see an endocrinologist. Does anyone else have exercise induced hives?

April 17, 2012 at 12:00 am
(114) Heather says:

Wow! I have had chronic hives since I was 13 yrs old, I am now 38. Such a long story, but I used to get them only when I had fevers and they would cover my entire body. Then I would get them randomly when ivwas sleeping, often waking up with them on my neck, hairline, hands and knees. As the years have gone by I just live with them, knowing that I have some awful allergy. I hate to take medicine and they would always be waiting there when meds wore off. Well 2 yrs ago I was diagnosed with thyroid cancer and hashimotos. I had a thyroidectomy and i131 radiation. Although I am on synthroid 150 I still have all the awful symptoms of hypothyroidism! Weight gain, lethargy, painful joints…I could go on. Anyways, I still get hives almost everyday, nothing has changed in that area. I’m looking into going on a t3-t4 thyroid med to control my hypo symptoms. My endo doc thinks I’m psycho somatic because I am a nurse. I think I will look into getting my progesterone and estrogen tested. It couldn’t hurt and maybe something else is outa whack! I do believe that covering up symptoms with anti histamines is a bad idea! and definitely stay away from steroids! It’s important to find the cause and work on a cure for this horrible problem!! Thanks for all your comments!

April 26, 2012 at 1:50 am
(115) Cindy says:

Hi everyone,
I have had chronic hives that do not disappear for aprox. 25 years, mostly on face, scalp, neck, upper arms & back. I have recently tried a over the counter product for irritable bowel called TuZen, it mostly contains probiotic enzymes and antispasm for bowel. I wanted to share because i have tried lots of different remedies over the years and I have never had remission like this – I even stopped TuZen for a couple a months and the hives returned full force, so I am back on it again. I wonder that the watermelon & yogurt lady is onto something
If you try TuZen : two capsules per day for results – one seems to not quite do it.
I have thought at times the hives seems to be hormonal, virus initiated, or overheated body temperature. Also seems to be PH balance relation – so maybe our digestive balance is wacked! I know mine is. It would be nice to know if anyone else has success with probiotics. Good Luck all !

May 8, 2012 at 10:50 pm
(116) Michele says:

WOW…I’m not alone! I am a very healthy woman, eat well, exercise – very aware of nutrition and supplements /natural cures as opposed to prescriptions. I’ve struggled with hives for about 3 years now, only to recently find online the concept that thyroid autoimmunity could be the culprit. I just had my THS tested, at 5.0 but my Dr. forgot to run the TPO. Hope to get that done soon, just picked up a copy of “What your Doctor May Not Tell You about Hypothyroid.” Hope to share more. You girls – be very careful and stay away from steroids and antihistimines…they only cover up the problem and damage your VITAL organs. Try Quercetin, it is a natural antihistimene derived from apple skins and bonus…stays in your cells and thus is anti-cancer too.

May 26, 2012 at 2:14 am
(117) Crystal McCoy says:

I was diagnosed with Hashi’s three years ago. I’ve been to about four endos since then. I had a D&C about 10 months ago and thats when I got my first bout of “Hives”. It lasted about three months. I chalked it up to a surprise pregnancy, hormones out of balance and the change of my medication. About 6 months later I have the hives again. Started on my chest, and worked down to the top of my thighs and its in patches. Super itchy! But the patches seem to go away about a week after they appear. I did do a scan of my neck. My lymph nodes were slightly swollen. I did have a fever blister that week and the tech said that is consistend with the swelling she was seeing. I’m only on 50 mcg of brand name synthroid. I’m still waiting to hear from the doc on my neck scan. Benadryl is not working, not the pills or the spray. I’m chalking it up to Hashi Hives aka homone imbalance, but I’d like to figure out what exactly causes it. The last time I thought my does was too high, but guess I’ll never know. Good Luck!

May 30, 2012 at 11:18 am
(118) pena says:

In March of this year, I took Levaquin for a sinus infection. Shortly after I started itching and swelling to my surprize I got the Hives and Angiodema. I have been off and on Prednisone. Now I am on Plaquinil, Zyrtec and Allegra. I am feel like I am just masking the problem. I am now waiting for my blood test results. I really hope I am diagnosed with something so hopefully I can fix that and my hives will go away. Frustrated and depressed!

May 31, 2012 at 12:58 pm
(119) LisaGirl says:

My issues started back in Sept. 2011. I decided to stop using cortisone creams to control my eczema – I had read that these can have damaging effects on your organs, especially the liver over long periods of time… I had been using them for years all over my body. It seemed to control it as I was not having any major issues or outbreaks. At the same time, I dramatically changed my diet – trying to be more ‘alkaline’… eating mostly fruit and veggies, some brown rice, beans, etc. Well I guess my body went into some kind of shock or something but my eczema spread rapidly all over my body in a very bad way. My skin peeled, oozed, hurt. I was cold all the time. I was weak and so itchy it was unbelievable. And to think all I did was change my diet and stop using cortisone cream! Anyway, I went to see a naturopath who helped a little – just getting me on good supplements (omegas, etc) but I was still quite sick.
—conti below —

May 31, 2012 at 1:01 pm
(120) LisaGirl says:

conti from above —

Suddenly in Feburary (2012), on top of all this, I broke out in hives… just a few at first… on my abdomen and thighs but over a few weeks they went all over my body. I was having angieoderma – swelling of the lips and around the eyes. I was contiually researching this & came to the conclusion I had a yeast/fugal (or candida) overgrowth. I met with a 2nd naturopath & she confirmed this. I started treating the candida with herbal supplements & lots of good probiotics. It has gotten better – my skin in general is MUCH better – I am not well, but it is tolerable… the hives, however have remained. They do seem to be worse when the candida is worse so that may be something you want to look into. Candida can go ‘systemic’ in your body (not just a vaginal yeast infection) & it is related to hives. You can do what is called a ‘spit test’ (google it) to see if you may be dealing with candida overgrowth. I have been taking 25mg of benedryl 1-2 times a day – only when needed. I too have wondered about the thyroid connection. I was diagnosed with Hypothyroidism in March 2009 & was put on Synthroid. I have since added Cytomel. I am wondering though with all my dietary changes, etc if maybe my thyroid function has changed and maybe my meds need adjusting. I am supposed to see my Endocr. doctor next week, so we will see. I hope that is the underlying cause of these awful hives. On another note, the other thing that has helped me tremendously is Soil-based organism Probiotics. There are not many out there – mine are called “Body Biotics” and I get them through a company called Scared Mountain. I truly believed that these soil-based organisms are good for us and give us the nutrients that our soil is depleted of in our foods. Good luck to you all. I will update again after I get my thyroid test results.

May 31, 2012 at 1:05 pm
(121) LisaGirl says:

oops – SACRED Mountain NOT Scared Mountain for the Soil-based organism Probiotics!

June 1, 2012 at 9:36 pm
(122) Bev says:

I have suffered from idiopathic chronic uticaria for twenty years. I take all the antihistamines known to man with some relief but not much. I have taken Prednisone intermittantly for years. I have thin skin easily torn. Actually my arms are a mess. The prednisone is no longer the silver bullet so I just tuff it out. I lay on ice packs. Sometimes when I can’t take it any longer I jump into hot shower. It is absolutely not recommended by the doctor, but is stops the itching for a couple of hours. Horrible for you skin, but what aging hasn’t done the prednisone as destroyed. I have a long history of thyroid disease and never made the connection to hives, neither has my dermatologist or immunologist. I am encouraged by this website. I am going to journal the episodes with the hives although they never really go away. However, they know more about this than they did twenty years ago so I am hopeful. Most of this started when I became paramenopausal so may be its hormones. I am an old lady now and these hives really suck. They dictate what kind of day I am going to have and where I can go. Quality of life has diminished but I am otherwise healthy. So I have much to be thankful for, but it sure would be nice to finish this journey itch free LOL!!!!

June 6, 2012 at 8:24 pm
(123) Sherry says:

As a fluke, I used Canesten cream on hives that were popping up on my chest. Yep yeast infection cream. It was all I had, and I thought it might help the itch.

I don’t know what the heck, but it took the hives away within a day or two. I do firmly believe hives are skin yeast related. At least with me. I am also suffering with hypo symptoms and am self treating myself with iodine supplements. So far, I seem to be losing weight and the fatigue is going away. YES!!!!

Try Canesten cream ladies. You never know. I just happened to hit on something that worked for me.

June 20, 2012 at 1:32 pm
(124) Carol says:

I have suffered from HIVES and angioderma since 1993 definitely think that stress factors into the hive breakout. Recently, I am in a major breakout that has lasted two years. I have scratched myself so severely I have left scars on my skin. I have read almost everything I can about HIVES been to allergy specialist seems I’m not allergic to anything. I have seen dermotologists that have given me everything from Cyclosporin to Enbrel injections. Some meds work for awhile and others have lots of side effects preventing you from staying on them long term. Now I have going back through the allergy circuit again. I did send a e-mail to Dr. Bob and he responded telling me that some possible causes are leaky gut syndrome, gallbladder/liver challenges or it might be misdiagnosed/undiagnosed food intolerances. It’s good to know that I am not the only one with this intolerable problem but I hate that other people have to suffer from this especially children. I know I am blessed and could have much more serious health problems but I just want to feel good again.

July 5, 2012 at 2:30 pm
(125) MZW says:

I have Grave’s Disease and had my thyroid ablated 9 years ago. My Grave’s started during pregnancy, along with hives. It took me many years to figure out that NSAID’s were the main trigger of my hives. If you check the internet for chronic urticaria and NSAID’s, you will get plenty of answers. We all have figured out that chronic urticaria is related to autoimmune thyroid disease. I have had hives breakouts for no apparent reason, but my worst come when I take NSAID’s. I had a backache one night that kept waking me up. I got up and took two Advil on an empty stomach–big mistake. Within 5 minutes, I felt the hives starting and knew they were worse than ever. I went to the bathroom mirror to look at my face and discovered that I was losing my eyesight. I knew I was about to pass out, so I moved into the hallway. I had a full blown anaphylactic episode. I now carry an Epi-Pen with me at all times and wear a medical bracelet for allergies to NSAID’s and Aspirin. I know that some episodes have no origin, but, if you track, it may be something you are eating or medication that you are taking. ACE inhibitors for blood pressure are another drug to watch out for. If you check the internet, it will give you a list of medications that are “linked” to chronic hives–they just might not cause it in everyone. The list of items that cross-sensitize if you are allergic to Aspirin and NSAID’s could not even be listed here–too big. Hope this helps.

July 20, 2012 at 9:37 pm
(126) LORRAINE says:

I HAVE FOUND THAT BATHING IN APPLE CIDER VINEGAR FOR 10 MINS IN THE MORNING KEEPS THE HIVES FROM COMING UP AND ALLOWS ME NOT TO HAVE TO TAKE THE ZYTEZ OR ALLEGRA, ETC. ADDITIONALLY VIRGIN COCONUT OIL NUTRA HAS HELPED AS WELL. MY OPINION IS THAT I HAVE TOO MUCH CANDIDA, AND DORMANT VIRUS. EVERYONE HERE THANK YOU FOR YOUR STORIES. I RECENTLY STARTED ON A HIGH PROBIOTIC AND I AM GOING TO LOOK FOR NATURAL SUBSTITUTE FOR THRYOID REPLACEMENT.

July 24, 2012 at 12:34 am
(127) Julie says:

First off, I’m glad I found this forum, as I really thought I was going crazy for a bit there. I am finally realizing my hives issue is most likely due to my thyroid issues!

I started breaking out in hives 2 weeks ago, coincidentally when mold allergies took a toll on me…severe post nasal drip, coughing, the works.I believe the allergies triggered the onset of my hives. They start up in the morning and randomly pop up from ears, chest, palms, forearms, down to my thighs and feet and they are not always itchy. But they come and disappear usually within 30 minutes! I seem to be fine at night when asleep, as I don’t ever wake up to scratch.

I have Graves Disease, and on a very low dose of MMIs. My last set of labwork showed I was headed hypo, so my medicine dosage was decreased since then. Claritin and Benedryl did not work for me so I don’t believe it’s an environmental thing. I am getting acupuncture done in a couple of days and hopefully along with my medication dosage decreased, I’m hoping and praying the hives go away.

July 29, 2012 at 11:49 am
(128) Maria says:

Has anyone tried IGG supplements? I have Hashimoto’s, Rheumatoid Arthritis and had thyroid cancer. I am on synthroid, cytomel and plaquenil. I have reactions to food(including hives) and have to avoid lots of foods to keep it under control. My dietician/naturalist suggested IGG to cure possible leaky gut syndrome. I don’t know much about it and was curious if anyone else on thyroid meds has had any luck with it.

July 30, 2012 at 10:19 pm
(129) Jamie Boyan says:

When I was nine I went up stairs from our basement covered in hives head to toe. Many weeks turned into months turned in to years of doctors with several different opinions. One said ring worm, milk, chicken pox, and even mold. Benedryl, clariton, and then zyyrtac nothing worked. It went away and reappeared daily. When I was 16 they seemed to disappear. When I was 25 they reappeared for several weeks along with a high fever. I was then told I had the H1N1 virus. I had lost all faith in the medical community. Two years ago I had several large nodules diagnosed and later removed from my neck (last year). Three months later they reappear along with my thyroid. It now has been one year and I am told I have to have more surgery. How have none of my doctors ever found that there is a connection between the two?

August 3, 2012 at 10:59 am
(130) AliV says:

Lee, I feel like your daughter. My 1st ever outbreak was right after Valentine’s Day last year. It was horrible. I’d consume to much seafood in a 5 day period & went to the gym & that’s when the exercised induced anaphylaxis happened. I thought it was something I’d caught from the gym because the breakout started right after I left. The next day I was covered in hives from head-to-toe. I went to the ER & they gave me prednisone. I had EVERY side effect to the drug that existed. I gained 20 lbs in less than 2 weeks. I was constipated, couldn’t sleep & by the 4th day I’d lost feeling in both arms & legs & couldn’t walk, I had to be taken from work by ambulance on a stretcher. I sware on everything I own by the time I finished that prednisone, I looked like a linebacker for the Cowboys. It gave me headaches & shortness of breath. I ended up back in the ER again because of the migraines. They say you’re suppose to ween yourself off of the prednisone, but I still had two days to go and I abruptly stopped it. I didn’t care. It was doing me more harm than good and I couldn’t take it. I also had blurred vision. I was tested for all food allergies including seafood and have no food allergies. No shellfish allergy even though I just stay away. I had another hive breakout last fall, it wasn’t that bad. I was able to catch it early and get on benedryl. I am now 29 weeks pregnant and feel the outbreak coming on. I’ve been taking benedryl which is safe while pregnant, but I also want something else. I use derma smooth (a topical oil) because it helps so much. Like eczema, hives are in the blood stream & it’s hard to fight. I do believe it’s mind over matter so I tell myself this will go away, don’t scratch. I lightly rub because I believe scratching not only makes it worse, but it helps it to spread. I wash my hands faithfully and wear no parfumes, smell good lotions or anything of the sort. I shower in cool water and keep all my bedding clean at all times.

August 7, 2012 at 9:30 am
(131) Seth says:

I first became familiar with hives in the winter of 2008. I was at college and thought I might have been allergic to to my housing. I went to an dermatologist and he gave me a list of the usual antihistamines to take. When I moved the hives went away and didn’t come back until winter 2010. This time I saw an allergist and he diagnosed me with hashimots. My antibodies were higher than anyone he has ever seen. So I started levothyroxin. Since then my hives and angeodema have good and bad days. I havent found the right amount of antihistamines to take. I currently take 125 mcg levothyroxin, 60mg citrizine, 50mg doxepin, 300mg ranitidine.
Is it true that if I raise my dose of levothyroxin that my hives could go away? I know my endo won’t do it for fear of making me hyper.
Thanks

August 19, 2012 at 3:34 am
(132) Susan says:

I have had antihistimine resistent hives for more than 50 years, with trips to the emergency room when I dveloped anaphalaxsis; (eexcuse the spelling) I finally have them under control taking cyclosproine and immunosupresent.
However, now I* am 65 I have to pay for the medication myself, it seems that the Federal Governement refuses to recognize these as an autoimmune disease, so I buy my own medication, a strain on the budget or I turn blue and die.

August 29, 2012 at 12:56 am
(133) carolyn says:

My nightmare of hives started it seems when I pinched a pimple on my bottom. The next morning I woke up and I had raised bumps that I have become familiar with. This was in February of 2012. I’m still having hives. I’ve been to the ER twice because it scared me when my face swelled and when I looked in the mirror I was this unrecognizable mask. My breathing was affected. The first time I was prescribed prednisone, the 2nd time they gave me a couple of shots, one for short term, one for long term then another round of prednisone. I gained weight of course and for a short time I was hive free.
I’ve been taking allergy medicine, benedryl and the equivalent of zyrtec and nothing really helps. I don’t want to take the prednisone again because each time I do I gain weight.
I swell where the hives are, and they are extremely hot to the touch, they of course itch and I try my best not to scratch but I lose the battle sometimes then they wage a war on me that I lose. Hives are a monster.
I’ve had them all over, they are extremely painful when they group together and especially on my hands and feet. Sometimes they last for over 24 hours until they finally fade away but they appear in other places on my body. Sometimes they disappear quickly, but they are relentless.
I’m thankful for this forum but God please be merciful on everyone that knows what it’s like to suffer with hives.
I’ve got to the point that I’ve come to terms with them and I feel like it’s possible that I’ll have them for the rest of my life. But, this site has given me some hope for which I will always be grateful for. I’ll try to be more positive in willing them away and not just to accept this is my fate in life.

August 29, 2012 at 12:57 am
(134) carolyn says:

Sometimes I think they were triggered through stress too. My skin touching my skin also seems to make them cluster together. I try to stay cool at night, which seems to help but not always. I use to wake up with them and have to take a cool shower at night then stand before a fan just to find some relief. Allergy meds used to help a bit, now I just abuse the allergy meds just in hopes I get relief but nothing seems to help, but I’ve read above the different combinations that some have found relief with so I will try that.
At this moment in time my feet are affected and I’m having trouble walking just inside my home. I shudder to think what part of my body it will torment next.

September 3, 2012 at 4:24 am
(135) Christina says:

I have had these hives for about a month now, they itch like crazy! I went to the doctor and they prescribed steroids for about 5 days. They said that would make the hives go away. It didn’t i’m still stuck with them. I had a seizure and we are thinking it had to do with the hives. I don’t know how to get rid of them. I went to children’s and they did blood work. Does anyone know what I can do to get rid of them? I haven’t been able to sleep in days because the itching is so bad it wakes me up

October 7, 2012 at 5:35 pm
(136) Ally says:

So glad I found this site!

My hives/skin problems started in the Spring. I thought they were allergies, based on the region I live in. Took all my regular allergy meds, they subsided for a bit, but flared again and again.

Went to the Dermatologist, suspecting it might be Hashimoto’s. I informed her that BOTH my Mother & sister have Hashimoto’s. Her reply, “No, it’s contact dermatitis from your make-up.”

Shortly thereafter, I felt a mass in my neck. Post ultrasound & biopsy, I received my diagnosis of Hashimoto’s.

However, even being on Synthroid for 11 weeks and am STILL having dermatology issues.

I don’t think my dose is high enough, but no one is willing to push the dose!

I’m fed up with Doctors who only look at blood work and are not looking at my symptoms!!

October 9, 2012 at 7:58 pm
(137) jblaine says:

My ten year old son has been dealing with hives for over a year now. He has been to the allergist and came up with nothing he has been tested for lupus and several other things which have all came back negative. His back outs always seem come with any illnes (stomach virus, sinus infection,head cold, broncits) he has broke out with all of these. when the hives first started he wasnt sick at all. he woke up early on a saturday morning to get ready for his football game and we noticed he had some whelts on his arms as the day progressed so did the hives by the end of the day we were at the ER he was covered from head to toe there wasnt a spot on his body that didnt have one. they gave him staroids and they faded but came back over the next couple of days. he had them everyday from the end of september to the end of december then they went away. thats when they started only coming back with illness. when he breaks out its normally every and leaves big bruises after the whelt fades he says they arent itchey at all they just hurt. he gets them on his feet and hands the worst around his knuckles and wrist
he have tried everything. please if u have any advice please help us!! we are seeing a immunoligist at Texas childrens hospital in houston but so far the havent came up with anything. he doesnt have any other health problems at all he was born very premature but healthy

October 18, 2012 at 10:37 pm
(138) Rhonda says:

So Thank ful I found this site!

Was diagnoised with ulcrative hives in August 2012. Now the doctor says i have Chronc hives. I have hashimoto’s. have been taking synthroid for over 13 yrs. when i was growing up had a goiter. always problems with menstrual cycle unless i was on the pill.

I first broke out with hives in July of 2012. Initially I would wake up between 4 and 6 AM and my trunk would be covered with hives. great big welts. swollen. red. hot and itchy. the more i scratched the more they spread Then they covered my legs and down the inside of my arms. and they were symetrical. if they were on my left inside arm – they would start on the right inside arm not too long after.Oddly enough – the hives never were below my kneesm on the front of my arms and never went above my neck.
I lived with it for about a week thiking it was something I had eaten, my allergies or something i had touched while gardening. I took benedryl and used creams, ice packs, got in the cool pool water and cold showers. I have now been to GP dr 4 times. First i was told it was probably allergies and to keep taking/ doing what i had been doing and was prescribed 6 day steroid. Steroids worked while I was taking them. but on the last day of the steroid it started again in the night. The next day dr & anothr prescription for 6 day steroids. Same thing along with atarax for the itching.. 3rd doc visit. No steroids maybe it is emotional or stress (suggested an antidepressant). Put me on Allegra. 1 pill every 24 hrs. works great. but if i don’t take them exactly on time the hives start all over again.

October 18, 2012 at 11:05 pm
(139) Andrea says:

Three months ago I was told I had Hoshimoto Disease and had a total thyroidectomy because of suspicious nodule -with confirmed thyroid cancer followed by radiation iodine therapy ablation. Surgery was Aug. 17 with treatment Sept. 17. Now I have hives and didn’t know the connection until I went to the allergist today. Oct. 18. Auto-immune inflammation hives-bingo. I just took my first Zyrtec tonight!

October 22, 2012 at 11:31 pm
(140) Jamie says:

Wow, I feel better knowing others are out there. I have gotten hives since college, mostly after I get a case of the flu or any other bacterial/viral infection. They generally show up toward the end of the illness, I have also had gastric issues all of my life. I stumbled upon hystamine intolerances which can be related to food you eat as well as foreign agents such as poison ivy, bacteria, viruses, etc. I got poison ivy a month ago and had a terrible reaction, lots of swelling at the site of the poison ivy which was a hystamine reaction. My mother also has hashimotos and I am wondering if I might get it some day although i don’t have any of the symptoms yet. I am interested to know how much of this is genetic, etc.

December 10, 2012 at 11:12 am
(141) S Harris says:

My daughter is now 11 and has been breaking out in hives for 5 years now. I took her to an allergist who tested her for food allergies and it came back normal. He said to continue to give her Zyrtec and it should resolve on its own. That was 3 years ago. The pediatrician has been saying the same thing. Her thyroid has been tested and after reading all this I went back to her regular doctor she did do additional thyroid test which all came back normal. I an going to take her to another allergist next week. I can not help but think there is something else causing the hives. Hashimoto’s does run on my husband side of the family. I am thinking my next step may be an endocrinologist. Its hard to find a Dr that will truly listen to you. I am hoping for better luck this time around.

December 10, 2012 at 9:33 pm
(142) melanie says:

Has anyone else tried sulfasalazine for their chronic urticaria?

December 10, 2012 at 10:55 pm
(143) Michael says:

My Doctor prescribed Hydroxyzine hcl 25mg, and it is magic! Not only did it stop the itching, but the hives went away after a couple days as well. After a few days all symptoms disappeared for almost a year!

December 11, 2012 at 9:30 am
(144) Cindy says:

My 9 year old daughter has suffered with Cold Hives for the past 6 years. I have taken her to an allergist who really does not know the cause. She breaks out when she is in a warm environment and then goes into a cool environment. Even just getting out of the shower she will start to break out while she is drying off. The docs say to take Zyrtec everyday. It helps a little but not completely. The breakouts are horrible. Blistery looking welts..hundreds of them on the exposed skin. I feel horrible for her. I never thought to relate this to thyroid. I am a thyroid cancer patient. So, I have learned a great deal about the thyroid connection to many things. Thank you for posting this thread! It has been very helpful.

December 29, 2012 at 10:42 pm
(145) Carol says:

I have had a Thyroid [slow] problem for 20 years and this year in Feb I started to come out with lumps and bumps, which is the chronic hives. There is the International Chronic Urticaria Society for people
like myself to get help from.
We are experiencing temperatures in the 40c this week in Australia, and the hives do not like heat, stress and pressure. So no tight fitting close should be worn. I am taking a new antihistamine this year, which seems to control it for some hours. But upon waking or having a hot bath or hot shower the problem starts. I am controlling it by cooling the body. Upon waking I drink iced water and sit under the air conditioning vent. The hives upon waking are very itchy and are swollen, but if I am able to keep my body temperature below what is normal and start to shiver, I find that the itch goes away and so does the swelling when I get to that stage, life becomes normal for the rest of the day. This then is fine for many hours.
I take the anti histamine at 8pm and rise about 6am. I am not having heavy bed clothing, but laying down for those hours seems to annoy the hives. I also am keeping off any foods which have histamines in them, which is a fast way of controlling the problem till the GP finds something better for my long time heath. Tea and Tomato and Soya are in the list of foods with histamines. But finding the right diet is very beneficial. Yes I have had antibodies from the injections that were given after the birth of my two sons.

January 5, 2013 at 8:23 pm
(146) Carolyn Suffield says:

Reading what everyone is going through just leaves me hopeless. I have had hives for over 7 years and I have spent over 16 thousand dollars on doctors, test and meds. What a waste of time and money because no one knows anything. I too have thyroid problems but my blood test comes back normal but yet I have a goiter. I can’t get cold, or hot or I am an big trouble.
Once in a while these hives go away and might be gone for a few weeks and then without reason they come back.
I just want someone to find an answer, there are to many of us suffering, our lives are not normal. We just want our lives back, please someone take these hives serious and find a cure.
Good luck everyone, please stay strong,

January 9, 2013 at 12:36 am
(147) Perla says:

HI EVERYBODY I HAVE BEEN SUFFERING FROM HIVES FOR 3WEEKS NOW, AT FIRST I THOUGHT IT WAS A ALLERGIC REACTION WHEN THEY WHEN AWAY I WAS HAPPY THEN THEY CAME BACK AND I WENT TO THE ER. THE DOCTOR TOLD ME IT WAS HIVES HE GAVE ME BENADRYL AND PREDNISOE IT ONLY WORK FOR A LTTLE BIT AND THE HIVES WOULD COME BACK. I DID MY OWN RESEARCH AND APPLE CIDER VINEGAR WORK YOU SHOULD TRY IT. PUT IT ON YOU FOR ABOUT 1HOUR…

January 10, 2013 at 8:28 am
(148) Jeanie says:

Hi, it’s very sad to read these comments, but also reassuring that I’m not the only one that can link Hashimotos and hives. I’ve never had hives until spring of 2012 and they NEVER go away. They move or lessen off and on, but I ALWAYS have them. I had ovarian cancer at age 28, had a complete hysterectomy. I was diagnosed with hypothyroidism in 2009.i take levothyroxine 150mcg. I started breaking out in hives, saw my doc and he prescribed singulair and Allegra . The brand name singulair works, the generic brand doesn’t, when I say work, I mean provide some relief. Allegra is non drowsy. I still get them, and went back to doc, he then tested me for lupus, 3different thyroid, and internal mold(I’m allergic to a specific type found in soil of house plants) found I have extremely hogh counts of thyroid antibodies. He then sent me to a specialist who has diagnosed me with Hashimoto’s thyroiditis autoimmune disease. We are now checking TSH and waiting for results. My doc told me to just take my synthroid(levothyroxine is generic) religiously and go about my life. And also said the hives should be checked by a dermatologist. I believe all the doctors work in network to make money. I’m listening to my body and know that it’s NOT a “skin” problem. I’m so sensitive that I can feel whatever is causing the hives move like bugs on the inside of my body. I called to ask if they can prescribe a natural form of thyroid and was told all my doc deals with IS synthroid(synthetic). I know it’s because of the incentives of drug reps. I made an appointment with a naturopath, hopefully to detox my system and get back on track. My advice to all of you out there… Forget about insurance, forget about docs who won’t listen and only want to treat symptoms and not the problem. Listen AND trust your own instincts and seek a natural way ( because its the ONLY way your body absorbs) to FIX the cause, instead of masking the issue. Good luck to all…

January 13, 2013 at 2:17 am
(149) Shae McKinley says:

I have had hives for 7 months now. After seeing 9 doctors, I am more baffled than ever as to what is causing them. I developed them in the middle of an IVF cycle. I became pregnant and had a miscarriage in less than a week. I was covered in hives throughout this process. I assumed it had something to do with the IVF procedure or hormones, but her I am 7 months later covered in hives? I have been tested for all autoimmune disorders and thyroid issues. All of my test have came back normal. I don’t appear to have any allergies. I don’t know which avenue to explore next? I am 37 years old and I have never had any allergy problems prior to this. Any suggestions on what may be causing the darn things?

January 16, 2013 at 11:34 am
(150) Stephanie says:

I know how everyone of you feel. My story is to long to post here, but here is a link to it and I hope it can help someone.

http://www.blogger.com/blogger.g?blogID=4402988337186516525#allposts/postNum=0

January 31, 2013 at 1:21 pm
(151) Eileen says:

I have had hives for years. Only after I eat. It seems to not matter what I eat. Sometimes they are worse than others. They do subside after about a half hour. They are always on my lympnodes directly under my ears. I also get a horrible itch inside my ears and in my throat. I have been to allergists to no avail. The information on this site is most helpful. I will have my doctor check this website for ideas on treatment. Thanks all!

February 13, 2013 at 7:54 pm
(152) kyle says:

I had hives real bad for over a year and was never able to tell if it was because of my thyroid. But i just took zyrtec and zantac150 every morning and the hives were gone in no time

February 24, 2013 at 1:06 am
(153) Carol says:

I have suffered with acute hives three different times over the last 15 years. Each time they lasted over a year. The doctors have all been pretty useless. They would rather say I have emotional problems (stress or anxiety) than actually help. I discovered the link to thyroid (have been on synthroid for 30 years for hypothyroidism) even though no doctor will confirm, I am now trying to have antibodies checked. Also I have been reading about a possible link to vitamin D. Nobody but those who have experienced this invasion can have any idea how jumping off the bridge crazy hives can make you.

March 8, 2013 at 4:37 am
(154) Magda says:

I had the same, hives and high levels of thyroid peroxidase antibodies – what I did was taking more thyroid hormones than I should. Hives were gone in 3 days.

March 19, 2013 at 10:07 pm
(155) Andrea says:

Here is my next theory- as I have Hoshimoto and itchy rash for 6 months, and Dec.diagnosis of Diabetes, Thyroid Cancer leading to thyroidectomy last August, I am going with Gluten intolerance. I was tested for Celiac yesterday, so am going Gluten free tomorrow. There is a noted triad of Diabetes, Hoshimoto Disease, and Leaky Gut or Gluten intolerance. I will do it to be relieved of this itching- otherwise feel great!

March 24, 2013 at 10:28 pm
(156) Matthew says:

In 2005 I began to get chronic hives – massive welts, constantly all over my body for about 9 months solid and then over the next 6 months or so they petered off until after 15months from the start I stopped getting them. About 12 months or so after that I got nearly every Graves Disease symptom there was. Carbimazole fixed things and after 12 months I came off the medication.
In mid 2010 (after a flu shot) I start getting chromnic urticaria again – this time it lasted about 8 months. About 4 months after that stopped, I again began to get symptoms of Graves Disease. I recognised it a lot earlier this time so didnt struggle with it as long. Once again, I went on the medication and again the symptoms were gone after 12 months.
Then – some 4 months after I came off the medication, I began to get chronic urticaria again. I contacted my specialist and advised him and prdicted that I would soon have Grave again. Sure enough – within 3 months of the urticaria, I again was diagnosed with Graves.
I will try the medication again.
I am convinced that with me, the urticaria is like a precursor symptom of the Graves as all 3 times I have been confirmed with Graves, there was an extended period of urticaria. On each occasion, the urticaria was severe and also included facial (eye, lips, tongue, earlobes) swelling as well as welts all over the body (mainly on torso, arms, upper legs and butt).

April 9, 2013 at 3:11 pm
(157) Melanie says:

I have been dealing with hives and swelling for 18 months now. I had my thyroid taken out in 2008 and take levothyroxine for that. It was cancerous. I hav had numerous tests and the doctors seem baffled. I take hydoxyzine to control it. but still no answers. They thought it was a few different auto-immune diseases but tests came back negative. any thoughts?

April 20, 2013 at 3:52 am
(158) Hanam Kaur says:

i live a non toxic, gluten free, non dairy, soyfree, no corn, or peanuts diet which is free of I have been a hive ridden itch monster for the last 8 months, which has been wreaking havoc in my relationship to my mate, my work, my career, my social life, my well being,over this invader that has taken front and center stage in my life,interrupting sleep, promoting miserable rest, reinforcing crying meltdowns, pushing me into emotional agitation, total aggravation, prompting moments of insanity and utter helplessness, providing justification of total indulgence in scratching my skin bloody for a moment of satisfaction, only to find myself in massive burning pain shortly thereafter-Endocrinologist said today “There is a coincidental finding of positive autoimmune antibodies in some people who have chronic urticaria but there is NO known cause and effect relationship. And unfortunately there is no hormonal therapy that is likely to help.she also said “I would also like to clarify that this does not appear to be an “endocrine related skin condition”. In fact, as I mentioned in the office today, it is probably not related to hormones at all.”I also asked if we could delve further into looking a the profile of my other glands. provide a overview of how all my levels are doing-in the endocrine world of my body.-her response:”I advised you that there are hundreds of hormones in the body and it is impossible to do a general screen of the hormones in one’s body. We generally perform tests when they are appropriate to the current clinical situation. There are no other hormonal tests that are appropriate at this point.”i have this stupid discussion where i get grilled on justifying a symptom was all written off as-something else-not related, weather change, dry climate, change of life, process or getting older, unconnected to hormones-hmmm , something wrong here? I just want to know what is going on in my body, why its happening and how i can help it

May 8, 2013 at 9:19 pm
(159) Shannon says:

I have had chronic uticaria since I the age of 11/12 (which is interesting to thing this is the time I was diagnosed w/ hoshimoto’s and when through teenage hormonal changes). I for years was in and out of the emergency room and had a ton of specialists. While I believe there is a tie between hormonal issues, I was also able to find out that I have what is called SALICYLATE SENSITIVITY. I eat a modified diet which eliminates high/very high salicylates in foods (which is often in dark green leafy vegetables). There is quite a lot more information about this allergy in Australia than America, but if you search on the web you can find information out there.

I am now 38, and the hives had been in remission for over 15 years but came back in the last year. I believe a mega-vitamin B injection was the cause of them coming back. Nonetheless, I have been able to go on an elimination diet eliminating high level salicylates in my food, cleaning products, and body products and have been able to see quite a big difference. I hardly take medicine (a few pills a week now) and the hive attacks are not so urgent/severe in nature.

Another thought…keep hydrated. So many people are chronically de-hydrated. This has influenced the outcome of the hives as well.

Just thought I would put this out there as so many people are searching for answers.

May 29, 2013 at 11:50 am
(160) Concerned daughter says:

To all those who are suffering from hives and have thyroid issues – my mom broke out in extreme hives 14 months ago. She’s been to numerous doctors (many allergists, endocronologists, etc.) and each gave her a regiment of perscriptions…which helped but never solved the problem. Blood tests showed healthy..thyroid and everything but the hivees were still there. It’s terrible as the hives move, disfigure her body and face, itch ferrociously, swell her lips and throat. The sun seems to aggrevate and cause the problem to escalate. FINALLY A DIAGNOSIS AND CURE! A doctor in Tampa Florida (who is also a professor) has treated 10,000 of these cases. It’s called Extreme Hives in Healthy People. The hives are related to the thyroid disease and yes, it’s an auto immune of the SKIN not the internal/organ auto immune system. She’s on a high dose of pregnozone and then taper off. Once gone, they are gone although a slight chance they may reappear years later, but we’ll know how to treat it. As soon as I get the doctor’s name, I’ll post it.

June 20, 2013 at 9:54 pm
(161) Renee says:

I have hypothyroidism and have suffered from chronic hives for more than 5 months at a time. It was horrible!!!!!! For the record I was assessed by allergist, an endocrinologist and routinely seen by my primary care physician. I was being treated for hypothyroidism ( low dose levothyroxin) and had hives. I eventually did my own research and found an allergy immunologist in Mt. Pleasant, SC …Dr. Maria Streck, who did not mess around. She treated me for autoimmune thyroid disease after verifying that I had a reaction to my own serum which was extracted from my blood and reinjected in my arm. She prescribed cyclosporine ( an immune suppressant ) which has totally been life changing… No hives since…which has been over 3 years. This treatment improved my quality of life drastically. Prior to this intervention I was on steroids for at least five months, gained more than 25 lbs in five months, and suffered in many other ways due to side effects from long term use of steroids. Good luck people! Hopefully this will steer you in a productive direction. You will have to find the answers for yourself:) you can!

June 21, 2013 at 1:50 pm
(162) Crystal says:

I’ve been dealing with itchy, bumpy hives for the past 6 months. I’ve never had hives before. I had no idea what was causing it but then realized that they started the day after I started taking prescription vitamin D (50,000 units). I just found out that I have a weak thyroid and its most likely caused from gluten. I just started a gluten-free diet. I’m hoping that my gluten-free diet will fix my weak thyroid which will clear up my hives. My skin was never sensitive before and the other day, I put a perfume on my Lush, it has essential oils and boom! I got the same itchy, bumpy hives, where the perfume touched my skin. I’ve always used perfume and never had a problem before. It seems that my gluten-intolerance and weak thyroid is something relatively new and now I’m reacting. I’m excited to see how going gluten-free can help me, with both my skin and digestive issues. Good luck everyone!

June 26, 2013 at 3:08 pm
(163) Abbey says:

My teenage daughter has been suffering from chronic urtacaria (hives) we have seen a dermatologist, a rhuemologist, and now we will be seeing a endocrinologist. She has spent several nights in the emergency room, several trips to the doctor, and had a skin biopsy. She is currently on zantac, zyrtec, and singular once per day. It seems to be helping, she still experiences some outbreaks though. She had a positive ANA test 1:320, then repeat at 1:80. Her thryroid was tested, it was T4 .98, and TSH 5.88, then repeat at T4 .98 and TSH .98, so the thyroid antibody was performed it revealed her TPO level at 246 which is quite high for a 14 year old, so doctor says it is probably autoimmune and we will see the endo. doctor. I feel your pain as you suffer through these hives, my daughter hates them, they are very frustrating to deal with. I pray that everyone finds a cause and a treatment for their condition. As a mother, I can’t stand to see my daughter suffer like she does. God Bless.

July 18, 2013 at 10:52 pm
(164) London says:

I’m all kinds of confused. I have no thyroid what so ever and have been taking levothryoid for over 17 years. In the last 2 years, if my levels are low or I miss more than 2 days worth of doses I get hives. HORRIBLE hives. Anyone know anything?

FYI to all with hives: ICE PACKS!!!

July 19, 2013 at 3:36 pm
(165) Monica says:

I have been getting hives for about 4 years now. They hit only at night when my body warms up. Lying in bed, lying on the couch with a blanket, or taking a hot shower then going to bed, all cause the outbreak. When my body cools down they disappear. I saw an allergist / immunologist who had be on meds. They still came back off and on. I read up about thyroid related to chronic hives. I then found how a lack of iodine can affect thyroid function. I read how most people are iodine deficient. I started taking one drop a day of biotics Iiquid Iodine forte supplement, and have been hive free since I started a few weeks ago!! I can take a hot shower, go straight to bed and finally have no hive breakout. Worth looking into. Amazon had the iodine drops.

July 22, 2013 at 7:56 pm
(166) Shelzie11 says:

Thank you, thank you, thank you! My allergist and I have been racking our brains trying to figure out why I’m getting these hives; there is no pattern, no rhyme or reason, nothing, but they appear and have been terrible at times, enough to go to the hospital over. I itch inside my hands, feet, and throat, I get severe leg and feet cramps in the middle of the night. I’ve been on a sublingual food allergy program for the past 3 months then we had to quit as my hives had gotten out of control. After steroids and Zantac we decided to begin them again. It hasn’t made any difference to what I eat or drink at all, I just get them whenever they decide to pop out. After seeing my skin cancer doctor today and discussing this with her, she suggested they test my Thyroid and there have been related issues. So WA-la, here I am on this site, reading all of your comments and saying to myself, wow, I’m not crazy; this really is happening. So now I’ve sent this information to my allergist and we will begin testing and see if we can get to the bottom of this. Thank you all and god bless.

July 24, 2013 at 11:01 am
(167) Cristen says:

Wow, I’ve been having hives off and on for several years now. Started behind my knees then went to the torso and now mainly my face. I’ve been through a lot the past 8 years and thought it was stress related. Then the last year I’ve become lethargic, huge weight gain especially the belly, neck and face area. I am miserable. I’m going to see a Dr., but I think I’m going to try some of the natural remedies I’ve seen on here. thank God for this site. I was thinking menopause, which that probably has a little to do with it, but I see hypo as the culprit…

July 26, 2013 at 9:25 pm
(168) bster says:

Try stopping coffee. I never drank coffee until my 20s then started getting hives after a few months. My father had the same problem.
I stopped the coffee and the hives went away. A few years later, I discovered I am hypothyroid.

It isn’t the caffeine, because I can drink tea and cola with no problem and decaffeinated coffee causes hives as well as regular coffee.

August 2, 2013 at 7:53 pm
(169) Jenny says:

I’ve posted here before…in 2010. I go through periods of hives, lasting for months and then they go away. I seem to get them once a year or so. I wanted to post what I’ve learned and what’s helping me so that it could possibly help someone else. I’ve been hypothyroid since 2003 and found out 3 years after I had my daughter. I think my thyroid “died” after pregnancy but didn’t realize it. My mom told me the same thing happened to her so it runs in the family. So I was initially on Levothroid, had switched to Synthroid for awhile. My TSH went back into the “normal” range but never optimized and I learned about checking your Free T3 and Free T4 are important to gauge how your thyroid is working. Anyway, I am now taking Westhroid-P 97.5 mg which is natural desiccated thyroid (similar to Armour) and only has 2 fillers, which is good for someone like me who seems to be sensitive to those, and 50 mg of Levothyroxine. I also found that I’m also iodine deficient and have just started to take 6.5 MG not micrograms of iodine and plan to increase slowly to see how my body reacts. In addition to a good multi-vitamin powder, I’m eating 3 brazil nuts for some added selenium (good for low thyroid). I’m taking 4000-6000 iu of Vitamin D3, 5 mg of DHEA sublingually, 1000 mg of sublingual B12, 50 mg of zinc, a good B vitamin, 1000 mg of sodium ascorbate (Vit C) and lots of water.

August 2, 2013 at 7:53 pm
(170) Jenny says:

I’ve found that MAGNESIUM OIL (magnesium chloride) has really helped when I spray it directly on the hives. I read that magnesium helps to stabilize mast cells. I take it orally as well (400 mg of magnesium glycinate). The spray does sting initially because I read that it might encounter toxins, but after a few days it no longer stings. You can also dilute it or add it to a bath. It seems to stop the hives and makes them go down a bit. Right now, I feel that I can even go a day without taking an Allegra (Zyrtec stopped working for me about a year ago). And if I’m itching, I will take an Atarax at bedtime. Stress definitely is a trigger, so anything that will reduce stress (light exercise, acupuncture, yoga) is good. I did some IGG/IGA food sensitivity test and found a bunch of food intolerances which indicate leaky gut. So I’m taking a product called Intestinew which has L-Glutamine, also Slippery Elm, fish oil, and probiotics. I’ve been eating a low salicylate diet which has helped as well. As you can see, I’m covering all bases. I don’t know EXACTLY what is working, but all I know is that I feel like my hives and angioedema are on the way out (knock on wood). Hope any of this helps someone! Good luck!

September 13, 2013 at 1:11 pm
(171) Maggie says:

Now I can see that I’m not the only one going through this horrible episodes…mine symptoms r quite similar with night break out’s , swelling on different parts on my body especially on my scalp, which is annoying, and I can not use ointment on my scalp. The swellings are ranging in size, some large as an egg…my disatvantage is I do not have Health insurance, I go to the doctors only in case of emergency,
so I can use all the advices from you fellow ladies out-there who r having similar problems

October 10, 2013 at 6:06 am
(172) Cindy says:

My hives started 3 weeks ago when I took the flu shot and started using Nature-Throid at the same time. That same weekend I left on a week long trip to help my son get settled in his new rental house near the university. I never thought that doing these things simultaneous could lead to hives. Prior to this I was on Levothyroxin for decades with no problems. Now I’m wondering if my Candida was also a factor. I try to control it with probiotics, but I had run out. Now I don’t know how to get rid of the hives. I tried the prednisone paired with the other prescription drugs. I tried the O T C stuff. Now I’ll try the multivitamin, glucosamine and that TuZen that you all recommended. If it works I’ll do a follow up message.

November 6, 2013 at 6:24 pm
(173) wigglez says:

Guys you have candida. i have struggled with several auto diseases as a result of having delayed antibodies for yeast. now 10 years later, very sick. cant even get out the bed without feeling like crap. i itch all over constantly. cant gain weight. it sucks. look into the yeast connection and parasites

November 24, 2013 at 1:35 am
(174) HungryBetty says:

Check for parasites. I had chronic urticaria for 2 years (it came on suddenly and left just as quickly) 9 years after I contracted a parasite (schistosomiasis mansoni) in Africa. I never tested positive for candida. The reaction was based solely on my body’s response to the eggs and waste they created.

January 9, 2014 at 2:35 pm
(175) Norma says:

Perhaps my hives-thyroid story will be of help to someone: My symptoms presented in 1986 as a deep-tissue itch on the side of my left hand. To this day, this itch is the harbinger of trouble. Symptoms escalated over a few months to full-body hives. Symptoms occurred mostly near or during sleep times, so it was hard to get doctors to understand without seeing them at their worst. Often hives would appear if I merely took a nap. I eventually ended up in the ER, and was admitted to the hospital overnight and given a mule-killing dose of steroids. When my GP visited the next morning the symptoms were calmed, but while he was present they started again, so he witnessed an event first-hand. Steroids obviously were of no effect, second-generation antihistamines were not yet on the market and Benadryl was completely ineffective. He prescribed Periactin antihistamine. This worked. No more hives as long as I took it. Unfortunately it causes extreme drowsiness. Fortunately I adapted over a few weeks such that periactin did not make me drowsy, and got along for 9 years. Meanwhile I made the rounds of specialists who found vague autoimmune test results and endured skeptics who wrote it off to stress or unknown allergy. About 1996 I had a recurrence of hard-to-control symptoms. During this episode my GP saw a journal article about thyroid autoimmunity and hives, ran the antibody tests (which were 30 times normal) and put me on hormone replacement (Synthroid). It was a miracle. I have been symptom-free for most of the intervening years. I now find that when I occasionally need an antihistamine, Zyrtec works well, though I always keep a supply of periactin. I have now moved out of state and had trouble finding doctors who know about this disease and treatment. If anyone can recommend an experienced doctor in the Indianapolis area, please let me know. I can’t stress the importance of having a doctor who is knowledgeable and interested in your case.

January 14, 2014 at 9:56 am
(176) Cm says:

Been battling hives for two years now. Started at 26 now I’m 28. Got to an allergist who found thyroid antibodies on the high normal side. I Was using benedryl but that stopped working. Every other thyroid hormone and other antibody test was normal.

They put me on Allegra. Problem solved for about two weeks now. 24 hour version and it’s OTC. Saving money to see a DO to get another opinion.

Allergist explained that since my urticaria(hives) have not spread onto my face, rarely affected my ears, would come after exercise and eating that I must be having a reaction to something they can’t find on allergy blood test.

She explained that the antibody is attaching to the hormone. I said ” duhhhhh….. I’m aware of what is happening but obviously there shouldn’t be thyroid antibodies” so she offered another piece of advice saying if have ever been ill before then if a virus or bacteria attacked the thyroid then the thyroid would create these antibodies to help counteract excessive hormone being realeased.

Let’s just say I’m glad I’m on Allegra but I feel that my allergist is just flat out of ideas. I think her hands are tied until my antibodies level reach the thousands or my hormones go way out of whack. Until then, I just have to deal.

I will say that I also suffer from anxiety and high blood pressure. Going on a low sodium diet has helped me a lot and drinking plenty of water. With the Allegra I feel better but I know it’s only a matter of time until I build up a resistance.

This is nothing compared to others here, but I’m hoping after reading some responses already and adding my troubling start with this issue that I’m able to carefully watch myself , so that I can be more prepared for when my thyroid gives way.

February 15, 2014 at 11:53 am
(177) kim says:

When my daughter suffered with hives, I would give her a strong dose of Epsom salts and the itching and swelling would go away.

February 22, 2014 at 8:23 am
(178) Ed says:

Try fexofenadine 180mg as an antihistamine to battle / keep urticaria at bay. I am very fortunate to have a wonderful Dr who also has urticaria. In addition to the tablets, try aqueous cream with 2% menthol. It really helps cool down the skin.

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